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Comprehensive care on paper only? The challenge for physiotherapy provision in day to day haemophilia practice

scientific article published on 04 October 2020

Establishing the appropriate primary endpoint in haemophilia gene therapy pivotal studies.

artículo científico publicado en 2017

Exploring regional variations in the cross-cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study

artículo científico publicado en 2019

Gene therapy to cure haemophilia: Is robust scientific inquiry the missing factor?

scientific article published on 10 September 2020

Haemophilia care in Europe - A survey of 37 countries

artículo científico publicado en 2017

Haemophilia care in Europe: Past progress and future promise

artículo científico publicado en 2020

How to discuss gene therapy for haemophilia? A patient and physician perspective

artículo científico publicado en 2019

Non-severe haemophilia: Is it benign? - Insights from the PROBE study

artículo científico publicado en 2020

Patient-centred value framework for haemophilia.

artículo científico publicado en 2018

Progression of hepatitis C in the haemophiliac population in Ireland, after 30 years of infection in the pre-DAA treatment era.

artículo científico publicado en 2017

Real-world comparative analysis of bleeding complications and health-related quality of life in patients with haemophilia A and haemophilia B

scientific article published on 09 August 2018

Telehealth for delivery of haemophilia comprehensive care during the COVID-19 pandemic

artículo científico publicado en 2020

The World Federation of Hemophilia Annual Global Survey 1999-2018

scientific article published on 04 June 2020

Value of prophylaxis vs on-demand treatment: Application of a value framework in hemophilia

artículo científico publicado en 2018

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