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A Canadian survey of self-infusion practices in persons with haemophilia A.

artículo científico publicado en 2012

A Prospective Study of the Association Between Clinically Significant Bleeding in PICU Patients and Thrombocytopenia or Prolonged Coagulation Times

artículo científico publicado en 2017

A case of Moyamoya syndrome and hemoglobin E/beta-thalassemia

artículo científico publicado en 2009

A novel syndrome of congenital sideroblastic anemia, B-cell immunodeficiency, periodic fevers, and developmental delay (SIFD).

artículo científico publicado en 2013

A survey of the management of newborns with severe hemophilia in Canada.

artículo científico publicado en 2013

Acute immune thrombocytopenic purpura: What do we do when things go well?

artículo científico publicado en 2002

Affairs of the heart, does congenital heart disease make you happier?

artículo científico publicado en 2018

An evidence-based threshold for thrombocytopenia associated with clinically significant bleeding in pediatric intensive care unit patients

artículo científico publicado en 2012

Androgen therapy in inherited bone marrow failure syndromes: analysis from the Canadian Inherited Marrow Failure Registry

scientific article published on 03 March 2020

Anti-neutrophil cytoplasmic autoantibodies in patients with symptomatic HIV infection ⬇️

artículo científico publicado el 1 de enero de 1992

Autoantibodies against peripheral blood cells appear early in HIV infection and their prevalence increases with disease progression

artículo científico publicado en 1990

Caregiving demands in parents of children with cancer: psychometric validation of the Care of My Child with Cancer questionnaire

artículo científico publicado en 2009

Caregiving, single parents and cumulative stresses when caring for a child with cancer.

artículo científico publicado en 2012

Case 1: A newborn with pancytopenia.

artículo científico

Cellular and molecular architecture of hematopoietic stem cells and progenitors in genetic models of bone marrow failure

artículo científico publicado en 2020

Central venous catheter thrombosis as a cause of SVC obstruction and cardiac tamponade in a patient with Diamond-Blackfan anemia and iron overload

scientific article published on 01 January 2006

Clinical and genetic analysis of unclassifiable inherited bone marrow failure syndromes

artículo científico publicado en 2008

Communication and language challenges experienced by Chinese and South Asian immigrant parents of children with cancer in Canada: implications for health services delivery

artículo científico publicado en 2011

Comparative analysis of Shwachman-Diamond syndrome to other inherited bone marrow failure syndromes and genotype-phenotype correlation

artículo científico publicado en 2011

Considering quality of life for children with cancer: a systematic review of patient-reported outcome measures and the development of a conceptual model.

artículo científico

Development of the pyruvate kinase deficiency diary and pyruvate kinase deficiency impact assessment: Disease-specific assessments

artículo científico publicado en 2019

Differentiation between neutrophil-bound antibodies and immune complexes

artículo científico publicado en 1991

Disease progression in recently diagnosed patients with inherited marrow failure syndromes: a Canadian Inherited Marrow Failure Registry (CIMFR) report

artículo científico publicado en 2006

Evaluating family-centred service in paediatric oncology with the measure of processes of care (MPOC-20)

artículo científico publicado en 2008

Evaluating the ability to detect change of health-related quality of life in children with Hodgkin disease

artículo científico publicado en 2010

Evaluation of health related quality of life in children with immune thrombocytopenia with the PedsQL™ 4.0 Generic Core Scales: a study on behalf of the pays de Loire pediatric hematology network

artículo científico publicado en 2013

Evaluation of the Greek TranQol: a novel questionnaire for measuring quality of life in transfusion-dependent thalassemia patients.

artículo científico publicado en 2017

Experience with central venous access devices (CVADs) in the Canadian hemophilia primary prophylaxis study (CHPS).

artículo científico publicado en 2015

Exploring predictors of optimism among parents of children with cancer

artículo científico publicado en 2010

Factors affecting the delivery of family-centered care in pediatric oncology.

artículo científico publicado en 2009

Family-centred care: a qualitative study of Chinese and South Asian immigrant parents' experiences of care in paediatric oncology.

artículo científico publicado en 2011

Fatal neurotoxicity in a patient with down syndrome treated with chemotherapy, irradiation, stem cell transplant, and clofarabine

artículo científico publicado en 2010

Fatigue in children and adolescents with immune thrombocytopenia

artículo científico publicado en 2020

Generation and optimization of the self-administered pediatric bleeding questionnaire and its validation as a screening tool for von Willebrand disease

artículo científico publicado en 2017

Generic and disease-specific quality of life among youth and young men with Hemophilia in Canada.

artículo científico publicado en 2016

Genetic analysis of inherited bone marrow failure syndromes from one prospective, comprehensive and population-based cohort and identification of novel mutations.

artículo científico publicado en 2011

Health-related quality of life outcomes for patients with immune thrombocytopenic purpura.

artículo científico publicado en 2010

Health-related quality of life: changes in children undergoing chemotherapy.

artículo científico publicado en 2008

Hemophilia prophylaxis adherence and bleeding using a tailored, frequency-escalated approach: The Canadian Hemophilia Primary Prophylaxis Study

scientific article published on 29 January 2020

High-risk neuroblastoma in Ontario: a report of experience from 1989 to 1995

artículo científico publicado en 2003

Hospitalizations in pediatric patients with immune thrombocytopenia in the United States

artículo científico publicado en 2016

IVMP+IVIG raises platelet counts faster than IVIG alone: results of a randomized, blinded trial in childhood ITP

scientific article published on 01 April 2020

Identification of paediatric cancer patients with poor quality of life

scientific article published on 09 December 2008

Identifying determinants of quality of life of children with cancer and childhood cancer survivors: a systematic review

artículo científico publicado en 2011

Iliopsoas hematoma following a bone marrow aspirate

artículo científico publicado en 2008

Immigrant to Canada, newcomer to childhood cancer: a qualitative study of challenges faced by immigrant parents

artículo científico publicado en 2011

Impact of caring for a child with cancer on parents' health-related quality of life

artículo científico publicado en 2008

Impact of caring for a child with cancer on single parents compared with parents from two-parent families.

artículo científico publicado en 2011

Improving diagnostic precision, care and syndrome definitions using comprehensive next-generation sequencing for the inherited bone marrow failure syndromes

artículo científico publicado en 2015

Initial bone marrow aspiration in childhood idiopathic thrombocytopenia: decision analysis.

artículo científico publicado en 2001

Is the Give Youth a Voice questionnaire an appropriate measure of teen-centred care in paediatric oncology: a Rasch measurement theory analysis.

artículo científico publicado en 2013

Measuring disease-specific quality of life in rare populations: a practical approach to cross-cultural translation

artículo científico publicado en 2009

Molecular analysis and genotype-phenotype correlation of Diamond-Blackfan anemia.

artículo científico publicado en 2017

Mutations in TRNT1 cause congenital sideroblastic anemia with immunodeficiency, fevers, and developmental delay (SIFD)

artículo científico publicado en 2014

Neutrophil-bound immunoglobulin in HIV infection is of autoantibody nature

scientific article published on 01 March 1991

Normalizing hepcidin predicts TMPRSS6 mutation status in patients with chronic iron deficiency

scientific article published on 12 June 2018

Nurses provide valuable proxy assessment of the health-related quality of life of children with Hodgkin disease

artículo científico publicado en 2010

Nutrient Insufficiencies/Deficiencies in Children With Sickle Cell Disease and Its Association With Increased Disease Severity

artículo científico publicado en 2016

Paediatric health-related quality of life: what is it and why should we measure it?

artículo científico publicado en 2016

Parental optimism in poor prognosis pediatric cancers.

artículo científico publicado en 2009

Parents of children with cancer: which factors explain differences in health-related quality of life

artículo científico publicado en 2010

Patient-reported Outcome Measures (PROMs) in Pediatric Non-Malignant Hematology: A Systematic Review

scientific article published on 30 October 2020

Patient-reported outcomes for the myelodysplastic syndromes: a new MDS-specific measure of quality of life

artículo científico publicado en 2014

Patterns and influences in health-related quality of life in children with immune thrombocytopenia: A study from the Dallas ITP Cohort

artículo científico publicado en 2017

Pediatric Oncology Clinic Care Model: Achieving Better Continuity of Care for Patients in a Medium-sized Program.

artículo científico publicado en 2017

Physician Decision Making in Selection of Second-Line Treatments in Immune Thrombocytopenia in Children.

artículo científico publicado en 2018

Pilot study of the effect of romiplostim on child health-related quality of life (HRQoL) and parental burden in immune thrombocytopenia (ITP).

artículo científico publicado en 2011

Predicting microbiologically defined infection in febrile neutropenic episodes in children: global individual participant data multivariable meta-analysis

artículo científico publicado en 2016

Predicting microbiologically defined infection in febrile neutropenic episodes in children: global individual participant data multivariable meta-analysis

article

Prospective international validation of the Quality of Life in Myelodysplasia Scale (QUALMS).

artículo científico publicado en 2016

Quality of life during active treatment for pediatric acute lymphoblastic leukemia

artículo científico publicado en 2011

Quality of life in childhood immune thrombocytopenia: international validation of the kids' ITP tools

artículo científico publicado en 2012

Quality of life in immune thrombocytopenia following treatment

artículo científico publicado en 2013

Quality of life of pediatric oncology patients: Do patient-reported outcome instruments measure what matters to patients?

artículo científico publicado en 2016

Rasch analysis of the PedsQL: an increased understanding of the properties of a rating scale

artículo científico publicado en 2012

Reanalysing genomic data by normalized coverage values uncovers CNVs in bone marrow failure gene panels

scientific article published on 09 December 2019

Reduction of Extramedullary Complications in Patients With Acute Myeloid Leukemia/Myelodysplastic Syndrome Treated With Azacitidine

artículo científico publicado en 2020

Relationships among bleeding severity, health-related quality of life, and platelet count in children with immune thrombocytopenic purpura

artículo científico publicado en 2009

Reply to comment on: Generation and optimization of the self-administered pediatric bleeding questionnaire and its validation as a screening tool for von Willebrand disease

artículo científico publicado en 2017

Reply to: Vitamin insufficiencies/deficiencies in relation to sickle cell disease severity and associated morbidity.

artículo científico publicado en 2016

Response to steroids predicts response to rituximab in pediatric chronic immune thrombocytopenia

artículo científico publicado en 2011

Response to treatment with azacitidine in children with advanced myelodysplastic syndrome prior to hematopoietic stem cell transplantation

artículo científico publicado en 2016

Second-line treatments in children with immune thrombocytopenia: Effect on platelet count and patient-centered outcomes

scientific article published on 29 April 2019

Severe Neutropenia and Anemia in a Child With Epilepsy and Copper Deficiency on a Ketogenic Diet

artículo científico publicado en 2017

Single-parent caregivers of children with cancer: factors assisting with caregiving strains

artículo científico publicado en 2013

Spontaneous remission of myelodysplastic syndrome with monosomy 7 in a young boy

artículo científico publicado en 2008

Sports Participation in Children and Adolescents with Immune Thrombocytopenia (ITP).

artículo científico publicado en 2015

Standardization of bleeding assessment in immune thrombocytopenia: report from the International Working Group

artículo científico publicado en 2013

Syrian Refugees and Their Impact on Health Service Delivery in the Pediatric Hematology/Oncology Clinics Across Canada

artículo científico publicado en 2020

Tailored frequency-escalated primary prophylaxis for severe haemophilia A: results of the 16-year Canadian Hemophilia Prophylaxis Study longitudinal cohort

article

Thalassaemia in children: from quality of care to quality of life.

artículo científico

The burden of disease in pyruvate kinase deficiency: Patients' perception of the impact on health-related quality of life

scientific article published on 28 September 2018

The clinical impact of copy number variants in inherited bone marrow failure syndromes

artículo científico publicado en 2017

The diagnosis and treatment of von Willebrand disease in children

artículo científico publicado en 2002

The impact of category, cytopathology and cytogenetics on development and progression of clonal and malignant myeloid transformation in inherited bone marrow failure syndromes

artículo científico publicado en 2015

The serology and immunochemistry of HIV-induced platelet-bound immunoglobulin

artículo científico publicado en 1989

The social impact of early psychological maturity in adolescents with cancer

scientific article published on 06 February 2019

Thrombopoietin Receptor Agonist Use in Children: Data From the Pediatric ITP Consortium of North America ICON2 Study

artículo científico publicado en 2016

Understanding the health impact of caregiving: a qualitative study of immigrant parents and single parents of children with cancer.

artículo científico publicado en 2011

Understanding the healthcare experiences of teenaged cancer patients and survivors.

artículo científico publicado en 2013

Understanding the importance of using patient-reported outcome measures in patients with immune thrombocytopenia

artículo científico publicado en 2013

Using decision analysis techniques to deal with "unanswerable" questions in idiopathic thrombocytopenic purpura

artículo científico publicado en 2003

Validation and reliability of a disease-specific quality of life measure (the TranQol) in adults and children with thalassaemia major

artículo científico publicado en 2013

Validation of the school age self-administered pediatric bleeding questionnaire (Self-PBQ) in children aged 8-12 years

scientific article published on 22 March 2019

Validity, reliability, and responsiveness of a new measure of health-related quality of life in children with immune thrombocytopenic purpura: the Kids' ITP Tools.

artículo científico publicado en 2007

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