Lista de obras -

"Frontal" behaviors before the diagnosis of Huntington's disease and their relationship to markers of disease progression: evidence of early lack of awareness

artículo científico publicado en 2010

A Latent Content Analysis of Barriers and Supports to Healthcare: Perspectives From Caregivers of Service Members and Veterans With Military-Related Traumatic Brain Injury

artículo científico publicado en 2018

Assessing vigilance in caregivers after traumatic brain injury: TBI-CareQOL Caregiver Vigilance

artículo científico publicado en 2020

Caring for our wounded warriors: A qualitative examination of health-related quality of life in caregivers of individuals with military-related traumatic brain injury

artículo científico publicado en 2016

Establishing the Factor Structure of a Health-Related Quality of Life Measurement System for Caregivers of Persons Living with Traumatic Brain Injury

artículo científico publicado en 2020

Estimating premorbid IQ in the prodromal phase of a neurodegenerative disease

artículo científico publicado en 2011

Evaluating cognition in individuals with Huntington disease: Neuro-QoL cognitive functioning measures

artículo científico publicado en 2017

HDQLIFE: development and assessment of health-related quality of life in Huntington disease (HD).

artículo científico publicado en 2016

Health literacy, health outcomes, and the caregiver role in traumatic brain injury

artículo científico publicado en 2020

Health-related quality of life in caregivers of individuals with traumatic brain injury: development of a conceptual model

artículo científico publicado en 2014

Improving outcomes for care partners of persons with traumatic brain injury: Protocol for a randomized control trial of a just-in-time-adaptive self-management intervention

artículo científico publicado en 2022

Measuring emotional suppression in caregivers of adults with traumatic brain injury

artículo científico publicado en 2019

Motor abnormalities in premanifest persons with Huntington's disease: the PREDICT-HD study

artículo científico publicado en 2009

Neurocognitive signs in prodromal Huntington disease

artículo científico publicado en 2011

New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system).

artículo científico publicado en 2016

Promoting Health and Well-Being Through Mobile Health Technology (Roadmap 2.0) in Family Caregivers and Patients Undergoing Hematopoietic Stem Cell Transplantation: Protocol for the Development of a Mobile Randomized Controlled Trial

artículo científico publicado en 2020

Psychometric properties and responsiveness of Neuro-QoL Cognitive Function in persons with Huntington disease (HD)

artículo científico publicado en 2019

Reliability and validity data to support the clinical utility of the Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL)

scientific article published on 12 December 2019

Responsiveness to change over time and test-retest reliability of the PROMIS and Neuro-QoL mental health measures in persons with Huntington disease (HD)

artículo científico publicado en 2020

Severity of military traumatic brain injury influences caregiver health-related quality of life

artículo científico publicado en 2020

Sleep impairment is related to health-related quality of life among caregivers of lower-functioning traumatic brain injury survivors

artículo científico publicado en 2020

TBI-CareQOL family disruption: Family disruption in caregivers of persons with TBI

artículo científico publicado en 2019

TBI-CareQOL military health care frustration in caregivers of service members/veterans with traumatic brain injury

artículo científico publicado en 2020

The Development of Two New Computer Adaptive Tests To Evaluate Feelings of Loss in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feelings of Loss-Self and Feelings of Loss-Person With Traumatic Brain Injury

artículo científico publicado en 2018

The Development of a New Computer Adaptive Test to Evaluate Anxiety in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Caregiver-Specific Anxiety

artículo científico publicado en 2018

The Development of a New Computer Adaptive Test to Evaluate Feelings of Being Trapped in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feeling Trapped Item Bank

article

The Development of a New Computer-Adaptive Test to Evaluate Strain in Caregivers of Individuals With TBI: TBI-CareQOL Caregiver Strain

artículo científico publicado en 2018

The TBI-CareQOL Measurement System: Development and Preliminary Validation of Health-Related Quality of Life Measures for Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury

artículo científico publicado en 2018

The Trail Making Test in prodromal Huntington disease: contributions of disease progression to test performance

artículo científico publicado en 2011

Traumatic brain injury caregivers: A qualitative analysis of spouse and parent perspectives on quality of life

artículo científico publicado en 2015

Understanding Health-Related Quality of Life in Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Fatigue and Sleep Disturbance Item Banks

artículo científico publicado en 2018

Understanding Health-Related Quality of Life in Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Reliability and Validity Data for the TBI-CareQOL Measurement System

artículo científico publicado en 2018

Understanding Health-Related Quality of Life of Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Social Health Measures

scientific article published on 31 July 2018

Understanding Health-related Quality of Life in Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Mental Health Measures

artículo científico publicado en 2018

Understanding domains that influence perceived stigma in individuals with Huntington disease

scientific article published on 20 January 2020

Understanding patient-reported outcome measures in Huntington disease: at what point is cognitive impairment related to poor measurement reliability?

artículo científico publicado en 2018

Understanding speech and swallowing difficulties in individuals with Huntington disease: Validation of the HDQLIFE Speech Difficulties and Swallowing Difficulties Item Banks

artículo científico publicado en 2020

Validation of the Pittsburgh Fatigability Scale in a mixed sample of adults with and without chronic conditions

artículo científico publicado en 2019

Lista de obras de

"Frontal" behaviors before the diagnosis of Huntington's disease and their relationship to markers of disease progression: evidence of early lack of awareness

A Latent Content Analysis of Barriers and Supports to Healthcare: Perspectives From Caregivers of Service Members and Veterans With Military-Related Traumatic Brain Injury

Assessing vigilance in caregivers after traumatic brain injury: TBI-CareQOL Caregiver Vigilance

Caring for our wounded warriors: A qualitative examination of health-related quality of life in caregivers of individuals with military-related traumatic brain injury

Establishing the Factor Structure of a Health-Related Quality of Life Measurement System for Caregivers of Persons Living with Traumatic Brain Injury

Estimating premorbid IQ in the prodromal phase of a neurodegenerative disease

Evaluating cognition in individuals with Huntington disease: Neuro-QoL cognitive functioning measures

HDQLIFE: development and assessment of health-related quality of life in Huntington disease (HD).

Health literacy, health outcomes, and the caregiver role in traumatic brain injury

Health-related quality of life in caregivers of individuals with traumatic brain injury: development of a conceptual model

Improving outcomes for care partners of persons with traumatic brain injury: Protocol for a randomized control trial of a just-in-time-adaptive self-management intervention

Measuring emotional suppression in caregivers of adults with traumatic brain injury

Motor abnormalities in premanifest persons with Huntington's disease: the PREDICT-HD study

Neurocognitive signs in prodromal Huntington disease

New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system).

Promoting Health and Well-Being Through Mobile Health Technology (Roadmap 2.0) in Family Caregivers and Patients Undergoing Hematopoietic Stem Cell Transplantation: Protocol for the Development of a Mobile Randomized Controlled Trial

Psychometric properties and responsiveness of Neuro-QoL Cognitive Function in persons with Huntington disease (HD)

Reliability and validity data to support the clinical utility of the Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL)

Responsiveness to change over time and test-retest reliability of the PROMIS and Neuro-QoL mental health measures in persons with Huntington disease (HD)

Severity of military traumatic brain injury influences caregiver health-related quality of life

Sleep impairment is related to health-related quality of life among caregivers of lower-functioning traumatic brain injury survivors

TBI-CareQOL family disruption: Family disruption in caregivers of persons with TBI

TBI-CareQOL military health care frustration in caregivers of service members/veterans with traumatic brain injury

The Development of Two New Computer Adaptive Tests To Evaluate Feelings of Loss in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feelings of Loss-Self and Feelings of Loss-Person With Traumatic Brain Injury

The Development of a New Computer Adaptive Test to Evaluate Anxiety in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Caregiver-Specific Anxiety

The Development of a New Computer Adaptive Test to Evaluate Feelings of Being Trapped in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feeling Trapped Item Bank

The Development of a New Computer-Adaptive Test to Evaluate Strain in Caregivers of Individuals With TBI: TBI-CareQOL Caregiver Strain

The TBI-CareQOL Measurement System: Development and Preliminary Validation of Health-Related Quality of Life Measures for Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury

The Trail Making Test in prodromal Huntington disease: contributions of disease progression to test performance

Traumatic brain injury caregivers: A qualitative analysis of spouse and parent perspectives on quality of life

Understanding Health-Related Quality of Life in Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Fatigue and Sleep Disturbance Item Banks

Understanding Health-Related Quality of Life in Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Reliability and Validity Data for the TBI-CareQOL Measurement System

Understanding Health-Related Quality of Life of Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Social Health Measures

Understanding Health-related Quality of Life in Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Mental Health Measures

Understanding domains that influence perceived stigma in individuals with Huntington disease

Understanding patient-reported outcome measures in Huntington disease: at what point is cognitive impairment related to poor measurement reliability?

Understanding speech and swallowing difficulties in individuals with Huntington disease: Validation of the HDQLIFE Speech Difficulties and Swallowing Difficulties Item Banks

Validation of the Pittsburgh Fatigability Scale in a mixed sample of adults with and without chronic conditions