Lista de obras -

'Of course he's our child': transitions in social parenthood in donor sperm recipient families

artículo científico publicado en 2013

A prospective study of the clinical utility of prenatal chromosomal microarray analysis in fetuses with ultrasound abnormalities and an exploration of a framework for reporting unclassified variants and risk factors.

artículo científico publicado en 2013

Access to human tissues for research and product development: From EU regulation to alarming legal developments in Belgium

artículo científico publicado en 2015

Access to investigational medicinal products for minors in Europe: ethical and regulatory issues in negotiating children's access to investigational medicines

artículo científico publicado en 2010

Amnestic MCI Patients' Perspectives toward Disclosure of Amyloid PET Results in a Research Context.

artículo científico publicado en 2017

Amnestic MCI patients' experiences after disclosure of their amyloid PET result in a research context.

artículo científico publicado en 2017

An exploratory survey of professionals on the use of stored tissue samples from minors for genetic research.

artículo científico publicado en 2010

Attitudes regarding carrier testing in incompetent children: a survey of European clinical geneticists

artículo científico publicado en 2007

Attitudes regarding predictive genetic testing in minors: A survey of European clinical geneticists

Attitudes toward medical and genetic confidentiality in the Saudi research biobank: An exploratory survey.

artículo científico publicado en 2015

Attitudes towards predictive genetic testing in minors for familial breast cancer: a systematic review

artículo científico publicado en 2007

Belgian Doctors' Attitudes on the Management of Patients in Persistent Vegetative State (PVS): Ethical and Regulatory Aspects ⬇️

artículo científico publicado el 1 de enero de 1998

Benefit sharing in the revised Indian National Ethical Guidelines for Biomedical and Health Research Involving Human Participants

article

Benefit sharing: an exploration on the contextual discourse of a changing concept.

artículo científico publicado en 2013

Biological sample collections from minors for genetic research: a systematic review of guidelines and position papers

artículo científico publicado en 2009

Carrier testing in minors: conflicting views

Children and biobanks: a review of the ethical and legal discussion.

artículo científico publicado en 2011

Children, biobanks and the scope of parental consent

artículo científico publicado en 2011

Confidentiality, informed consent and children's participation in the Saudi biobank governance: a comparative study

artículo científico publicado en 2014

Confidentiality, informed consent, and children's participation in research involving stored tissue samples: interviews with medical professionals from the Middle East

artículo científico publicado en 2015

Designing and implementing a research integrity promotion plan: Recommendations for research funders

artículo científico publicado en 2022

Differing Perceptions Concerning Research Integrity Between Universities and Industry: A Qualitative Study

artículo científico publicado en 2017

Disclosing incidental findings in genetics contexts: a review of the empirical ethical research

artículo científico

Diversified harmony: supranational and domestic regulation of pediatric clinical trials in the European Union

scientific article published on June 2011

Double Trouble: Preventive Genomic Sequencing and the Case of Minors.

artículo científico publicado en 2015

EnTIRE: Mapping Normative Frameworks for EThics and Integrity of REsearch

artículo científico publicado en 2021

Ethical and Regulatory Issues in Pediatric Research Supporting the Non-Clinical Application of fMR Imaging

journal article; published in The American Journal of Bioethics in 2009

Ethical issues surrounding the provider initiated opt--Out prenatal HIV screening practice in Sub-Saharan Africa: a literature review

artículo científico publicado en 2015

Ethical principles and legal requirements for pediatric research in the EU: an analysis of the European normative and legal framework surrounding pediatric clinical trials

artículo científico publicado en 2009

Ethical signposts for clinical geneticists in secondary variant and incidental finding disclosure discussions

artículo científico publicado en 2015

Ethics of Research Biobanks: Islamic Perspectives

scientific article published on 13 March 2018

Ethics of children's participation in a Saudi biobank: an exploratory survey.

artículo científico publicado en 2015

European Universities' Guidance on Research Integrity and Misconduct.

artículo científico publicado en 2017

Expanding Social Media Use Recommendations to Global, Multicentred, Industry Run Clinical Trials

artículo científico publicado en 2017

Focus group discussions on secondary variants and next-generation sequencing technologies.

artículo científico publicado en 2015

Forensic DNA databases: genetic testing as a societal choice.

artículo científico publicado en 2010

From information to follow-up: Ethical recommendations to facilitate the disclosure of amyloid PET scan results in a research setting.

artículo científico publicado en 2018

Frontline ethical issues in pediatric clinical research: ethical and regulatory aspects of seven current bottlenecks in pediatric clinical research

artículo científico publicado en 2010

Genetic research on stored tissue samples from minors: a systematic review of the ethical literature

article

Genetic testing and counseling in the case of an autism diagnosis: A caregivers perspective.

artículo científico publicado en 2016

Guidance on research integrity: no union in Europe ⬇️

artículo científico publicado el 30 de marzo de 2013

Health, Human Right, and Health Inequalities: Alternative Concepts in Placing Health Research as Justice for Global Health ⬇️

artículo científico publicado el 1 de enero de 2012

Heterogeneity in European research integrity guidance: relying on values or norms?

artículo científico publicado en 2014

How Couples' Experiences prior to the Start of Infertility Treatment with Donor Gametes Influence the Disclosure Decision ⬇️

artículo científico publicado el 31 de julio de 2013

How do Chinese universities address research integrity and misconduct? A review of university documents

scientific article published on 15 May 2019

Human tissue samples for research. A focus group study in adults and teenagers in Flanders

article

Implications of an Autism Spectrum Disorder Diagnosis: An Interview Study of How Physicians Experience the Diagnosis in a Young Child

artículo científico publicado en 2018

Incidental findings in forensics: are we sure that it is a question easy to deal with?

artículo científico publicado en 2020

Integrity in Biomedical Research: A Systematic Review of Studies in China

artículo científico publicado en 2018

Integrity training: conflicting practices.

artículo científico publicado en 2013

Is tissue engineering a new paradigm in medicine? Consequences for the ethical evaluation of tissue engineering research

artículo científico publicado en 2009

Minors and informed consent: a comparative approach

article

New Frontiers and Old Challenges: How to Manage Incidental Findings When Forensic Diagnosis Goes Beyond

scientific article published on 22 September 2020

One size that could fit all: IRBs joint review collaboration as the key to addressing the challenges of multinational research review involving resource-poor countries.

artículo científico

Parents' views and experiences of the autism spectrum disorder diagnosis of their young child: a longitudinal interview study

scientific article published on 04 November 2019

Participation in biobanks for research by incapacitated adults: review and discussion of current guidelines.

artículo científico

Patient rights in EU Member States after the ratification of the Convention on Human Rights and Biomedicine

Perceptions of research integrity and the Chinese situation: In-depth interviews with Chinese biomedical researchers in Europe

scientific article published on 10 August 2019

Physician View and Experience of the Diagnosis of Autism Spectrum Disorder in Young Children.

artículo científico publicado en 2019

Potential Pitfalls in the Evaluation of Ethics Consultation: The Case of Ethical Counseling.

artículo científico publicado en 2016

Predictive genetic testing in minors for adult-onset genetic diseases

artículo científico publicado en 2008

Proceedings of the 4th World Conference on Research Integrity

Regulating trust in pediatric clinical trials

scientific article published on 18 July 2008

Research Integrity Supervision Practices and Institutional Support: A Qualitative Study

artículo científico publicado en 2022

Return of Research Results in the Saudi Biobank: An Exploratory Survey.

artículo científico publicado en 2017

Review of national research ethics regulations and guidelines in Middle Eastern Arab countries ⬇️

artículo científico publicado el 12 de diciembre de 2012

Review of the Ethical Issues of a Biomarker-Based Diagnoses in the Early Stage of Alzheimer's Disease.

artículo científico publicado en 2018

Risks, benefits, solidarity: a framework for the participation of children in genetic biobank research

artículo científico publicado en 2011

Scientific misconduct: also an issue in nursing science?

artículo científico publicado en 2014

Scientists Still Behaving Badly? A Survey Within Industry and Universities.

artículo científico publicado en 2017

Secondary variants--in defense of a more fitting term in the incidental findings debate.

artículo científico publicado en 2013

Shooting a moving target. Researching autism genes: An interview study with professionals.

artículo científico publicado en 2015

Stakeholders' Views on Early Diagnosis for Alzheimer's Disease, Clinical Trial Participation and Amyloid PET Disclosure: A Focus Group Study

scientific article published on 13 March 2019

The communication of secondary variants: interviews with parents whose children have undergone array-CGH testing.

artículo científico publicado en 2014

The ethics of complexity. Genetics and autism, a literature review

artículo científico publicado en 2016

The fetal patient -- ethical aspects of fetal therapy

artículo científico publicado en 2011

The fetal respiratory system as target for antenatal therapy

artículo científico publicado en 2011

The implementation of Directive 2001/20/EC into Belgian law and the specific provisions on pediatric research.

scientific article published on July 2008

The return of individual research findings in paediatric genetic research

artículo científico publicado en 2010

The use of cells from cystic fibrosis patients in research. A model consent form

scholarly article by Caroline Trouet et al published August 2004 in Journal of Cystic Fibrosis

The use of diagnostic collections of DNA for research: interviews at the eight Belgian centers for human genetics.

artículo científico publicado en 2010

To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.

artículo científico

Viewing benefit sharing in global health research through the lens of Aristotelian justice

artículo científico publicado en 2016

What Do the Various Principles of Justice Mean Within the Concept of Benefit Sharing?

artículo científico publicado en 2016

What are the limits of the duty of care? The case of clinical genetics

artículo científico publicado en 2008

What do Islamic institutional fatwas say about medical and research confidentiality and breach of confidentiality?

artículo científico publicado en 2012

When 'sperm' becomes 'donor': transitions in parents' views of the sperm donor

artículo científico publicado en 2014

Why eight EU Member States signed, but not yet ratified the Convention for Human Rights and Biomedicine

Why genomics shouldn't get too personal: in favor of filters: Re: invited comment by Holly K. Tabor et al. in American Journal of Medical Genetics Part A Volume 155

scientific article published on 17 August 2012

Lista de obras de

'Of course he's our child': transitions in social parenthood in donor sperm recipient families

A prospective study of the clinical utility of prenatal chromosomal microarray analysis in fetuses with ultrasound abnormalities and an exploration of a framework for reporting unclassified variants and risk factors.

Access to human tissues for research and product development: From EU regulation to alarming legal developments in Belgium

Access to investigational medicinal products for minors in Europe: ethical and regulatory issues in negotiating children's access to investigational medicines

Amnestic MCI Patients' Perspectives toward Disclosure of Amyloid PET Results in a Research Context.

Amnestic MCI patients' experiences after disclosure of their amyloid PET result in a research context.

An exploratory survey of professionals on the use of stored tissue samples from minors for genetic research.

Attitudes regarding carrier testing in incompetent children: a survey of European clinical geneticists

Attitudes regarding predictive genetic testing in minors: A survey of European clinical geneticists

Attitudes toward medical and genetic confidentiality in the Saudi research biobank: An exploratory survey.

Attitudes towards predictive genetic testing in minors for familial breast cancer: a systematic review

Belgian Doctors' Attitudes on the Management of Patients in Persistent Vegetative State (PVS): Ethical and Regulatory Aspects ⬇️

Benefit sharing in the revised Indian National Ethical Guidelines for Biomedical and Health Research Involving Human Participants

Benefit sharing: an exploration on the contextual discourse of a changing concept.

Biological sample collections from minors for genetic research: a systematic review of guidelines and position papers

Carrier testing in minors: conflicting views

Children and biobanks: a review of the ethical and legal discussion.

Children, biobanks and the scope of parental consent

Confidentiality, informed consent and children's participation in the Saudi biobank governance: a comparative study

Confidentiality, informed consent, and children's participation in research involving stored tissue samples: interviews with medical professionals from the Middle East

Designing and implementing a research integrity promotion plan: Recommendations for research funders

Differing Perceptions Concerning Research Integrity Between Universities and Industry: A Qualitative Study

Disclosing incidental findings in genetics contexts: a review of the empirical ethical research

Diversified harmony: supranational and domestic regulation of pediatric clinical trials in the European Union

Double Trouble: Preventive Genomic Sequencing and the Case of Minors.

EnTIRE: Mapping Normative Frameworks for EThics and Integrity of REsearch

Ethical and Regulatory Issues in Pediatric Research Supporting the Non-Clinical Application of fMR Imaging

Ethical issues surrounding the provider initiated opt--Out prenatal HIV screening practice in Sub-Saharan Africa: a literature review

Ethical principles and legal requirements for pediatric research in the EU: an analysis of the European normative and legal framework surrounding pediatric clinical trials

Ethical signposts for clinical geneticists in secondary variant and incidental finding disclosure discussions

Ethics of Research Biobanks: Islamic Perspectives

Ethics of children's participation in a Saudi biobank: an exploratory survey.

European Universities' Guidance on Research Integrity and Misconduct.

Expanding Social Media Use Recommendations to Global, Multicentred, Industry Run Clinical Trials

Focus group discussions on secondary variants and next-generation sequencing technologies.

Forensic DNA databases: genetic testing as a societal choice.

From information to follow-up: Ethical recommendations to facilitate the disclosure of amyloid PET scan results in a research setting.

Frontline ethical issues in pediatric clinical research: ethical and regulatory aspects of seven current bottlenecks in pediatric clinical research

Genetic research on stored tissue samples from minors: a systematic review of the ethical literature

Genetic testing and counseling in the case of an autism diagnosis: A caregivers perspective.

Guidance on research integrity: no union in Europe ⬇️

Health, Human Right, and Health Inequalities: Alternative Concepts in Placing Health Research as Justice for Global Health ⬇️

Heterogeneity in European research integrity guidance: relying on values or norms?

How Couples' Experiences prior to the Start of Infertility Treatment with Donor Gametes Influence the Disclosure Decision ⬇️

How do Chinese universities address research integrity and misconduct? A review of university documents

Human tissue samples for research. A focus group study in adults and teenagers in Flanders

Implications of an Autism Spectrum Disorder Diagnosis: An Interview Study of How Physicians Experience the Diagnosis in a Young Child

Incidental findings in forensics: are we sure that it is a question easy to deal with?

Integrity in Biomedical Research: A Systematic Review of Studies in China

Integrity training: conflicting practices.

Is tissue engineering a new paradigm in medicine? Consequences for the ethical evaluation of tissue engineering research

Minors and informed consent: a comparative approach

New Frontiers and Old Challenges: How to Manage Incidental Findings When Forensic Diagnosis Goes Beyond

One size that could fit all: IRBs joint review collaboration as the key to addressing the challenges of multinational research review involving resource-poor countries.

Parents' views and experiences of the autism spectrum disorder diagnosis of their young child: a longitudinal interview study

Participation in biobanks for research by incapacitated adults: review and discussion of current guidelines.

Patient rights in EU Member States after the ratification of the Convention on Human Rights and Biomedicine

Perceptions of research integrity and the Chinese situation: In-depth interviews with Chinese biomedical researchers in Europe

Physician View and Experience of the Diagnosis of Autism Spectrum Disorder in Young Children.

Potential Pitfalls in the Evaluation of Ethics Consultation: The Case of Ethical Counseling.

Predictive genetic testing in minors for adult-onset genetic diseases

Proceedings of the 4th World Conference on Research Integrity

Regulating trust in pediatric clinical trials

Research Integrity Supervision Practices and Institutional Support: A Qualitative Study

Return of Research Results in the Saudi Biobank: An Exploratory Survey.

Review of national research ethics regulations and guidelines in Middle Eastern Arab countries ⬇️

Review of the Ethical Issues of a Biomarker-Based Diagnoses in the Early Stage of Alzheimer's Disease.

Risks, benefits, solidarity: a framework for the participation of children in genetic biobank research

Scientific misconduct: also an issue in nursing science?

Scientists Still Behaving Badly? A Survey Within Industry and Universities.

Secondary variants--in defense of a more fitting term in the incidental findings debate.

Shooting a moving target. Researching autism genes: An interview study with professionals.

Stakeholders' Views on Early Diagnosis for Alzheimer's Disease, Clinical Trial Participation and Amyloid PET Disclosure: A Focus Group Study

The communication of secondary variants: interviews with parents whose children have undergone array-CGH testing.

The ethics of complexity. Genetics and autism, a literature review

The fetal patient -- ethical aspects of fetal therapy

The fetal respiratory system as target for antenatal therapy

The implementation of Directive 2001/20/EC into Belgian law and the specific provisions on pediatric research.

The return of individual research findings in paediatric genetic research