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A 21st-Century Health IT System - Creating a Real-World Information Economy

artículo científico

A Bayesian dynamic model for influenza surveillance

A Bayesian dynamic model for influenza surveillance.

artículo científico publicado en 2006

A Computable Phenotype Improves Cohort Ascertainment in a Pediatric Pulmonary Hypertension Registry

artículo científico publicado en 2017

A context-sensitive approach to anonymizing spatial surveillance data: impact on outbreak detection

artículo científico publicado en 2005

A federated EHR network data completeness tracking system.

artículo científico publicado en 2019

A novel, privacy-preserving cryptographic approach for sharing sequencing data ⬇️

artículo científico publicado el 2 de noviembre de 2012

A numerical similarity approach for using retired Current Procedural Terminology (CPT) codes for electronic phenotyping in the Scalable Collaborative Infrastructure for a Learning Health System (SCILHS).

artículo científico publicado en 2015

A pharmacoepidemiological network model for drug safety surveillance: statins and rhabdomyolysis

artículo científico publicado en 2012

A proposal for shoring up Federal Trade Commission protections for electronic health record-connected consumer apps under 21st Century Cures

artículo científico publicado en 2020

A proposed legal framework for addressing privacy for patient controlled health records in pediatrics.

artículo científico publicado en 2006

A self-scaling, distributed information architecture for public health, research, and clinical care

artículo científico publicado en 2007

A software tool for creating simulated outbreaks to benchmark surveillance systems

artículo científico publicado en 2005

A susceptible-infected model of early detection of respiratory infection outbreaks on a background of influenza

artículo científico publicado en 2006

AEGIS: a robust and scalable real-time public health surveillance system

artículo científico publicado en 2007

Acceptability of a personally controlled health record in a community-based setting: implications for policy and design

artículo científico publicado en 2009

Access controls for a pediatric personally controlled health record

artículo científico publicado en 2007

Adding patient-reported outcomes to a multisite registry to quantify quality of life and experiences of disease and treatment for youth with juvenile idiopathic arthritis

artículo científico publicado en 2018

Adverse drug event presentation and tracking (ADEPT): semiautomated, high throughput pharmacovigilance using real-world data

scientific article published on 31 August 2020

Adverse drug event rates in pediatric pulmonary hypertension: a comparison of real-world data sources

scientific article published on 01 February 2020

Air Travel and the Spread of Influenza: Authors' Reply.

artículo científico publicado en 2006

An epidemiological network model for disease outbreak detection

artículo científico publicado en 2007

An i2b2-based, generalizable, open source, self-scaling chronic disease registry

artículo científico publicado en 2013

An unsupervised classification method for inferring original case locations from low-resolution disease maps

artículo científico publicado en 2006

Apps to display patient data, making SMART available in the i2b2 platform ⬇️

artículo científico publicado el 3 de noviembre de 2012

Are Meaningful Use Stage 2 certified EHRs ready for interoperability? Findings from the SMART C-CDA Collaborative

artículo científico publicado en 2014

Artificial Intelligence and the Future of Primary Care: Exploratory Qualitative Study of UK General Practitioners' Views

scientific article published on 20 March 2019

Association of Sex With Recurrence of Autism Spectrum Disorder Among Siblings

artículo científico publicado en 2017

Associations Between Exposure to and Expression of Negative Opinions About Human Papillomavirus Vaccines on Social Media: An Observational Study

artículo científico publicado en 2015

Automated real time constant-specificity surveillance for disease outbreaks

artículo científico publicado en 2007

Automatically Appraising the Credibility of Vaccine-Related Web Pages Shared on Social Media: A Twitter Surveillance Study

scientific article published on 04 November 2019

Availability and quality of mobile health app privacy policies.

artículo científico publicado en 2014

Beyond One-Off Integrations: A Commercial, Substitutable, Reusable, Standards-Based, Electronic Health Record-Connected App

article

Biases introduced by filtering electronic health records for patients with "complete data".

artículo científico publicado en 2017

Breaking the news or fueling the epidemic? Temporal association between news media report volume and opioid-related mortality

artículo científico publicado en 2009

Breast Cancer Diagnoses: The Authors Reply

artículo científico publicado en 2015

Characterisation of paediatric pulmonary hypertensive vascular disease from the PPHNet Registry

artículo científico publicado en 2021

Claims-Based Algorithms for Identifying Patients With Pulmonary Hypertension: A Comparison of Decision Rules and Machine-Learning Approaches

scientific article published on 29 September 2020

Comparison of Drug Utilization Patterns in Observational Data: Antiepileptic Drugs in Pediatric Patients

artículo científico publicado en 2015

Correction: Air Travel and the Spread of Influenza: Authors' Reply.

artículo científico publicado en 2007

Correction: The Genomics Research and Innovation Network: creating an interoperable, federated, genomics learning system

scientific article published on 01 February 2020

Correction: What Are the Benefits and Risks of Fitting Patients with Radiofrequency Identification Devices?

artículo científico publicado en 2008

Creating a scalable clinical pharmacogenomics service with automated interpretation and medical record result integration - experience from a pediatric tertiary care facility

artículo científico publicado en 2016

Data Citizenship under the 21st Century Cures Act

artículo científico publicado en 2020

Data interchange using i2b2

artículo científico publicado en 2016

Density-equalizing Euclidean minimum spanning trees for the detection of all disease cluster shapes

artículo científico publicado en 2007

Development of a scalable pharmacogenomic clinical decision support service

artículo científico

Development of the Precision Link Biobank at Boston Children's Hospital: Challenges and Opportunities

artículo científico publicado en 2017

Digitizing clinical trials

artículo científico publicado en 2020

Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility

artículo científico publicado en 2012

Driving Innovation in Health Systems through an Apps-Based Information Economy

artículo científico publicado en 2015

Early detection of poor adherers to statins: applying individualized surveillance to pay for performance

artículo científico publicado en 2013

Early experiences with personal health records

artículo científico publicado en 2008

Effect of an imaging protocol on clinical outcomes among pediatric patients with appendicitis

artículo científico publicado en 2002

Effect of expanded US recommendations for seasonal influenza vaccination: comparison of two pediatric emergency departments in the United States and Canada

artículo científico publicado en 2011

Efficacy of an educational Web site for educating physicians about bioterrorism

artículo científico publicado en 2004

Empirical evidence for the effect of airline travel on inter-regional influenza spread in the United States

artículo científico publicado en 2006

Erratum to: Provider patient-sharing networks and multiple-provider prescribing of benzodiazepines

artículo científico publicado en 2015

Escaping the EHR Trap — The Future of Health IT ⬇️

artículo científico publicado el 14 de junio de 2012

Evaluation of influenza prevention in the workplace using a personally controlled health record: randomized controlled trial

artículo científico publicado en 2008

Evolving Research Data Sharing Networks to Clinical App Sharing Networks

artículo científico publicado en 2017

Experiences implementing scalable, containerized, cloud-based NLP for extracting biobank participant phenotypes at scale

scientific article published on 22 May 2020

External Validation of an Algorithm to Identify Patients with High Data-Completeness in Electronic Health Records for Comparative Effectiveness Research

artículo científico publicado en 2020

FHIR Genomics: enabling standardization for precision medicine use cases

artículo científico publicado en 2020

Factors affecting automated syndromic surveillance

artículo científico publicado en 2005

Feasibility of leveraging electronic data from pediatric hospitals for national surveillance: a survey of chief information officers.

artículo científico publicado en 2005

Feature extraction for phenotyping from semantic and knowledge resources

Federalist principles for healthcare data networks

artículo científico publicado en 2015

Finding the missing link for big biomedical data

artículo científico publicado en 2014

GenoPheno: cataloging large-scale phenotypic and next-generation sequencing data within human datasets

artículo científico publicado en 2020

HealthMap: global infectious disease monitoring through automated classification and visualization of Internet media reports

artículo científico publicado en 2008

Helping High-Risk Youth Move through High-Risk Periods: Personally Controlled Health Records for Improving Social and Health Care Transitions ⬇️

artículo científico publicado el 1 de enero de 2011

Identifying Patients at Lowest Risk for Streptococcal Pharyngitis: A National Validation Study

scientific article published on 14 February 2020

Identifying pediatric age groups for influenza vaccination using a real-time regional surveillance system

artículo científico publicado en 2005

Implementing syndromic surveillance: a practical guide informed by the early experience.

artículo científico publicado en 2003

Incorporating vaccine-preventable disease surveillance into the National Health Information Network: leveraging children's hospitals

artículo científico publicado en 2006

Indivo x: developing a fully substitutable personally controlled health record platform ⬇️

artículo científico publicado el 13 de noviembre de 2010

Indivo: a personally controlled health record for health information exchange and communication

artículo científico publicado en 2007

Influenza and other respiratory virus-related emergency department visits among young children

artículo científico publicado en 2006

Integrating spatial epidemiology into a decision model for evaluation of facial palsy in children

artículo científico publicado en 2011

Integrating syndromic surveillance data across multiple locations: effects on outbreak detection performance.

artículo científico publicado en 2003

Integration of a standardized pharmacogenomic platform for clinical decision support at Boston Children's Hospital

Integration of the personally controlled electronic medical record into regional inter-regional data exchanges: a national demonstration

artículo científico publicado en 2006

International Electronic Health Record-Derived COVID-19 Clinical Course Profiles: The 4CE Consortium

artículo científico publicado en 2020

International comparisons of laboratory values from the 4CE collaborative to predict COVID-19 mortality

artículo científico publicado en 2022

International electronic health record-derived COVID-19 clinical course profiles: the 4CE consortium

artículo científico publicado en 2020

Is it influenza or anthrax? A decision analytic approach to the treatment of patients with influenza-like illnesses

artículo científico publicado en 2004

Learning a Comorbidity-Driven Taxonomy of Pediatric Pulmonary Hypertension.

artículo científico publicado en 2017

Linking surveillance to action: incorporation of real-time regional data into a medical decision rule

artículo científico publicado en 2007

Longitudinal histories as predictors of future diagnoses of domestic abuse: modelling study

artículo científico publicado en 2009

Lumbar puncture ordering and results in the pediatric population: a promising data source for surveillance systems

artículo científico publicado en 2006

Mammography Risks: The Authors Reply

artículo científico publicado en 2016

Meaningful use of electronic health records

artículo científico publicado en 2012

Measuring coverage and accuracy of whole-exome sequencing in clinical context

artículo científico publicado en 2018

Medicine. Reestablishing the researcher-patient compact

artículo científico publicado en 2007

Modeling Spatiotemporal Factors Associated With Sentiment on Twitter: Synthesis and Suggestions for Improving the Identification of Localized Deviations

artículo científico publicado en 2019

Multi-factor authentication using contents from disparate EHRs

artículo científico publicado en 2007

My sister's keeper?: genomic research and the identifiability of siblings

artículo científico publicado en 2008

Mychildren's: integration of a personally controlled health record with a tethered patient portal for a pediatric and adolescent population

artículo científico publicado en 2009

New Guidelines For Breast Cancer Screening

artículo científico publicado en 2016

Newborn screening program practices in the United States: notification, research, and consent

artículo científico publicado en 2002

News Coverage and Drug Shortages during the COVID-19 Pandemic

preprint

Next-generation registries: fusion of data for care, and research

artículo científico publicado en 2013

No place to hide--reverse identification of patients from published maps

scientific article published on 01 October 2006

No small change for the health information economy

artículo científico publicado en 2009

Nonlinear Analysis of Visually Normal EEGs to Differentiate Benign Childhood Epilepsy with Centrotemporal Spikes (BECTS)

scientific article published on 21 May 2020

Opening the Duke electronic health record to apps: Implementing SMART on FHIR.

artículo científico publicado en 2016

Parent-driven technology for decision support in pediatric emergency care

artículo científico publicado en 2009

Participatory Surveillance of Hypoglycemia and Harms in an Online Social Network ⬇️

artículo científico publicado el 11 de marzo de 2013

Patient and Parent-Reported Signs and Symptoms for Group A Streptococcal Pharyngitis

artículo científico publicado en 2016

Patient-centered design of an information management module for a personally controlled health record

artículo científico publicado en 2010

Patient-led data sharing for clinical bioinformatics research: USCDI and beyond

artículo científico publicado en 2021

Patients Visiting Multiple Emergency Departments: Patterns, Costs and Risk Factors

artículo científico

Patients treated across multiple sites of care: a case for personally controlled health records

artículo científico publicado en 2007

Patients treated at multiple acute health care facilities: quantifying information fragmentation

artículo científico publicado en 2010

Pediatric adverse drug events in the outpatient setting: an 11-year national analysis

artículo científico publicado en 2009

Pediatric population size is associated with geographic patterns of acute respiratory infections among adults

artículo científico publicado en 2008

Population-level evidence for an autoimmune etiology of epilepsy

artículo científico publicado en 2014

Predicting Falls in People Aged 65 Years and Older from Insurance Claims

artículo científico publicado en 2017

Premarket safety and efficacy studies for ADHD medications in children

artículo científico publicado en 2014

Privacy protection versus cluster detection in spatial epidemiology

artículo científico publicado en 2006

Provider Connectedness to Other Providers Reduces Risk of Readmission After Hospitalization for Heart Failure

artículo científico publicado en 2017

Provider Patient-Sharing Networks and Multiple-Provider Prescribing of Benzodiazepines

artículo científico publicado en 2015

Provider collaboration: cohesion, constellations, and shared patients

artículo científico publicado en 2014

Push Button Population Health: The SMART/HL7 FHIR Bulk Data Access Application Programming Interface

artículo científico publicado en 2020

Racial and Ethnic Differences in Pediatric Pulmonary Hypertension: An Analysis of the Pediatric Pulmonary Hypertension Network Registry

scientific article published on 05 June 2019

Re-identification of home addresses from spatial locations anonymized by Gaussian skew

artículo científico publicado en 2008

Real time spatial cluster detection using interpoint distances among precise patient locations

artículo científico publicado en 2005

Reengineering real time outbreak detection systems for influenza epidemic monitoring.

artículo científico publicado en 2006

Reimagining Health Data Exchange: An Application Programming Interface-Enabled Roadmap for India

article

Relative impact of influenza and respiratory syncytial virus in young children

artículo científico publicado en 2009

Revealing the spatial distribution of a disease while preserving privacy

artículo científico publicado en 2008

Reverse geocoding: concerns about patient confidentiality in the display of geospatial health data.

artículo científico publicado en 2005

Roundtable on bioterrorism detection: information system-based surveillance

artículo científico publicado en 2002

Running outside the baseline: impact of the 2004 Major League Baseball postseason on emergency department use

article

SMART Cancer Navigator: A Framework for Implementing ASCO Workshop Recommendations to Enable Precision Cancer Medicine

artículo científico publicado en 2018

SMART Markers: collecting patient-generated health data as a standardized property of health information technology

scientific article published on 23 January 2020

SMART on FHIR: a standards-based, interoperable apps platform for electronic health records

artículo científico publicado en 2016

SMART precision cancer medicine: a FHIR-based app to provide genomic information at the point of care

artículo científico publicado en 2016

SMART-on-FHIR implemented over i2b2

artículo científico publicado en 2016

Scalable Collaborative Infrastructure for a Learning Healthcare System (SCILHS): architecture

artículo científico publicado en 2014

Scalable decision support at the point of care: a substitutable electronic health record app for monitoring medication adherence

artículo científico publicado en 2013

Selective imaging strategies for the diagnosis of appendicitis in children

artículo científico publicado en 2004

Service-oriented architecture for pediatric immunization decision support.

artículo científico publicado en 2007

Sharing Data for Public Health Research by Members of an International Online Diabetes Social Network ⬇️

artículo científico publicado el 27 de abril de 2011

Sharing medical data for health research: the early personal health record experience

artículo científico publicado en 2010

Social but safe? Quality and safety of diabetes-related online social networks ⬇️

artículo científico publicado el 24 de enero de 2011

Surveillance Sans Frontières: Internet-based emerging infectious disease intelligence and the HealthMap project

artículo científico publicado en 2008

Surveillance of medication use: early identification of poor adherence ⬇️

artículo científico publicado el 19 de noviembre de 2011

Syndromic surveillance: the effects of syndrome grouping on model accuracy and outbreak detection

artículo científico publicado en 2004

Tectonic shifts in the health information economy

artículo científico publicado en 2008

Temporal Patterns of Medications Dispensed to Children and Adolescents in a National Insured Population ⬇️

artículo científico publicado el 19 de julio de 2012

The 21st Century Cures Act: A Competitive Apps Market and the Risk of Innovation Blocking

artículo científico publicado en 2020

The Ad-Hoc Uncertainty Principle of Patient Privacy

artículo científico publicado en 2018

The Association of Black Cardiologists (ABC) Cardiovascular Implementation Study (CVIS): A Research Registry Integrating Social Determinants to Support Care for Underserved Patients

artículo científico publicado en 2019

The Clinical Genome and Ancestry Report: An interactive web application for prioritizing clinically implicated variants from genome sequencing data with ancestry composition

artículo científico publicado en 2019

The Evolution of Patient Diagnosis: From Art to Digital Data-Driven Science

artículo científico publicado en 2017

The Genomics Research and Innovation Network: creating an interoperable, federated, genomics learning system

scientific article published on 04 September 2019

The Impact of Provider Networks on the Co-Prescriptions of Interacting Drugs: A Claims-Based Analysis

artículo científico publicado en 2016

The Massachusetts Health and Homeland Alert Network: a scalable and secure public health knowledge management and notification system.

artículo científico publicado en 2008

The PING personally controlled electronic medical record system: technical architecture

artículo científico publicado en 2004

The SMART Platform: early experience enabling substitutable applications for electronic health records ⬇️

artículo científico publicado el 17 de marzo de 2012

The childhood arthritis & rheumatology research alliance network registry: demographics and characteristics of the initial 6-month cohort.

artículo científico publicado en 2012

The effect of an electronic health record-based tool on abnormal pediatric blood pressure recognition.

artículo científico publicado en 2017

The tell-tale heart: population-based surveillance reveals an association of rofecoxib and celecoxib with myocardial infarction

artículo científico publicado en 2007

The value of parental report for diagnosis and management of dehydration in the emergency department

artículo científico publicado en 2003

The value of patient self-report for disease surveillance

artículo científico publicado en 2007

Time for a Patient-Driven Health Information Economy?

artículo científico publicado en 2016

Time series modeling for syndromic surveillance

artículo científico publicado en 2003

Twitter as a sentinel in emergency situations: lessons from the Boston marathon explosions

artículo científico publicado en 2013

Usage of a web-based decision support tool for bioterrorism detection

artículo científico publicado en 2002

Use of emergency department chief complaint and diagnostic codes for identifying respiratory illness in a pediatric population

artículo científico publicado en 2004

Use of population health data to refine diagnostic decision-making for pertussis

artículo científico publicado en 2010

Use of unstructured event-based reports for global infectious disease surveillance

artículo científico publicado en 2009

Using temporal context to improve biosurveillance

artículo científico publicado en 2003

Validation of an Electronic Health Record-Based Suicide Risk Prediction Modeling Approach Across Multiple Health Care Systems

artículo científico publicado en 2020

Validation of syndromic surveillance for respiratory infections

article

WEScover: selection between clinical whole exome sequencing and gene panel testing

artículo científico publicado en 2021

What are the benefits and risks of fitting patients with radiofrequency identification devices

artículo científico publicado en 2007

Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patients.

artículo científico publicado en 2008

Wireless technology infrastructures for authentication of patients: PKI that rings

artículo científico publicado en 2005

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