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HOw Patients view Extended half-life products: Impressions from real-world experience (The HOPE study)

artículo científico publicado en 2019

Parental perspectives on gene therapy for children with haemophilia: The Exigency study

scientific article published on 20 November 2020

Social networking for adolescents with severe haemophilia.

artículo científico publicado en 2011

Study of physical function in adolescents with haemophilia: The SO-FIT study.

artículo científico

The Kids' immune thrombocytopenia Tool is not suitable for assessing quality of life in children with platelet function disorders

scientific article published on 01 July 2018

The UK haemophilia specialist nurse: Competencies fit for practice in the 21st century

artículo científico publicado en 2020

The burden of bleeds and other clinical determinants on caregivers of children with haemophilia (the BBC Study)

scientific article published on 29 March 2019

The experience of girls and young women with inherited bleeding disorders.

artículo científico publicado en 2013

The impact of psychosocial determinants on caregivers' burden of children with haemophilia (results of the BBC study)

artículo científico publicado en 2019

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