Lista de obras -

"They're Not Going to Do Nothing for Me": Research Participants' Attitudes towards Elective Genetic Counseling

artículo científico publicado en 2020

'Someone should oversee it': patient perspectives on the ethical issues arising with the regulation of probiotics

artículo científico publicado en 2012

A Belmont Reboot: Building a Normative Foundation for Human Research in the 21st Century.

artículo científico publicado en 2019

A systematic review of activities at a high-volume ethics consultation service

artículo científico publicado el 1 de enero de 2011

AJOB 2.0: Taking bioethics to a new level

artículo científico publicado en 2014

Additional thoughts on rethinking research ethics

artículo científico publicado en 2005

An analysis of online messages about probiotics

artículo científico publicado en 2013

Assessing optimism and pessimism about genomic medicine: Development of a genomic orientation scale

artículo científico publicado en 2019

Assessing the stability of biobank donor preferences regarding sample use: evidence supporting the value of dynamic consent

scientific article published on 23 April 2020

Beyond race: towards a whole-genome perspective on human populations and genetic variation

artículo científico publicado en 2004

Bioethics consultation and patient advocacy organizations: expanding the dialogue about professional conflicts of interest.

artículo científico publicado en 2007

Building a Central Repository for Research Ethics Consultation Data: A Proposal for a Standard Data Collection Tool

artículo científico publicado en 2015

Can Parents Refuse a Potentially Lifesaving Transplant for Severe Combined Immunodeficiency?

artículo científico publicado en 2016

Challenges in returning results in a genomic medicine implementation study: the Return of Actionable Variants Empirical (RAVE) study

scientific article published on 04 May 2020

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

artículo científico publicado en 2016

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

article

Clinical Utility and Full Disclosure of Genetic Results to Research Participants

journal article; published in The American Journal of Bioethics in 2006

Community involvement in the ethical review of genetic research: lessons from American Indian and Alaska Native populations

artículo científico publicado en 2002

Community-Engaged Research Ethics Review: Exploring Flexibility in Federal Regulations

artículo científico publicado en 2016

Conflicts of Interest in Bioethics: A Response to Our Critics

journal article; published in The American Journal of Bioethics in 2008

Consensus and controversy in clinical research ethics

artículo científico publicado en 2005

Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience

artículo científico publicado en 2017

Downsizing genomic medicine: approaching the ethical complexity of whole-genome sequencing by starting small

scholarly article by Richard R Sharp published March 2011 in Genetics in Medicine

Ethical Aspects of Organ Donation After Circulatory Death

artículo científico publicado en 2015

Ethical Considerations Related to Return of Results from Genomic Medicine Projects: The eMERGE Network (Phase III) Experience

artículo científico publicado en 2018

Ethical Discourse about the Modification of Food for Therapeutic Purposes: How Patients with Gastrointestinal Diseases View the Good, the Bad, and the Healthy

artículo científico publicado en 2012

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

artículo científico publicado en 2010

Ethical considerations in testing workers for the -Glu69 marker of genetic susceptibility to chronic beryllium disease

artículo científico publicado en 2006

Ethical issues in environmental health research ⬇️

artículo científico publicado el 1 de noviembre de 2003

Ethical issues in medical-sequencing research: implications of genotype-phenotype studies for individuals and populations

artículo científico publicado en 2006

Evaluating the utility of personal genomic information

artículo científico publicado en 2009

Examining the potential for exploitation by local intermediaries

artículo científico publicado en 2010

Experiences of patients with chronic gastrointestinal conditions: in their own words

artículo científico publicado en 2012

Genetic Fingerprints and National Security

journal article; published in The American Journal of Bioethics in 2017

Genomic medicine and incidental findings: balancing actionability and patient autonomy

article

Helping patients make informed choices about probiotics: a need for research

artículo científico publicado en 2009

How disease advocacy organizations participate in clinical research: a survey of genetic organizations

artículo científico publicado en 2012

How patients view probiotics: findings from a multicenter study of patients with inflammatory bowel disease and irritable bowel syndrome

artículo científico publicado en 2012

Implementation of preemptive DNA sequence–based pharmacogenomics testing across a large academic medical center: The Mayo-Baylor RIGHT 10K Study

artículo científico publicado en 2022

Informed trust and the financing of biomedical research

artículo científico publicado en 2006

Ingestible Drug Adherence Monitors: Trending Toward a Surveillance Society?

artículo científico publicado en 2015

Investments in cancer genomics: who benefits and who decides.

artículo científico publicado en 2006

Knowing who you want to be when you grow up: implications for pediatric assent

artículo científico publicado en 2003

Making pretest genomic counseling optional: lessons from the RAVE study

artículo científico publicado en 2018

Meaningful Fissures: The Value of Divergent Agendas in Patient Advocacy

artículo científico publicado en 2020

Modernizing Research Regulations Is Not Enough: It's Time to Think Outside the Regulatory Box.

artículo científico publicado en 2017

Moral attitudes and beliefs among couples pursuing PGD for sex selection ⬇️

artículo científico publicado el 26 de septiembre de 2010

Navigating a research partnership between academia and industry to assess the impact of personalized genetic testing ⬇️

artículo científico publicado el 12 de enero de 2012

Neutral, Negative, or Negligible? Changes in Patient Perceptions of Disease Risk Following Receipt of a Negative Genomic Screening Result

artículo científico publicado en 2020

Offering aggregate results to participants in genomic research: opportunities and challenges

artículo científico publicado en 2012

Out of sequence: how consumer genomics could displace clinical genetics

artículo científico publicado en 2008

Owning Medical Professionalism.

artículo científico publicado en 2016

Patient reactions to receiving negative genomic screening results by mail

artículo científico publicado en 2020

Patients' views on identifiability of samples and informed consent for genetic research

artículo científico publicado en 2008

Practical guidance for charting ethics consultations

artículo científico publicado en 2014

Prepublication review of medical ethics research: cause for concern

artículo científico publicado en 2009

Protecting third parties in human subjects research

artículo científico publicado en 2006

Prudentia Populo: Involving the Community in Biobank Governance

artículo científico publicado en 2015

Public trust and research a decade later: what have we learned since Jesse Gelsinger's death?

scientific article published on 20 February 2009

Relationships hold the key to trustworthy and productive translational science: recommendations for expanding community engagement in biomedical research

artículo científico publicado en 2013

Research ethics consultation: ethical and professional practice challenges and recommendations

artículo científico publicado en 2015

Research on environmental health interventions: ethical problems and solutions

scientific article published on April 2005

Restoring and preserving trust in biomedical research

artículo científico publicado en 2002

Return of genomic results to research participants: the floor, the ceiling, and the choices in between

artículo científico publicado en 2014

Return of results in the genomic medicine projects of the eMERGE network

artículo científico publicado en 2014

Returning Results in the Genomic Era: Initial Experiences of the eMERGE Network

artículo científico publicado en 2020

Ruffling a Few Feathers

journal article; published in The American Journal of Bioethics in 2015

Share and share alike: deciding how to distribute the scientific and social benefits of genomic data

artículo científico publicado en 2007

Should pretest genetic counselling be required for patients pursuing genomic sequencing? Results from a survey of participants in a large genomic implementation study

artículo científico publicado en 2018

Teaching old dogs new tricks: continuing education in research ethics

artículo científico publicado en 2002

Testing Children for Adult-Onset Genetic Diseases ⬇️

artículo científico publicado el 5 de diciembre de 2011

The Environmental Genome Project and bioethics.

artículo científico publicado en 1999

The OHRP and SUPPORT

artículo científico publicado en 2013

The Sangre Por Salud Biobank: Facilitating Genetic Research in an Underrepresented Latino Community

artículo científico publicado en 2016

The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations

artículo científico publicado en 2014

The establishment of research ethics consultation services (RECS): an emerging research resource

artículo científico publicado en 2013

The ethical hazards and programmatic challenges of genomic newborn screening

artículo científico publicado en 2012

The translational potential of research on the ethical, legal, and social implications of genomics

artículo científico publicado en 2014

Toward competency-based certification of clinical ethics consultants: a four-step process.

artículo científico publicado en 2010

Transforming the culture of biomedical research from compliance to trustworthiness: insights from nonmedical sectors

artículo científico publicado en 2009

Understanding the Return of Genomic Sequencing Results Process: Content Review of Participant Summary Letters in the eMERGE Research Network

artículo científico publicado en 2020

Views regarding the training of ethics consultants: a survey of physicians caring for patients in ICU

artículo científico publicado en 2007

What to do with the could-be-knowns of genomic medicine

artículo científico publicado en 2013

When Moral Intuitions and Empirical Findings Collide: A Case for Revisiting Protectionist Tendencies in Bioethics

artículo científico publicado en 2020

When to Avoid Giving Advice on the Ethical Conduct of Research

journal article; published in The American Journal of Bioethics in 2018

Who Is Buying Bioethics Research?

journal article; published in The American Journal of Bioethics in 2008

Will investments in large-scale prospective cohorts and biobanks limit our ability to discover weaker, less common genetic and environmental contributors to complex diseases?

artículo científico publicado en 2005

Lista de obras de

"They're Not Going to Do Nothing for Me": Research Participants' Attitudes towards Elective Genetic Counseling

'Someone should oversee it': patient perspectives on the ethical issues arising with the regulation of probiotics

A Belmont Reboot: Building a Normative Foundation for Human Research in the 21st Century.

A systematic review of activities at a high-volume ethics consultation service

AJOB 2.0: Taking bioethics to a new level

Additional thoughts on rethinking research ethics

An analysis of online messages about probiotics

Assessing optimism and pessimism about genomic medicine: Development of a genomic orientation scale

Assessing the stability of biobank donor preferences regarding sample use: evidence supporting the value of dynamic consent

Beyond race: towards a whole-genome perspective on human populations and genetic variation

Bioethics consultation and patient advocacy organizations: expanding the dialogue about professional conflicts of interest.

Building a Central Repository for Research Ethics Consultation Data: A Proposal for a Standard Data Collection Tool

Can Parents Refuse a Potentially Lifesaving Transplant for Severe Combined Immunodeficiency?

Challenges in returning results in a genomic medicine implementation study: the Return of Actionable Variants Empirical (RAVE) study

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

Clinical Utility and Full Disclosure of Genetic Results to Research Participants

Community involvement in the ethical review of genetic research: lessons from American Indian and Alaska Native populations

Community-Engaged Research Ethics Review: Exploring Flexibility in Federal Regulations

Conflicts of Interest in Bioethics: A Response to Our Critics

Consensus and controversy in clinical research ethics

Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience

Downsizing genomic medicine: approaching the ethical complexity of whole-genome sequencing by starting small

Ethical Aspects of Organ Donation After Circulatory Death

Ethical Considerations Related to Return of Results from Genomic Medicine Projects: The eMERGE Network (Phase III) Experience

Ethical Discourse about the Modification of Food for Therapeutic Purposes: How Patients with Gastrointestinal Diseases View the Good, the Bad, and the Healthy

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

Ethical considerations in testing workers for the -Glu69 marker of genetic susceptibility to chronic beryllium disease

Ethical issues in environmental health research ⬇️

Ethical issues in medical-sequencing research: implications of genotype-phenotype studies for individuals and populations

Evaluating the utility of personal genomic information

Examining the potential for exploitation by local intermediaries

Experiences of patients with chronic gastrointestinal conditions: in their own words

Genetic Fingerprints and National Security

Genomic medicine and incidental findings: balancing actionability and patient autonomy

Helping patients make informed choices about probiotics: a need for research

How disease advocacy organizations participate in clinical research: a survey of genetic organizations

How patients view probiotics: findings from a multicenter study of patients with inflammatory bowel disease and irritable bowel syndrome

Implementation of preemptive DNA sequence–based pharmacogenomics testing across a large academic medical center: The Mayo-Baylor RIGHT 10K Study

Informed trust and the financing of biomedical research

Ingestible Drug Adherence Monitors: Trending Toward a Surveillance Society?

Investments in cancer genomics: who benefits and who decides.

Knowing who you want to be when you grow up: implications for pediatric assent

Making pretest genomic counseling optional: lessons from the RAVE study

Meaningful Fissures: The Value of Divergent Agendas in Patient Advocacy

Modernizing Research Regulations Is Not Enough: It's Time to Think Outside the Regulatory Box.

Moral attitudes and beliefs among couples pursuing PGD for sex selection ⬇️

Navigating a research partnership between academia and industry to assess the impact of personalized genetic testing ⬇️

Neutral, Negative, or Negligible? Changes in Patient Perceptions of Disease Risk Following Receipt of a Negative Genomic Screening Result

Offering aggregate results to participants in genomic research: opportunities and challenges

Out of sequence: how consumer genomics could displace clinical genetics

Owning Medical Professionalism.

Patient reactions to receiving negative genomic screening results by mail

Patients' views on identifiability of samples and informed consent for genetic research

Practical guidance for charting ethics consultations

Prepublication review of medical ethics research: cause for concern

Protecting third parties in human subjects research

Prudentia Populo: Involving the Community in Biobank Governance

Public trust and research a decade later: what have we learned since Jesse Gelsinger's death?

Relationships hold the key to trustworthy and productive translational science: recommendations for expanding community engagement in biomedical research

Research ethics consultation: ethical and professional practice challenges and recommendations

Research on environmental health interventions: ethical problems and solutions

Restoring and preserving trust in biomedical research

Return of genomic results to research participants: the floor, the ceiling, and the choices in between

Return of results in the genomic medicine projects of the eMERGE network

Returning Results in the Genomic Era: Initial Experiences of the eMERGE Network

Ruffling a Few Feathers

Share and share alike: deciding how to distribute the scientific and social benefits of genomic data

Should pretest genetic counselling be required for patients pursuing genomic sequencing? Results from a survey of participants in a large genomic implementation study

Teaching old dogs new tricks: continuing education in research ethics

Testing Children for Adult-Onset Genetic Diseases ⬇️

The Environmental Genome Project and bioethics.

The OHRP and SUPPORT

The Sangre Por Salud Biobank: Facilitating Genetic Research in an Underrepresented Latino Community

The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations

The establishment of research ethics consultation services (RECS): an emerging research resource

The ethical hazards and programmatic challenges of genomic newborn screening

The translational potential of research on the ethical, legal, and social implications of genomics

Toward competency-based certification of clinical ethics consultants: a four-step process.