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Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases

scientific article published on 25 August 2016

Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study.

artículo científico publicado en 2018

Enabling External Inquiries to an Existing Patient Registry by Using the Open Source Registry System for Rare Diseases: Demonstration of the System Using the European Society for Immunodeficiencies Registry

scientific article published on 07 October 2020

Metadata Correction: Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study

scientific article published on 19 September 2018

Rare Diseases on the Internet: An Assessment of the Quality of Online Information

artículo científico publicado en 2017

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