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Challenges and key lessons from the design and implementation of an international haemophilia registry supported by a pharmaceutical company

artículo científico publicado en 2020

Cross-cultural adaptation and validation of Haem-A-QoL in Côte d'Ivoire

artículo científico publicado en 2020

Determining meaningful health-related quality-of-life improvement in persons with haemophilia A using the Haemophilia Quality of Life Questionnaire for Adults (Haem-A-QoL)

artículo científico publicado en 2020

Haemophilia patients' unmet needs and their expectations of the new extended half-life factor concentrates.

artículo científico publicado en 2017

Health-related quality of life and health status in persons with haemophilia A with inhibitors: A prospective, multicentre, non-interventional study (NIS)

artículo científico publicado en 2019

Health-related quality of life in paediatric haemophilia B patients treated with rIX-FP

scientific article published on 14 November 2018

Heavy menstrual bleeding in women with inherited bleeding disorders

scientific article published on 01 April 2020

Impact of COVID-19 pandemic on mental health of patients with inherited bleeding disorders in Germany

scientific article published on 15 September 2020

Study of physical function in adolescents with haemophilia: The SO-FIT study.

artículo científico

The burden of bleeds and other clinical determinants on caregivers of children with haemophilia (the BBC Study)

scientific article published on 29 March 2019

The effect of emicizumab prophylaxis on health-related outcomes in persons with haemophilia A with inhibitors: HAVEN 1 Study

scientific article published on 14 November 2018

The impact of psychosocial determinants on caregivers' burden of children with haemophilia (results of the BBC study)

artículo científico publicado en 2019

The multiple benefits of sport in haemophilia

artículo científico publicado en 2018

Validation of the Haemophilia & Exercise Project-Test-Questionnaire (HEP-Test-Q)-An instrument for the assessment of subjective physical functioning in children with haemophilia

artículo científico publicado en 2018

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