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'There's more to life than money and health': Family caregivers' views on the role of Power of Attorney in proxy decisions about research participation for people living with dementia

scientific article published on 25 October 2019

(Re)Conceptualising ‘good’ proxy decision-making for research: the implications for proxy consent decision quality

artículo científico publicado en 2022

A randomised placebo-controlled trial of oral and topical antibiotics for children with clinically infected eczema in the community: the ChildRen with Eczema, Antibiotic Management (CREAM) study

artículo científico publicado en 2016

An under-represented and underserved population in trials: methodological, structural, and systemic barriers to the inclusion of adults lacking capacity to consent

artículo científico publicado en 2020

Conducting focus groups in neurodegenerative disease populations: ethical and methodological considerations

artículo científico publicado en 2021

Constructing authentic decisions: proxy decision making for research involving adults who lack capacity to consent

artículo científico publicado en 2020

Decision-making during pandemics and other serious illness

artículo científico publicado en 2020

Development of a measure to assess the quality of proxy decisions about research participation on behalf of adults lacking capacity to consent: the Combined Scale for Proxy Informed Consent Decisions (CONCORD scale)

artículo científico publicado en 2022

Establishing a set of research priorities in care homes for older people in the UK: a modified Delphi consensus study with care home staff

artículo científico publicado en 2016

Ethical understandings of proxy decision making for research involving adults lacking capacity: A systematic review (framework synthesis) of empirical research

artículo científico publicado en 2018

Healthcare professionals' understanding of the legislation governing research involving adults lacking mental capacity in England and Wales: a national survey.

artículo científico publicado en 2018

Impact of a deferred recruitment model in a randomised controlled trial in primary care (CREAM study).

artículo científico publicado en 2017

Oral and Topical Antibiotics for Clinically Infected Eczema in Children: A Pragmatic Randomized Controlled Trial in Ambulatory Care.

artículo científico publicado en 2017

Oral steroids for hearing loss associated with otitis media with effusion in children aged 2-8 years: the OSTRICH RCT

artículo científico publicado en 2018

Oral steroids for resolution of otitis media with effusion in children (OSTRICH): a double-blinded, placebo-controlled randomised trial

artículo científico publicado en 2018

Oral steroids for the resolution of otitis media with effusion (OME) in children (OSTRICH): study protocol for a randomised controlled trial

artículo científico publicado en 2016

Parental perceptions and understanding of information provision, management options and factors influencing the decision-making process in the treatment of children with glue ear.

artículo científico publicado en 2016

Probiotics for Antibiotic-Associated Diarrhoea (PAAD): a prospective observational study of antibiotic-associated diarrhoea (including Clostridium difficile-associated diarrhoea) in care homes

artículo científico publicado en 2014

Protection by exclusion? The (lack of) inclusion of adults who lack capacity to consent to research in clinical trials in the UK

artículo científico publicado en 2019

Protocol for a double-blind placebo-controlled trial to evaluate the efficacy of probiotics in reducing antibiotics for infection in care home residents: the Probiotics to Reduce Infections iN CarE home reSidentS (PRINCESS) trial

scientific article published on 20 June 2019

Research involving adults lacking capacity to consent: a content analysis of participant information sheets for consultees and legal representatives in England and Wales

article

Research involving adults lacking capacity to consent: the impact of research regulation on 'evidence biased' medicine

artículo científico publicado en 2016

Setting up a clinical trial in care homes: challenges encountered and recommendations for future research practice

artículo científico publicado en 2015

Unpacking the ‘black box of horrendousness’: a qualitative exploration of the barriers and facilitators to conducting trials involving adults lacking capacity to consent

artículo científico publicado en 2022

What adolescents living with long-term conditions say about being involved in decision-making about their healthcare: A systematic review and narrative synthesis of preferences and experiences

article