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A New Brief Clinical Assessment of Lower Urinary Tract Symptoms for Women and Men: LURN SI-10

artículo científico publicado en 2019

A Web-based communication aid for patients with cancer: the CONNECT Study.

artículo científico publicado en 2013

A comparison of cancer survivors from the PROMIS study selecting telephone versus online questionnaires

scientific article published on July 2013

A national survey of provisions in clinical-trial agreements between medical schools and industry sponsors

artículo científico publicado en 2002

A new outcome measure for LUTS: Symptoms of Lower Urinary Tract Dysfunction Research Network Symptom Index-29 (LURN SI-29) questionnaire

artículo científico publicado en 2019

Accuracy of 30-day recall for components of sexual function and the moderating effects of gender and mood

artículo científico publicado en 2013

An exploration of relative health stock in advanced cancer patients.

artículo científico publicado en 2004

Applying patient-reported outcome methodology to capture patient-reported health data: Report from an NIH Collaboratory roundtable

scientific article published on 16 July 2020

Assessing Patient-Reported Outcomes: A Negotiated Process

scientific article published on 02 January 2020

Assessment of Outcomes After Stopping Tyrosine Kinase Inhibitors Among Patients With Chronic Myeloid Leukemia: A Nonrandomized Clinical Trial

artículo científico publicado en 2020

Assessment of vulvar discomfort with sexual activity among women in the United States

artículo científico publicado en 2016

Baseline Lower Urinary Tract Symptoms in Patients Enrolled in LURN: A Prospective, Observational Cohort Study

artículo científico publicado en 2017

Can 7 or 30-Day Recall Questions Capture Self-Reported Lower Urinary Tract Symptoms Accurately?

scientific article published on 06 September 2019

Can prospect theory explain risk-seeking behavior by terminally ill patients?

scientific article published on 01 November 2005

Cancer patient preferences for quality and length of life

artículo científico publicado en 2008

Case Studies from the Clinic: Initiating and Implementing Patient-Reported Outcome Measures.

artículo científico publicado en 2017

Challenges in enrollment of minority, pediatric, and geriatric patients in emergency and acute care clinical research

Commentary: Per capita payments in clinical trials: reasonable costs versus bounty hunting

artículo científico publicado en 2010

Community consultation for prehospital research: experiences of study coordinators and principal investigators

artículo científico publicado en 2014

Community hospital oversight of clinical investigators' financial relationships

artículo científico publicado en 2009

Comparison of Approaches for Notification and Authorization in Pragmatic Clinical Research Evaluating Commonly Used Medical Practices

artículo científico publicado en 2017

Comparison of conflict of interest policies and reported practices in academic medical centers in the United States

artículo científico publicado en 2006

Consistency of financial interest disclosures in the biomedical literature: the case of coronary stents

artículo científico publicado en 2008

Construct validity of the PROMIS® sexual function and satisfaction measures in patients with cancer

artículo científico publicado en 2013

Consulting communities when patients cannot consent: a multicenter study of community consultation for research in emergency settings

artículo científico publicado en 2014

Correction to: Inflammatory Bowel Diseases Can Adversely Impact Domains of Sexual Function Such as Satisfaction with Sex Life.

artículo científico publicado en 2018

Decision making and quality of life in the treatment of cancer: a review.

scientific article published on 19 September 2008

Decisional conflict among patients who accept or decline participation in phase I oncology studies

artículo científico publicado en 2008

Describing depression: congruence between patient experiences and clinical assessments.

artículo científico publicado en 2011

Design and rationale for the life after stopping tyrosine kinase inhibitors (LAST) study, a prospective, single-group longitudinal study in patients with chronic myeloid leukemia.

artículo científico publicado en 2018

Developing a simplified consent form for biobanking

artículo científico publicado en 2010

Developing model language for disclosing financial interests to potential clinical research participants

artículo científico publicado en 2007

Development and Initial Validation of the PROMIS(®) Sexual Function and Satisfaction Measures Version 2.0.

artículo científico

Development and Validation of a Single-Item Screener for Self-Reporting Sexual Problems in U.S. Adults

artículo científico publicado en 2015

Development of the NIH PROMIS ® Sexual Function and Satisfaction measures in patients with cancer

artículo científico publicado en 2013

Disclosing conflicts of interest in clinical research: views of institutional review boards, conflict of interest committees, and investigators

artículo científico publicado en 2006

Disclosure of financial relationships to participants in clinical research

artículo científico publicado en 2009

Documenting the rationale and psychometric characteristics of patient reported outcomes for labeling and promotional claims: the PRO Evidence Dossier

artículo científico publicado en 2007

Effects of disclosing financial interests on attitudes toward clinical research

artículo científico publicado en 2008

Effects of disclosing financial interests on participation in medical research: a randomized vignette trial

artículo científico publicado en 2008

Effects of exercise training on health status in patients with chronic heart failure: HF-ACTION randomized controlled trial

artículo científico publicado en 2009

Effects of skeletal morbidities on longitudinal patient-reported outcomes and survival in patients with metastatic prostate cancer

scientific article published on 01 July 2007

Emergency Consent: Patients' and Surrogates' Perspectives on Consent for Clinical Trials in Acute Stroke and Myocardial Infarction

Ethical and Regulatory Concerns in Pragmatic Clinical Trial Monitoring and Oversight

scientific article published on 01 September 2020

Ethics and Collateral Findings in Pragmatic Clinical Trials

artículo científico publicado en 2020

Ethics challenges in sharing data from pragmatic clinical trials

artículo científico publicado en 2022

Expectations of benefit in early-phase clinical trials: implications for assessing the adequacy of informed consent

artículo científico publicado en 2008

Exploring Understanding of "Understanding": The Paradigm Case of Biobank Consent Comprehension

scientific article published on 01 May 2019

For the patient. Who trusts healthcare institutions? Results from a community-based sample

artículo científico publicado en 2005

Generalizing from qualitative data as a moral activity: An example from regulatory decision making for medical products.

artículo científico publicado en 2021

Health-related quality of life among patients with breast cancer receiving zoledronic acid or pamidronate disodium for metastatic bone lesions

artículo científico publicado en 2004

Hemoglobin, exercise training, and health status in patients with chronic heart failure (from the HF-ACTION randomized controlled trial).

artículo científico publicado en 2013

Impact of cardiovascular events on change in quality of life and utilities in patients after myocardial infarction: a VALIANT study (valsartan in acute myocardial infarction).

artículo científico publicado en 2014

Improving biobank consent comprehension: a national randomized survey to assess the effect of a simplified form and review/retest intervention

artículo científico publicado en 2016

Improving health care efficiency and quality using tablet personal computers to collect research-quality, patient-reported data

artículo científico publicado en 2008

Improving patients' understanding of terms and phrases commonly used in self-reported measures of sexual function

artículo científico publicado en 2014

Inflammatory Bowel Diseases Can Adversely Impact Domains of Sexual Function Such as Satisfaction with Sex Life

artículo científico publicado en 2018

Informed consent for biobanking: consensus-based guidelines for adequate comprehension

artículo científico publicado en 2014

Initial report of the cancer Patient-Reported Outcomes Measurement Information System (PROMIS) sexual function committee: review of sexual function measures and domains used in oncology

scientific article published on March 2009

Institutional review boards' use and understanding of certificates of confidentiality

artículo científico publicado en 2012

Intimate Partner Violence Strategies Index

Managing different intellectual personalities in scientific teams

scientific article published on 01 June 2019

Measuring agreement between patient and proxy responses to multidimensional health-related quality-of-life measures in clinical trials. An application of psychometric profile analysis.

artículo científico publicado en 2002

Measuring trust in medical researchers

artículo científico publicado en 2006

Outcomes, health policy, and managed care: relationships between patient-reported outcome measures and clinical measures in outpatients with heart failure

artículo científico publicado en 2009

Oversight of financial conflicts of interest in commercially sponsored research in academic and nonacademic settings

artículo científico publicado en 2010

PROMIS measures of pain, fatigue, negative affect, physical function, and social function demonstrated clinical validity across a range of chronic conditions

artículo científico publicado en 2016

PROMIS® Adult Health Profiles: Efficient Short-Form Measures of Seven Health Domains

scientific article published on 01 May 2019

Parents' reported preference scores for childhood atopic dermatitis disease states

artículo científico publicado en 2004

Participants’ perspectives on safety monitoring in clinical trials

Patient Characteristics Associated with More Bother from Lower Urinary Tract Symptoms

scientific article published on 08 August 2019

Patient demographic and psychosocial characteristics associated with 30-day recall of self-reported lower urinary tract symptoms

artículo científico publicado en 2020

Patient experiences with communication about sex during and after treatment for cancer

artículo científico publicado en 2011

Patient preferences in advanced or recurrent ovarian cancer

artículo científico publicado en 2014

Patient reactions to confidentiality, liability, and financial aspects of informed consent in cardiology research

artículo científico publicado en 2010

Patient time costs associated with sensor-augmented insulin pump therapy for type 1 diabetes: results from the STAR 3 randomized trial

scientific article published on 05 November 2012

Patients' Conceptions of Terms Related to Sexual Interest, Desire, and Arousal.

artículo científico publicado en 2017

Patients' Views About the Disclosure of Collateral Findings in Pragmatic Clinical Trials: a Focus Group Study

artículo científico publicado en 2020

Patients' Views Concerning Research on Medical Practices: Implications for Consent

artículo científico publicado en 2015

Patterns of intimate partner violence: correlates and outcomes

artículo científico publicado en 2005

Perceived discrimination and reported delay of pharmacy prescriptions and medical tests

artículo científico publicado en 2005

Perceived racial/ethnic bias in healthcare in Durham County, North Carolina: a comparison of community and national samples

scientific article published on 01 July 2005

Perceptions of patients and physicians regarding phase I cancer clinical trials: implications for physician-patient communication

artículo científico publicado en 2003

Performance of the Thrombolysis in Myocardial Infarction (TIMI) ST-elevation myocardial infarction risk score in a national cohort of elderly patients

scientific article published on September 2005

Perspective: The case for research justice: inclusion of patients with limited English proficiency in clinical research

scientific article published on March 2011

Perspectives of clinical research coordinators on disclosing financial conflicts of interest to potential research participants.

artículo científico publicado en 2007

Physicians' perspectives regarding pragmatic clinical trials

artículo científico publicado en 2016

Policies of academic medical centers for disclosing financial conflicts of interest to potential research participants

artículo científico publicado en 2006

Practitioner acceptance of the dofetilide risk-management program

artículo científico publicado en 2002

Pragmatic clinical trials embedded in healthcare systems: generalizable lessons from the NIH Collaboratory

artículo científico publicado en 2017

Prevalence and Characteristics of Urinary Incontinence in a Treatment Seeking Male Prospective Cohort: Results from the LURN Study.

artículo científico publicado en 2018

Primary care physicians' evaluation and treatment of depression: Results of an experimental study using video vignettes

artículo científico publicado en 2008

Prospective Study of Factors Predicting Adherence to Surveillance Mammography in Women Treated for Breast Cancer ⬇️

artículo científico publicado el 13 de febrero de 2012

Psychometric Evaluation of PROMIS Sexual Function and Satisfaction Measures in a Longitudinal Population-Based Cohort of Men With Localized Prostate Cancer

artículo científico publicado en 2018

Public views regarding the responsibility of patients, clinicians, and institutions to participate in research in the United States

artículo científico publicado en 2019

Racial differences in health concern.

artículo científico publicado en 2006

Reasons for Seeking Clinical Care for Lower Urinary Tract Symptoms: A Mixed Methods Study

artículo científico publicado en 2017

Reframing Consent for Clinical Research: A Function-Based Approach

artículo científico publicado en 2017

Relationship of symptom severity and bother in individuals seeking care for lower urinary tract symptoms

artículo científico publicado en 2020

Relationships between changes in patient-reported health status and functional capacity in outpatients with heart failure

artículo científico publicado en 2012

Reliability and construct validity of PROMIS® measures for patients with heart failure who undergo heart transplant

artículo científico publicado en 2015

Research participants' high expectations of benefit in early-phase oncology trials: are we asking the right question?

artículo científico publicado en 2012

Resource use, costs, and quality of life among patients in the multinational Valsartan in Acute Myocardial Infarction Trial (VALIANT).

artículo científico publicado en 2005

Sexual Interest and Satisfaction in an Internet Cohort of Patients with Inflammatory Bowel Diseases

Sexual Orientation and Patient-Provider Communication About Sexual Problems or Concerns Among US Adults

scientific article published on 26 August 2019

Sexual Satisfaction and the Importance of Sexual Health to Quality of Life Throughout the Life Course of U.S. Adults

artículo científico publicado en 2016

Sexual dysfunction and reproductive concerns in young women with breast cancer: Type, prevalence, and predictors of problems

artículo científico publicado en 2018

Sexual function and satisfaction among heterosexual and sexual minority U.S. adults: A cross-sectional survey

artículo científico publicado en 2017

Sexual functioning along the cancer continuum: focus group results from the Patient-Reported Outcomes Measurement Information System (PROMIS®).

artículo científico publicado en 2010

Simplifying informed consent for biorepositories: stakeholder perspectives

artículo científico publicado en 2010

Sleep-wake functioning along the cancer continuum: focus group results from the Patient-Reported Outcomes Measurement Information System (PROMIS(®))

artículo científico publicado en 2010

Standardizing patient-reported outcomes assessment in cancer clinical trials: a patient-reported outcomes measurement information system initiative

artículo científico publicado en 2007

Statistical Code for Clinical Research Papers

Study to Enhance Understanding of sTent-associated Symptoms (STENTS): Rationale and Study Design

artículo científico publicado en 2020

Symptom Based Clustering of Women in the LURN Observational Cohort Study

artículo científico publicado en 2018

Symptoms of Lower Urinary Tract Dysfunction Research Network

scientific article published on 16 January 2016

The Comprehensive Assessment of Self-Reported Urinary Symptoms: A New Tool for Research on Subtypes of Patients with Lower Urinary Tract Symptoms.

artículo científico publicado en 2019

The Intimate Partner Violence Strategies Index

article published in 2003

The National Cancer Institute-American Society of Clinical Oncology Cancer Trial Accrual Symposium: summary and recommendations

artículo científico publicado en 2013

The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008 ⬇️

artículo científico publicado el 4 de agosto de 2010

The correlation between patient characteristics and expectations of benefit from Phase I clinical trials

artículo científico publicado en 2003

The culture of faith and hope: patients' justifications for their high estimations of expected therapeutic benefit when enrolling in early phase oncology trials

artículo científico publicado en 2010

Treatment patterns and costs associated with sessile colorectal polyps

artículo científico publicado en 2002

Understanding of an aggregate probability statement by patients who are offered participation in Phase I clinical trials

scientific article published on 01 January 2005

Use of Patient-Reported Outcomes in Randomized, Double-Blind, Placebo-Controlled Clinical Trials ⬇️

artículo científico publicado el 1 de abril de 2011

Use of altered informed consent in pragmatic clinical research

artículo científico publicado en 2015

Use of central institutional review boards for multicenter clinical trials in the United States: a review of the literature

artículo científico

Using Cognitive Interviews to Enhance Measurement in Empirical Bioethics: Developing a Measure of the Preventive Misconception in Biomedical HIV Prevention Trials

artículo científico publicado en 2015

Using central IRBs for multicenter clinical trials in the United States

artículo científico publicado en 2013

Using cognitive interviews to evaluate items for measuring sexual functioning across cancer populations: improvements and remaining challenges

scientific article published on 12 August 2009

Using health communication best practices to develop a web-based provider-patient communication aid: the CONNECT study.

artículo científico publicado en 2008

Using item banks to construct measures of patient reported outcomes in clinical trials: investigator perceptions

artículo científico publicado en 2008

Validity of a simple ST-elevation acute myocardial infarction risk index: are randomized trial prognostic estimates generalizable to elderly patients?

artículo científico publicado en 2003

Views of potential research participants on financial conflicts of interest: barriers and opportunities for effective disclosure

artículo científico publicado en 2006

Virtual standardized patients: an interactive method to examine variation in depression care among primary care physicians

artículo científico publicado en 2008

Welfare reform and Latinas' use of perinatal health care

artículo científico publicado en 2002

Who trusts healthcare institutions? Results from a community-based sample.

artículo científico publicado en 2005

Women's resources and use of strategies as risk and protective factors for reabuse over time

artículo científico publicado en 2005

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