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A Multi-Informant Multi-Method Investigation of Family Functioning and Parent-Child Coping During Children's Acute Pain

artículo científico publicado en 2017

A comparison of journal instructions regarding institutional review board approval and conflict-of-interest disclosure between 1995 and 2005.

artículo científico publicado en 2009

A prospective study of pediatric and adolescent renal cell carcinoma: A report from the Children's Oncology Group AREN0321 study

artículo científico publicado en 2020

Acceptability by parents and children of deception in pediatric research

artículo científico publicado en 2015

Activity of Vincristine and Irinotecan in Diffuse Anaplastic Wilms Tumor and Therapy Outcomes of Stage II to IV Disease: Results of the Children's Oncology Group AREN0321 Study

artículo científico publicado en 2020

Adolescents and young adults with cancer: An orphaned population

artículo científico publicado en 2006

Adult patient perspectives on clinical trial result reporting: A survey of cancer patients

scientific article published on 23 August 2016

Allergic Reactions With Intravenous Compared With Intramuscular Pegaspargase in Children With High-risk Acute Lymphoblastic Leukemia: A Population-based Study From the Maritimes, Canada

artículo científico publicado en 2016

Allogeneic hematopoietic stem cell transplantation of patients with FA and high risk features using fludarabine without radiation

artículo científico publicado en 2009

Alternative and complementary therapy use in pediatric oncology patients in British Columbia: prevalence and reasons for use and nonuse ⬇️

artículo científico publicado el 1 de abril de 1998

An Ethical Framework for Allocating Scarce Life-Saving Chemotherapy and Supportive Care Drugs for Childhood Cancer

artículo científico publicado en 2016

Androgen therapy in inherited bone marrow failure syndromes: analysis from the Canadian Inherited Marrow Failure Registry

scientific article published on 03 March 2020

Anthropomorphic measurements and event-free survival in patients with favorable histology Wilms tumor: a report from the Children's Oncology Group

scientific article published on February 2009

Are hybrid umbilical cord blood banks really the best of both worlds?

artículo científico

Arsenic in private drinking water wells: an assessment of jurisdictional regulations and guidelines for risk remediation in North America

artículo científico

Association of Chromosome 1q Gain With Inferior Survival in Favorable-Histology Wilms Tumor: A Report From the Children's Oncology Group

artículo científico publicado en 2016

Attitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research setting

artículo científico publicado en 2013

Attitudes of parents toward the return of targeted and incidental genomic research findings in children

Attitudes of research ethics board chairs towards disclosure of research results to participants: results of a national survey

artículo científico publicado en 2007

Augmentation of Therapy for Combined Loss of Heterozygosity 1p and 16q in Favorable Histology Wilms Tumor: A Children's Oncology Group AREN0532 and AREN0533 Study Report

artículo científico publicado en 2019

Barriers to the enrollment of children in the Children's Oncology Group study of very low risk Wilms tumor: a report from the Children's Oncology Group

artículo científico publicado en 2011

Bilateral adrenal EBV-associated smooth muscle tumors in a child with a natural killer cell deficiency

artículo científico publicado en 2012

Bone Morbidity and Recovery in Children With Acute Lymphoblastic Leukemia: Results of a Six-Year Prospective Cohort Study

article

C-Kit-positive metastatic malignant pigmented clear-cell epithelioid tumor arising from the kidney in a child without tuberous sclerosis

artículo científico publicado en 2005

Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families

artículo científico publicado en 2015

Chemotherapy and Supportive Care Agents as Essential Medicines for Children With Cancer

artículo científico publicado en 2019

Chemotherapy drug shortages in pediatric oncology: a consensus statement

artículo científico publicado en 2014

Children's Oncology Group's 2013 blueprint for research: renal tumors

artículo científico publicado en 2013

Clinical Outcome and Biological Predictors of Relapse After Nephrectomy Only for Very Low-risk Wilms Tumor: A Report From Children's Oncology Group AREN0532.

artículo científico publicado en 2016

Clinical and genetic analysis of unclassifiable inherited bone marrow failure syndromes

artículo científico publicado en 2008

Comparative analysis of Shwachman-Diamond syndrome to other inherited bone marrow failure syndromes and genotype-phenotype correlation

artículo científico publicado en 2011

Complementary and alternative therapies: survey of knowledge and attitudes of health professionals at a tertiary pediatric/women's care facility

artículo científico publicado en 2007

Considerations and costs of disclosing study findings to research participants

artículo científico publicado en 2004

Context in shaping the ability of a child to assent to research

artículo científico publicado en 2003

Development of a quality of life instrument for children with advanced cancer: the pediatric advanced care quality of life scale (PAC-QoL).

artículo científico publicado en 2014

Development of the Pediatric Advanced Care Quality of Life Scale (PAC-QoL): evaluating comprehension of items and response options

artículo científico publicado en 2014

Differential expression of a novel ankyrin containing E3 ubiquitin-protein ligase, Hace1, in sporadic Wilms' tumor versus normal kidney

artículo científico publicado en 2004

Disclosing Secondary Findings from Pediatric Sequencing to Families: Considering the "Benefit to Families"

artículo científico publicado en 2015

Disclosure of the right of research participants to receive research results: an analysis of consent forms in the Children's Oncology Group.

artículo científico publicado en 2003

Disease progression in recently diagnosed patients with inherited marrow failure syndromes: a Canadian Inherited Marrow Failure Registry (CIMFR) report

artículo científico publicado en 2006

Dyadic analysis of child and parent trait and state pain catastrophizing in the process of children's pain communication

artículo científico publicado en 2015

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

artículo científico publicado en 2010

Ethical issues for control-arm patients after revelation of benefits of experimental therapy: a framework modeled in neuroblastoma

artículo científico publicado en 2013

Feasibility of using CT volume as a predictor of specimen weight in a subgroup of patients with low risk Wilms tumors registered on COG Study AREN03B2: implications for central venous catheter placement

artículo científico publicado en 2014

Fever and purpuric lesions in a preschool child

artículo científico publicado en 2009

Genetic analysis of inherited bone marrow failure syndromes from one prospective, comprehensive and population-based cohort and identification of novel mutations.

artículo científico publicado en 2011

Genome-wide sequencing in acutely ill infants: genomic medicine's critical application?

artículo científico publicado en 2018

Germline mutations in MAP3K6 are associated with familial gastric cancer

artículo científico publicado en 2014

Glycine and Folate Ameliorate Models of Congenital Sideroblastic Anemia

artículo científico publicado en 2016

High incidence of vertebral fractures in children with acute lymphoblastic leukemia 12 months after the initiation of therapy

artículo científico publicado en 2012

Hospitalized children continue to report undertreated and preventable pain

artículo científico publicado en 2014

Hyperphagia following childhood acute lymphoblastic leukemia: a symptom worth heeding

artículo científico publicado en 2006

Imaging Characteristics of Nephrogenic Rests Versus Small Wilms Tumors: A Report From the Children's Oncology Group Study AREN03B2

scientific article published on 11 March 2020

Imaging of renal medullary carcinoma in children and young adults: a report from the Children's Oncology Group

artículo científico publicado en 2017

Impact of Surveillance Imaging Modality on Survival After Recurrence in Patients With Favorable-Histology Wilms Tumor: A Report From the Children's Oncology Group

artículo científico publicado en 2018

Impact of Vertebral Fractures and Glucocorticoid Exposure on Height Deficits in Children During Treatment of Leukemia

scientific article published on 01 February 2019

Impact on parents of receiving individualized feedback of psychological testing conducted with children as part of a research study

artículo científico publicado en 2011

Importance of informed consent in offering to return research results to research participants

artículo científico publicado en 2003

Improving Time to Antibiotics for Pediatric Oncology Patients With Fever and Suspected Neutropenia by Applying Lean Principles

artículo científico publicado en 2020

Improving diagnostic precision, care and syndrome definitions using comprehensive next-generation sequencing for the inherited bone marrow failure syndromes

artículo científico publicado en 2015

Incident Vertebral Fractures in Children With Leukemia During the Four Years Following Diagnosis

artículo científico publicado en 2015

Informing study participants of research results: an ethical imperative.

artículo científico publicado en 2003

Investigating the gut microbial community and genes in children with differing levels of change in serum asparaginase activity during pegaspargase treatment for acute lymphoblastic leukemia

artículo científico publicado en 2020

Involving children with cancer in decision-making about research participation

artículo científico publicado en 2006

JAK2 V617F positive polycythemia Vera in a child with neurofibromatosis type I

scientific article published on 01 November 2008

Key Implications of Data Sharing in Pediatric Genomics

article by Vasiliki Rahimzadeh et al published 1 May 2018 in JAMA Pediatrics

Knowledge and attitudes of pregnant women with regard to collection, testing and banking of cord blood stem cells.

artículo científico publicado en 2003

Lack of response of a metastatic renal perivascular epithelial cell tumor (PEComa) to successive courses of DTIC based-therapy and imatinib mesylate

artículo científico publicado en 2005

Les cancers orphelins et nos obligations morales.

artículo científico publicado en 2007

Loss-of-function germline GATA2 mutations in patients with MDS/AML or MonoMAC syndrome and primary lymphedema reveal a key role for GATA2 in the lymphatic vasculature

artículo científico publicado en 2011

Management of familial cancer: sequencing, surveillance and society

scientific article published on 14 October 2014

Mediastinal polyembryoma associated with Klinefelter syndrome

artículo científico publicado en 2003

Mixed donor chimerism and low level iduronidase expression may be adequate for neurodevelopmental protection in Hurler Syndrome

artículo científico publicado en 2005

Molecular analysis and genotype-phenotype correlation of Diamond-Blackfan anemia.

artículo científico publicado en 2017

Mutations in mitochondrial carrier family gene SLC25A38 cause nonsyndromic autosomal recessive congenital sideroblastic anemia

artículo científico publicado en 2009

Novel therapy for pediatric and adolescent kidney cancer

artículo científico publicado en 2019

Obligations in Offering to Disclose Genetic Research Results

journal article; published in The American Journal of Bioethics in 2006

Offering parents individualized feedback on the results of psychological testing conducted for research purposes with children: ethical issues and recommendations

artículo científico publicado en 2007

Offering results to research participants

artículo científico publicado en 2006

Offering results to research subjects: U.S. Institutional Review Board policy

artículo científico publicado en 2007

Offering to return results to research participants: attitudes and needs of principal investigators in the Children's Oncology Group

artículo científico publicado en 2003

Our moral obligations in caring for patients with orphan cancers

artículo científico publicado en 2007

Outcome analysis of stage I epithelial-predominant favorable-histology Wilms tumors: A report from Children's Oncology Group study AREN03B2

scientific article published on 08 April 2020

Outcome and Prognostic Factors in Stage III Favorable-Histology Wilms Tumor: A Report From the Children's Oncology Group Study AREN0532.

artículo científico publicado en 2017

Outcome of Wilms tumor patients with bone metastasis enrolled on National Wilms Tumor Studies 1-5: A report from the Children's Oncology Group

scientific article published on 30 August 2018

Pain Squad+ smartphone app to support real-time pain treatment for adolescents with cancer: protocol for a randomised controlled trial

artículo científico publicado en 2020

Pain in Children with Cancer: Prevalence, Characteristics, and Parent Management

artículo científico publicado en 2017

Parental views on tissue banking in pediatric oncology patients

scientific article published on 19 January 2011

Peripherally Inserted Central Catheters in Pediatric Oncology Patients: A 15-Year Population-based Review From Maritimes, Canada.

artículo científico publicado en 2017

Phenotypic overlap between familial exudative vitreoretinopathy and microcephaly, lymphedema, and chorioretinal dysplasia caused by KIF11 mutations

artículo científico publicado en 2014

Post-transplant lymphoproliferative disorder in an adolescent masquerading as a complicated primary EBV infection ⬇️

artículo científico publicado el 9 de junio de 2009

Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants

scientific article published on 27 March 2018

Principles and Recommendations for the Provision of Healthcare in Canada to Adolescent and Young Adult-Aged Cancer Patients and Survivors

artículo científico publicado en 2011

Providing research participants with findings from completed cancer-related clinical trials: not quite as simple as it sounds

article published in 2006

Providing research results to study participants: support versus practice of researchers presenting at the American Society of Hematology annual meeting

artículo científico publicado en 2005

Psychosocial Needs of Families With a Child With Cancer

scientific article published on 01 March 2003

Public Expectations for Return of Results—Time to Stop Being Paternalistic?

journal article; published in The American Journal of Bioethics in 2008

Publication of ethically suspect research: should it occur?

scientific article published on 12 August 2005

Rasburicase prevents tumor lysis syndrome despite extreme hyperleukocytosis

artículo científico publicado en 2004

Reanalysing genomic data by normalized coverage values uncovers CNVs in bone marrow failure gene panels

scientific article published on 09 December 2019

Recommendations for the return of research results to study participants and guardians: a report from the Children's Oncology Group

artículo científico publicado en 2012

Recontacting Pediatric Research Participants for Consent When They Reach the Age of Majority

Reduced intensity hematopoietic stem-cell transplantation across human leukocyte antigen barriers in a patient with congenital amegakaryocytic thrombocytopenia and monosomy 7.

artículo científico publicado en 2005

Reducing procedural pain

artículo científico publicado en 2006

Reply to B. Zhang et al

artículo científico publicado en 2018

Reply to D.M. Green

artículo científico publicado en 2018

Reply to D.M. Green

artículo científico publicado en 2020

Reply to L. Xie et al

artículo científico publicado en 2019

Results of the First Prospective Multi-institutional Treatment Study in Children With Bilateral Wilms Tumor (AREN0534): A Report From the Children's Oncology Group

artículo científico

Results of treatment for patients with multicentric or bilaterally predisposed unilateral Wilms tumor (AREN0534): A report from the Children's Oncology Group

scientific article published on 27 May 2020

Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations

artículo científico publicado en 2015

Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases

artículo científico publicado en 2013

Routine bone marrow examination in the initial evaluation of paediatric Hodgkin lymphoma: the Canadian perspective

scientific article published on 18 April 2008

Routine surveillance for bloodstream infections in a pediatric hematopoietic stem cell transplant cohort: Do patients benefit?

artículo científico publicado en 2007

Sentinel lymph node mapping and biopsy: a potentially valuable tool in the management of childhood extremity rhabdomyosarcoma ⬇️

artículo científico publicado el 10 de mayo de 2003

Severe, persistent, and fatal T-cell immunodeficiency following therapy for infantile leukemia

artículo científico publicado en 2016

Stability of Attitudes to the Ethical Issues Raised by the Return of Incidental Genomic Research Findings in Children: A Follow-Up Study

artículo científico publicado en 2015

Statement of principles on the return of research results and incidental findings in paediatric research: a multi-site consultative process

Strategies for the prevention of medical error in pediatrics

artículo científico publicado en 2003

Study of Glycine and Folic Acid Supplementation to Ameliorate Transfusion Dependence in Congenital SLC25A38 Mutated Sideroblastic Anemia

artículo científico publicado en 2016

Successful neurological outcome of a child with classical phenylketonuria and acute lymphoblastic leukemia: a 7-year follow-up

artículo científico publicado en 2007

Supporting Parents' Pain Care Involvement With Their Children With Acute Lymphoblastic Leukemia: A Qualitative Interpretive Description.

artículo científico

The Implementation Effectiveness of a Freely Available Pediatric Cancer Pain Assessment App: A Pilot Implementation Study

artículo científico publicado en 2018

The Implementation Effectiveness of a Freely Available Pediatric Cancer Pain Assessment App: A Pilot Implementation Study (Preprint)

The choice of normative pediatric reference database changes spine bone mineral density Z-scores but not the relationship between bone mineral density and prevalent vertebral fractures

artículo científico publicado en 2014

The classification of pediatric and young adult renal cell carcinomas registered on the children's oncology group (COG) protocol AREN03B2 after focused genetic testing

scientific article published on 15 June 2018

The clinical impact of copy number variants in inherited bone marrow failure syndromes

artículo científico publicado en 2017

The cold pressor task: is it an ethically acceptable pain research method in children?

artículo científico publicado en 2010

The crucial role of tumour specimen handling in childhood cancer outcomes

artículo científico publicado en 2005

The impact of category, cytopathology and cytogenetics on development and progression of clonal and malignant myeloid transformation in inherited bone marrow failure syndromes

artículo científico publicado en 2015

The impact of prophylactic fresh-frozen plasma and cryoprecipitate on the incidence of central nervous system thrombosis and hemorrhage in children with acute lymphoblastic leukemia receiving asparaginase

artículo científico publicado en 2009

The publication of ethically uncertain research: attitudes and practices of journal editors

artículo científico publicado en 2012

Treatment of Stage IV Favorable Histology Wilms Tumor With Lung Metastases: A Report From the Children's Oncology Group AREN0533 Study.

artículo científico publicado en 2018

Treatment of stage I anaplastic Wilms' tumour: a report from the Children's Oncology Group AREN0321 study

scientific article published on 17 July 2019

Understanding the translation of scientific knowledge about arsenic risk exposure among private well water users in Nova Scotia

artículo científico

Updated Recommendations on the Diagnosis, Management, and Clinical Trial Eligibility Criteria for Patients With Renal Medullary Carcinoma

scientific article published on 12 September 2018

Using MS-MLPA as an efficient screening tool for detecting 9p21 abnormalities in pediatric acute lymphoblastic leukemia

artículo científico publicado en 2011

Validity and consequence of informed consent in pediatric bone marrow transplantation: The parental experience

artículo científico publicado en 2007

Voriconazole treatment of presumptive disseminated Aspergillus infection in a child with acute leukemia

artículo científico publicado en 2003

When "a headache is not just a headache": A qualitative examination of parent and child experiences of pain after childhood cancer

artículo científico publicado en 2019

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