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Bespoke Babies: Genome Editing in Cystic Fibrosis Embryos

artículo científico publicado en 2019

Biobanking in Pediatrics: The Human Nonsubjects Approach

artículo científico publicado el 1 de enero de 2011

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

artículo científico publicado en 2016

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

article

Comparing different scientific approaches to personalized medicine: research ethics and privacy protection.

artículo científico publicado en 2011

Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions

artículo científico publicado en 2016

Dependent rational providers.

artículo científico publicado en 2011

Eliciting preferences on secondary findings: the Preferences Instrument for Genomic Secondary Results.

artículo científico publicado en 2016

Erratum to: How can psychological science inform research about genetic counseling for clinical genomic sequencing?

artículo científico publicado en 2015

Ethical issues in pediatric pharmacogenomics

artículo científico publicado en 2013

Ethical, legal and social implications of incorporating personalized medicine into healthcare

artículo científico publicado en 2015

Ethical, legal, and social implications of incorporating genomic information into electronic health records

artículo científico publicado en 2013

Factors Associated with Attendance after Referral to a Pediatric Weight Management Program.

artículo científico publicado en 2016

Genome-Wide Association Study of Serum Creatinine Levels during Vancomycin Therapy

artículo científico publicado en 2015

Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism

scientific article published on 01 January 2019

How can psychological science inform research about genetic counseling for clinical genomic sequencing?

artículo científico publicado en 2014

Implications of the incidentalome for clinical pharmacogenomics.

artículo científico publicado en 2013

Inclusion of pediatric samples in an opt-out biorepository linking DNA to de-identified medical records: pediatric BioVU.

artículo científico publicado en 2012

Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations

artículo científico publicado en 2019

Mapping the incidentalome: estimating incidental findings generated through clinical pharmacogenomics testing.

artículo científico publicado en 2012

Operational implementation of prospective genotyping for personalized medicine: the design of the Vanderbilt PREDICT project.

artículo científico publicado en 2012

PEDS: developmental milestones--an accurate brief tool for surveillance and screening.

artículo científico publicado en 2007

Parental Perspectives on a Pediatric Human Non-Subjects Biobank

artículo científico publicado en 2012

Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey

scientific article published on 01 July 2018

Patient awareness and approval for an opt-out genomic biorepository.

artículo científico publicado en 2013

Psychological outcomes related to exome and genome sequencing result disclosure: a meta-analysis of seven Clinical Sequencing Exploratory Research (CSER) Consortium studies

artículo científico publicado en 2019

Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US

artículo científico publicado en 2017

Rethinking the "open future" argument against predictive genetic testing of children

scientific article published on 21 March 2019

Return of genomic results to research participants: the floor, the ceiling, and the choices in between

artículo científico publicado en 2014

Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network

artículo científico publicado en 2012

Reviving the conversation around CPR/DNR.

artículo científico publicado en 2010

State-offered ethnically targeted reproductive genetic testing.

artículo científico publicado en 2015

The Responsibility to Recontact Research Participants after Reinterpretation of Genetic and Genomic Research Results

scientific article published on 01 April 2019

“Human Non-Subjects Research”: Privacy and Compliance

article