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A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.

artículo científico publicado en 2015

Comprehension and personal value of negative non-diagnostic genetic panel testing

scientific article published on 18 September 2020

Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions

artículo científico publicado en 2016

Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium

artículo científico publicado en 2010

Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience

artículo científico publicado en 2011

Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey

scientific article published on 01 July 2018

Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US

artículo científico publicado en 2017

Response to Patryn and Zagaja.

artículo científico publicado en 2016

Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network

artículo científico publicado en 2012

Returning Results in the Genomic Era: Initial Experiences of the eMERGE Network

artículo científico publicado en 2020

Stakeholder engagement: a key component of integrating genomic information into electronic health records

artículo científico publicado en 2013

Understanding the Return of Genomic Sequencing Results Process: Content Review of Participant Summary Letters in the eMERGE Research Network

artículo científico publicado en 2020