Lista de obras -

"What's in a name?" CAR-T Gene Therapy

artículo científico publicado en 2017

A Pilot Evaluation of Portfolios for Quality Attestation of Clinical Ethics Consultants

artículo científico publicado en 2016

A feasibility trial of a video intervention to improve informed consent for parents of children with leukemia

artículo científico publicado en 2010

A physician-directed intervention: teaching and measuring better informed consent

artículo científico publicado en 2009

A survey of language barriers from the perspective of pediatric oncologists, interpreters, and parents

artículo científico publicado en 2006

Achieving an Optimal Childhood Vaccine Policy.

artículo científico publicado en 2017

Adolescent adherence to oral therapy for leukemia: a focus group study

artículo científico publicado en 2007

Adolescent perspectives on phase I cancer research

artículo científico publicado en 2012

Allogeneic Hematopoietic Cell Transplantation and Other Expensive Cellular Therapies: A Miracle for the Few but Off Limits to Many?

artículo científico publicado en 2019

Altruistic discourse in the informed consent process for childhood cancer clinical trials

artículo científico publicado en 2006

Anti-infective therapy at the end of life: ethical decision-making in hospice-eligible patients

artículo científico publicado en 2005

Anticipatory guidance to improve informed consent: a new application of the concept

article

Assent observed: children's involvement in leukemia treatment and research discussions

artículo científico publicado en 2002

Both Sides of the Coin: Randomization from the Perspectives of Physician-Investigators and Patient-Subjects ⬇️

artículo científico publicado el 1 de enero de 2010

Cardiopulmonary Resuscitation, Informed Consent, and Rescue: What Provides Moral Justification for the Provision of CPR?

scientific article published on 01 January 2019

Childhood Vaccine Exemption Policy: The Case for a Less Restrictive Alternative

artículo científico publicado en 2016

Children Are Not the Property of Their Parents: The Need for a Clear Statement of Ethical Obligations and Boundaries.

artículo científico publicado en 2017

Children are not small adults: documentation of assent for research involving children

artículo científico publicado en 2006

Children in research: new perspectives and practices for informed consent

scientific article published on 01 September 2003

Children's competence for assent and consent: a review of empirical findings

artículo científico publicado en 2004

Children, research, and guinea pigs: reflections on a metaphor

scientific article published on 01 September 2006

Clinician-parent communication during informed consent for pediatric leukemia trials

artículo científico publicado en 2005

Comment on: Use of thrombopoietin receptor agonist (romiplostim) in neonatal autoimmune thrombocytopenia due to maternal immune thrombocytopenia

scientific article published on 11 March 2019

Communicating and Understanding the Purpose of Pediatric Phase I Cancer Trials ⬇️

artículo científico publicado el 15 de octubre de 2012

Communication about the risks and benefits of phase I pediatric oncology trials

artículo científico publicado en 2015

Communication of randomization in childhood leukemia trials

artículo científico publicado en 2004

Comparison of the informed consent process for randomized clinical trials in pediatric and adult oncology

artículo científico publicado en 2004

Conducting empirical research on informed consent: challenges and questions.

artículo científico publicado en 2003

Consent form heterogeneity in cancer trials: the cooperative group and institutional review board gap.

artículo científico publicado en 2013

Contributors

Correlates of parental participation during informed consent for randomized clinical trials in the treatment of childhood leukemia

artículo científico publicado en 2004

Cultural Factors in Ethics Consultations.

artículo científico publicado en 2017

Decision-Making for an Incapacitated Pregnant Patient

artículo científico publicado en 2017

Decision-making by adolescents and parents of children with cancer regarding health research participation.

artículo científico publicado en 2009

Disclosure of research results to research participants: A pilot study of the needs and attitudes of adolescents and parents.

artículo científico publicado en 2005

Disclosure of the right of research participants to receive research results: an analysis of consent forms in the Children's Oncology Group.

artículo científico publicado en 2003

Empirical bioethics research is a winner, but bioethics mission creep is a false alarm.

artículo científico publicado en 2014

Ethical and legal issues in enhancement research on human subjects.

artículo científico publicado en 2011

Ethical considerations for post-cardiotomy extracorporeal membrane oxygenation ⬇️

artículo científico publicado el 1 de diciembre de 2012

Ethical considerations in the first American face transplant

artículo científico publicado en 2010

Ethical conundrums in pediatric genomics

artículo científico publicado en 2018

Ethical issues in face transplantation

Ethics Rounds—Symbolic Resuscitation, Medical Futility, and Parental Rights ⬇️

artículo científico publicado el 13 de septiembre de 2010

Gender Differences in Physicians' Financial Ties to Industry: A Study of National Disclosure Data

artículo científico publicado en 2015

Groups potentially at risk for making poorly informed decisions about entry into clinical trials for childhood cancer

artículo científico publicado en 2003

Harmonization of Ethics Policies in Pediatric Research

artículo científico publicado en 2011

Helping Patients Decide Whether to Participate in Clinical Trials ⬇️

artículo científico publicado el 1 de enero de 2007

Hope and persuasion by physicians during informed consent

artículo científico publicado en 2014

How low is too low? Use of cluster analysis to define low levels of mercaptopurine metabolites

artículo científico publicado en 2006

Importance of informed consent in offering to return research results to research participants

artículo científico publicado en 2003

Improving informed consent: suggestions from parents of children with leukemia

artículo científico publicado en 2007

Informed Consent in IBD Trials: Where We Are and Where We Need to Go

scientific article published on 01 June 2019

Informed Consent in Pediatric Anesthesia: A Narrative Review

article

Informed consent for pediatric phase 1 cancer trials: physicians' perspectives

artículo científico publicado en 2010

Informed consent for pediatric research: is it really possible?

artículo científico publicado en 2003

Informed consent, bioethical equipoise, and hypoplastic left heart syndrome

artículo científico

Informing study participants of research results: an ethical imperative

artículo científico publicado en 2003

Interpreter accuracy and informed consent among Spanish-speaking families with cancer.

artículo científico publicado en 2006

Investigating understanding in pediatric anesthesia informed consent

scientific article published on 01 June 2018

Involving children with cancer in decision-making about research participation

artículo científico publicado en 2006

Is a New Protocol for Acute Lymphoblastic Leukemia Research or Standard Therapy?

artículo científico publicado en 2015

Knowledge of Pediatric Ethics: Results of a Survey of Pediatric Ethics Consultants

Laws that conflict with the ethics of medicine: What Should Doctors Do?

artículo científico publicado en 2014

Making all the children above average: ethical and regulatory concerns for pediatricians in pediatric enhancement research

scientific article published on 21 January 2009

Minors' Right to Know and Therapeutic Privilege ⬇️

artículo científico publicado el 1 de agosto de 2013

Navigating Decisional Discord: The Pediatrician's Role When Child and Parents Disagree.

artículo científico publicado en 2017

Near-total human face transplantation for a severely disfigured patient in the USA.

artículo científico publicado en 2009

Negotiating Decisions during Informed Consent for Pediatric Phase I Oncology Trials ⬇️

artículo científico publicado el 1 de abril de 2012

Not just little adults: a review of 102 paediatric ethics consultations

artículo científico publicado en 2015

Offering to return results to research participants: attitudes and needs of principal investigators in the Children's Oncology Group

artículo científico publicado en 2003

Organ shortage: the greatest challenge facing transplant medicine

artículo científico publicado en 2014

Paediatric ethics: a repudiation of the Groningen protocol

artículo científico publicado en 2008

Parent Participation and Physician-Parent Communication During Informed Consent in Child Leukemia ⬇️

artículo científico publicado el 7 de noviembre de 2011

Patient involvement in informed consent for pediatric phase I cancer research.

artículo científico publicado en 2014

Pediatric Ethics and Early-Phase Childhood Cancer Research: Conflicted Goals and the Prospect of Benefit ⬇️

artículo científico publicado el 1 de enero de 2003

Pediatric ethics in the age of molecular medicine

artículo científico publicado en 2006

Pediatric obesity policy: the danger of skepticism

artículo científico publicado en 2003

Potential chemotherapy side effects: what do oncologists tell parents?

artículo científico publicado en 2009

Practical communication guidance to improve phase 1 informed consent conversations and decision-making in pediatric oncology

artículo científico publicado en 2015

Problems with the problem list: challenges of transparency in an era of patient curation

artículo científico publicado en 2020

Protecting the rights and interests of pediatric stem cell donors

Providing research participants with findings from completed cancer-related clinical trials: not quite as simple as it sounds

article published in 2006

Providing research results to participants: attitudes and needs of adolescents and parents of children with cancer

artículo científico publicado en 2009

Quality attestation for clinical ethics consultants: a two-step model from the American Society for Bioethics and Humanities

artículo científico publicado en 2013

Re: Views of American Oncologists About the Purposes of Clinical Trials ⬇️

artículo científico publicado el 16 de abril de 2003

Reasons Don’t Matter

journal article; published in The American Journal of Bioethics in 2018

Recommending randomized trials for pediatric leukemia: observer and physician report of recommendations

Reducing the Spread of Internet Misinformation in IBD: Ethics and Responsibility

artículo científico publicado en 2021

Reprioritizing Risk and Benefit: The Future of Study Design in Early-Phase Cancer Research

scientific article published on 01 November 2019

Reuniting Through the Medical Humanities: Two Educators, Two Programs

artículo científico publicado en 2015

Role of Independent Advocates for Research Subjects Who Are Child Wards of the State ⬇️

artículo científico publicado el 1 de agosto de 2008

Stability of parental understanding of random assignment in childhood leukemia trials: an empirical examination of informed consent

artículo científico publicado en 2006

Step into my zapatos, doc: understanding and reducing communication disparities in the multicultural informed consent setting

artículo científico publicado en 2005

Suggestions from adolescents, young adults, and parents for improving informed consent in phase 1 pediatric oncology trials.

artículo científico publicado en 2013

The Ethics of Using Complementary Medicine in Pediatric Oncology Trials: Reconciling Challenges

scholarly article by Amy S Porter & Eric Kodish published March 2018 in Journal of Law, Medicine, and Ethics

The Limits of Informed Consent for an Overwhelmed Patient: Clinicians' Role in Protecting Patients and Preventing Overwhelm

artículo científico publicado en 2016

The OHRP and SUPPORT

artículo científico publicado en 2013

The Right to Decide ⬇️

artículo científico publicado el 1 de mayo de 2003

The Truth about Truth-Telling in American Medicine: A Brief History

artículo científico publicado en 2016

The ethics of ICDs: History and future directions.

artículo científico publicado en 2016

The nurse as witness in the research consent/assent process: an inherently problematic role, or an ethical obligation?

artículo científico publicado en 2002

The overweight adolescent: clinical and ethical issues in intensive treatments for pediatric obesity

scientific article published on 01 April 2005

The right to decide

artículo científico publicado en 2002

The role of the consent document in informed consent for pediatric leukemia trials

The world's experience with facial transplantation: what have we learned thus far?

artículo científico publicado en 2009

Therapeutic Misperceptions in Early-Phase Cancer Trials: From Categorical to Continuous

scientific article published on 01 July 2018

Three children with CD30 cutaneous anaplastic large cell lymphomas bearing the t(2;5)(p23;q35) translocation

artículo científico publicado en 2004

Toward competency-based certification of clinical ethics consultants: a four-step process.

artículo científico publicado en 2010

Understanding confidentiality: perspectives of African American adolescents and their parents

scientific article published on 01 August 2006

Unrealistic optimism and the ethics of phase I cancer research ⬇️

artículo científico publicado el 31 de octubre de 2012

Lista de obras de

"What's in a name?" CAR-T Gene Therapy

A Pilot Evaluation of Portfolios for Quality Attestation of Clinical Ethics Consultants

A feasibility trial of a video intervention to improve informed consent for parents of children with leukemia

A physician-directed intervention: teaching and measuring better informed consent

A survey of language barriers from the perspective of pediatric oncologists, interpreters, and parents

Achieving an Optimal Childhood Vaccine Policy.

Adolescent adherence to oral therapy for leukemia: a focus group study

Adolescent perspectives on phase I cancer research

Allogeneic Hematopoietic Cell Transplantation and Other Expensive Cellular Therapies: A Miracle for the Few but Off Limits to Many?

Altruistic discourse in the informed consent process for childhood cancer clinical trials

Anti-infective therapy at the end of life: ethical decision-making in hospice-eligible patients

Anticipatory guidance to improve informed consent: a new application of the concept

Assent observed: children's involvement in leukemia treatment and research discussions

Both Sides of the Coin: Randomization from the Perspectives of Physician-Investigators and Patient-Subjects ⬇️

Cardiopulmonary Resuscitation, Informed Consent, and Rescue: What Provides Moral Justification for the Provision of CPR?

Childhood Vaccine Exemption Policy: The Case for a Less Restrictive Alternative

Children Are Not the Property of Their Parents: The Need for a Clear Statement of Ethical Obligations and Boundaries.

Children are not small adults: documentation of assent for research involving children

Children in research: new perspectives and practices for informed consent

Children's competence for assent and consent: a review of empirical findings

Children, research, and guinea pigs: reflections on a metaphor

Clinician-parent communication during informed consent for pediatric leukemia trials

Comment on: Use of thrombopoietin receptor agonist (romiplostim) in neonatal autoimmune thrombocytopenia due to maternal immune thrombocytopenia

Communicating and Understanding the Purpose of Pediatric Phase I Cancer Trials ⬇️

Communication about the risks and benefits of phase I pediatric oncology trials

Communication of randomization in childhood leukemia trials

Comparison of the informed consent process for randomized clinical trials in pediatric and adult oncology

Conducting empirical research on informed consent: challenges and questions.

Consent form heterogeneity in cancer trials: the cooperative group and institutional review board gap.

Contributors

Correlates of parental participation during informed consent for randomized clinical trials in the treatment of childhood leukemia

Cultural Factors in Ethics Consultations.

Decision-Making for an Incapacitated Pregnant Patient

Decision-making by adolescents and parents of children with cancer regarding health research participation.

Disclosure of research results to research participants: A pilot study of the needs and attitudes of adolescents and parents.

Disclosure of the right of research participants to receive research results: an analysis of consent forms in the Children's Oncology Group.

Empirical bioethics research is a winner, but bioethics mission creep is a false alarm.

Ethical and legal issues in enhancement research on human subjects.

Ethical considerations for post-cardiotomy extracorporeal membrane oxygenation ⬇️

Ethical considerations in the first American face transplant

Ethical conundrums in pediatric genomics

Ethical issues in face transplantation

Ethics Rounds—Symbolic Resuscitation, Medical Futility, and Parental Rights ⬇️

Gender Differences in Physicians' Financial Ties to Industry: A Study of National Disclosure Data

Groups potentially at risk for making poorly informed decisions about entry into clinical trials for childhood cancer

Harmonization of Ethics Policies in Pediatric Research

Helping Patients Decide Whether to Participate in Clinical Trials ⬇️

Hope and persuasion by physicians during informed consent

How low is too low? Use of cluster analysis to define low levels of mercaptopurine metabolites

Importance of informed consent in offering to return research results to research participants

Improving informed consent: suggestions from parents of children with leukemia

Informed Consent in IBD Trials: Where We Are and Where We Need to Go

Informed Consent in Pediatric Anesthesia: A Narrative Review

Informed consent for pediatric phase 1 cancer trials: physicians' perspectives

Informed consent for pediatric research: is it really possible?

Informed consent, bioethical equipoise, and hypoplastic left heart syndrome

Informing study participants of research results: an ethical imperative

Interpreter accuracy and informed consent among Spanish-speaking families with cancer.

Investigating understanding in pediatric anesthesia informed consent

Involving children with cancer in decision-making about research participation

Is a New Protocol for Acute Lymphoblastic Leukemia Research or Standard Therapy?

Knowledge of Pediatric Ethics: Results of a Survey of Pediatric Ethics Consultants

Laws that conflict with the ethics of medicine: What Should Doctors Do?

Making all the children above average: ethical and regulatory concerns for pediatricians in pediatric enhancement research

Minors' Right to Know and Therapeutic Privilege ⬇️

Navigating Decisional Discord: The Pediatrician's Role When Child and Parents Disagree.

Near-total human face transplantation for a severely disfigured patient in the USA.

Negotiating Decisions during Informed Consent for Pediatric Phase I Oncology Trials ⬇️

Not just little adults: a review of 102 paediatric ethics consultations

Offering to return results to research participants: attitudes and needs of principal investigators in the Children's Oncology Group

Organ shortage: the greatest challenge facing transplant medicine

Paediatric ethics: a repudiation of the Groningen protocol

Parent Participation and Physician-Parent Communication During Informed Consent in Child Leukemia ⬇️

Patient involvement in informed consent for pediatric phase I cancer research.

Pediatric Ethics and Early-Phase Childhood Cancer Research: Conflicted Goals and the Prospect of Benefit ⬇️

Pediatric ethics in the age of molecular medicine

Pediatric obesity policy: the danger of skepticism

Potential chemotherapy side effects: what do oncologists tell parents?

Practical communication guidance to improve phase 1 informed consent conversations and decision-making in pediatric oncology