Lista de obras -

A prospective observational study to assess clinical decision-making, prognosis, quality of life and satisfaction with care in patients with relapsed/refractory multiple myeloma: the CLARITY study protocol.

artículo científico publicado en 2018

Adherence and future discontinuation of tyrosine kinase inhibitors in chronic phase chronic myeloid leukemia. A patient-based survey on 1133 patients

artículo científico publicado en 2015

Adherence to treatment is a complex and multifaceted issue that can substantially alter the outcome of chronic myeloid leukemia patients treated with tyrosine kinase inhibitors

artículo científico publicado en 2012

Are chronic myeloid leukemia patients ready to stop long-term treatment?

artículo científico publicado en 2017

Asking patients with hematological malignancies: 'how do you feel?' Does it really provide independent prognostic information for survival?

artículo científico publicado en 2009

Assessing HRQOL: a neglected issue for high-grade glioma

artículo científico publicado en 2003

Beyond the development of health-related quality-of-life (HRQOL) measures: a checklist for evaluating HRQOL outcomes in cancer clinical trials--does HRQOL evaluation in prostate cancer research inform clinical decision making?

artículo científico publicado en 2003

Controlled-release oxycodone for the treatment of bortezomib-induced neuropathic pain in patients with multiple myeloma

artículo científico publicado en 2012

Corrigendum to “Does a patient’s self-reported health-related quality of life predict survival beyond key biomedical data in advanced colorectal cancer?” [Eur. J. Cancer 42 (2006) 42–49]

article

Cross-cultural development of an EORTC questionnaire to assess health-related quality of life in patients with testicular cancer: the EORTC QLQ-TC26

artículo científico publicado en 2013

Cross-cultural development of the EORTC QLQ-SWB36: a stand-alone measure of spiritual wellbeing for palliative care patients with cancer

artículo científico

Cultural issues in assessing quality of life in cancer clinical trials.

artículo científico publicado en 2002

Developing a core set of patient-reported outcomes in pancreatic cancer: A Delphi survey

artículo científico publicado en 2016

Development of an EORTC quality of life phase III module measuring cancer-related fatigue (EORTC QLQ-FA13).

artículo científico publicado en 2012

Different perception of surgical risks between physicians and patients undergoing laparoscopic cholecystectomy

artículo científico publicado en 2009

Distribution- and anchor-based methods to determine the minimally important difference on patient-reported outcome questionnaires in oncology: a structured review

article published in 2018

Does a patient's self-reported health-related quality of life predict survival beyond key biomedical data in advanced colorectal cancer?

artículo científico publicado en 2005

Early Palliative Care In Patients With Hematological Malignancies: Where Do We Go From Here?

artículo científico publicado en 2017

Evaluating methodological quality of Prognostic models Including Patient-reported HeAlth outcomes iN oncologY (EPIPHANY): a systematic review protocol

artículo científico publicado en 2018

Evaluation of patient-reported outcome protocol content and reporting in UK cancer clinical trials: the EPiC study qualitative protocol ⬇️

artículo científico publicado en 2018

External beam radiotherapy in prostate cancer patients: short- and long-term health-related quality of life issues

artículo científico publicado en 2003

Health related quality of life in Middle Eastern children with beta-thalassemia

artículo científico publicado en 2012

Health related quality of life in prostate carcinoma patients: a systematic review of randomized controlled trials

artículo científico publicado en 2003

Health-related quality of life and burden of fatigue in patients with primary immune thrombocytopenia by phase of disease

artículo científico publicado en 2016

Health-related quality of life and symptom assessment in patients with myelodysplastic syndromes

artículo científico publicado en 2009

Health-related quality of life and symptom assessment in randomized controlled trials of patients with leukemia and myelodysplastic syndromes: What have we learned?

artículo científico

Health-related quality of life assessment and reported outcomes in leukaemia randomised controlled trials - a systematic review to evaluate the added value in supporting clinical decision making

artículo científico publicado en 2008

Health-related quality of life in chronic myeloid leukemia patients receiving long-term therapy with imatinib compared with the general population

artículo científico publicado en 2011

Health-related quality of life in lower-risk MDS patients compared with age- and sex-matched reference populations: a European LeukemiaNet study.

artículo científico publicado en 2018

Health-related quality of life in non-small-cell lung cancer: methodologic issues in randomized controlled trials

artículo científico publicado en 2003

Health-related quality of life in patients with chronic myeloid leukemia receiving first-line therapy with nilotinib.

artículo científico publicado en 2018

Health-related quality of life in survivors of locally advanced breast cancer: an international randomised controlled phase III trial

artículo científico publicado en 2005

Health-related quality of life in transfusion-dependent patients with myelodysplastic syndromes: a prospective study to assess the impact of iron chelation therapy

artículo científico publicado en 2014

Health-related quality of life outcomes in chronic myeloid leukemia patients treated with second generation tyrosine kinase inhibitors: do we know enough?

artículo científico publicado en 2016

Health-related quality of life outcomes in disease-free survivors of mid-low rectal cancer after curative surgery

artículo científico publicado en 2008

Health-related quality of life parameters as prognostic factors in a nonmetastatic breast cancer population: an international multicenter study

artículo científico publicado en 2004

Imatinib treatment in chronic myelogenous leukemia: What have we learned so far?

artículo científico publicado en 2010

Implementing patient-reported health-related quality-of-life data in cancer routine practice to improve accuracy of prognosis. Are we there yet?

artículo científico publicado en 2009

Improved Outcomes With Retinoic Acid and Arsenic Trioxide Compared With Retinoic Acid and Chemotherapy in Non-High-Risk Acute Promyelocytic Leukemia: Final Results of the Randomized Italian-German APL0406 Trial.

artículo científico publicado en 2016

Improving accuracy of prognosis in patients with myelodysplastic syndromes using self-reported quality of life data. Opportunities for a new research agenda in developing prognostic models

artículo científico publicado en 2016

International Society for Quality of Life Research commentary on the draft European Medicines Agency reflection paper on the use of patient-reported outcome (PRO) measures in oncology studies ⬇️

artículo científico publicado en 2015

International development of an EORTC questionnaire for assessing health-related quality of life in chronic myeloid leukemia patients: the EORTC QLQ-CML24.

artículo científico publicado en 2013

International development of four EORTC disease-specific quality of life questionnaires for patients with Hodgkin lymphoma, high- and low-grade non-Hodgkin lymphoma and chronic lymphocytic leukaemia

artículo científico publicado en 2017

International evaluation of the psychometrics of health-related quality of life questionnaires for use among long-term survivors of testicular and prostate cancer ⬇️

artículo científico publicado en 2017

Intolerance to tyrosine kinase inhibitors in chronic myeloid leukemia: the possible role of ponatinib.

artículo científico publicado en 2018

Long-term health-related quality of life evaluated more than 20 years after hematopoietic stem cell transplantation for thalassemia

artículo científico publicado en 2013

Methodological issues in designing and reporting health-related quality of life in cancer clinical trials: the challenge of brain cancer studies

artículo científico publicado en 2012

Motor disability in the setting of oral anticoagulant therapy

artículo científico publicado en 2011

Moving towards patient-centered decision-making in chronic myeloid leukemia: assessment of quality of life and symptom burden

artículo científico publicado en 2014

Overcoming barriers to the implementation of patient-reported outcomes in cancer clinical trials: the PROMOTION Registry

artículo científico publicado en 2014

Pain management in hematological patients with major organ dysfunctions and comorbid illnesses

artículo científico

Patient- versus physician-reporting of symptoms and health status in chronic myeloid leukemia

artículo científico publicado en 2013

Patient-reported outcomes for the myelodysplastic syndromes: a new MDS-specific measure of quality of life

artículo científico publicado en 2014

Patient-reported outcomes in acute leukemia: a roadmap for future research

artículo científico publicado en 2014

Patient-reported outcomes in hematology: is it time to focus more on them in clinical trials and hematology practice?

artículo científico

Patient-reported outcomes in randomised controlled trials of colorectal cancer: an analysis determining the availability of robust data to inform clinical decision-making

artículo científico publicado en 2015

Patient-reported outcomes in randomised controlled trials of gynaecological cancers: investigating methodological quality and impact on clinical decision-making ⬇️

artículo científico

Patient-reported outcomes in randomised controlled trials of prostate cancer: methodological quality and impact on clinical decision making

artículo científico publicado en 2014

Patient-reported outcomes in randomized clinical trials: development of ISOQOL reporting standards

artículo científico

Patient-reported outcomes in relapsed/refractory multiple myeloma: a systematic review.

artículo científico publicado en 2018

Personal history and quality of life in chronic myeloid leukemia patients: a cross-sectional study using narrative medicine and quantitative analysis

artículo científico publicado en 2016

Physicians' attitude towards selection of second line therapy with nilotinib and dasatinib in chronic myeloid leukemia patients

artículo científico publicado en 2017

Predicting survival in advanced hematologic malignancies: do patient-reported symptoms matter?

artículo científico publicado en 2012

Prevalence, severity and correlates of fatigue in newly diagnosed patients with myelodysplastic syndromes

artículo científico publicado en 2014

Profiling chronic myeloid leukemia patients reporting intentional and unintentional non-adherence to lifelong therapy with tyrosine kinase inhibitors

artículo científico publicado en 2013

Prognostic value of health-related quality-of-life data in predicting survival in patients with anaplastic oligodendrogliomas, from a phase III EORTC brain cancer group study

artículo científico publicado en 2007

Prognostic value of self-reported fatigue on overall survival in patients with myelodysplastic syndromes: a multicentre, prospective, observational, cohort study

artículo científico publicado en 2015

Progressive arterial occlusive disease (PAOD) and pulmonary arterial hypertension (PAH) as new adverse events of second generation TKIs in CML treatment: who's afraid of the big bad wolf?

artículo científico publicado en 2012

Prospective assessment of health-related quality of life in pediatric patients with beta-thalassemia following hematopoietic stem cell transplantation

artículo científico publicado en 2010

Prospective international validation of the Quality of Life in Myelodysplasia Scale (QUALMS).

artículo científico publicado en 2016

Psychological well-being and social support in chronic myeloid leukemia patients receiving lifelong targeted therapies

artículo científico publicado en 2016

Pushing the boundaries of care in myelodysplastic syndromes: Physical exercise to improve fatigue and health-related quality of life outcomes

artículo científico publicado en 2016

Quality of life and symptom assessment in randomized clinical trials of bladder cancer: A systematic review

artículo científico publicado en 2015

Quality of life in breast cancer patients: measurement issues in cancer clinical trials

artículo científico publicado en 2002

Quality of patient-reported outcome reporting across cancer randomized controlled trials according to the CONSORT patient-reported outcome extension: A pooled analysis of 557 trials

artículo científico publicado en 2015

Reassessing the approach to informed consent: the case of unrelated hematopoietic stem cell transplantation in adult thalassemia patients

artículo científico publicado en 2014

Recruiting long-term survivors of European Organisation for Research and Treatment of Cancer phase III clinical trials into quality of life studies: challenges and opportunities

artículo científico publicado en 2014

Reply to B. Kurland et al.

artículo científico publicado en 2016

Reply to M. Koehler et al.

artículo científico publicado en 2015

Sexual health in patients with hematological malignancies: a neglected issue

article

Socioeconomic burden of participation in clinical trials in patients with myeloproliferative neoplasms

artículo científico publicado en 2017

Standards are needed for quality of life clinical trials

artículo científico publicado en 2002

Symptoms and patient-reported well-being: do they predict survival in malignant pleural mesothelioma? A prognostic factor analysis of EORTC-NCIC 08983: randomized phase III study of cisplatin with or without raltitrexed in patients with malignant pl

artículo científico publicado en 2007

Systematic Review of Radiation Therapy Toxicity Reporting in Randomized Controlled Trials of Rectal Cancer: A Comparison of Patient-Reported Outcomes and Clinician Toxicity Reporting ⬇️

artículo científico publicado en 2015

Systematic Review of the Side Effects Associated With Anti-HER2-Targeted Therapies Used in the Treatment of Breast Cancer, on Behalf of the EORTC Quality of Life Group

artículo científico publicado en 2015

Systematic evaluation of patient-reported outcome (PRO) protocol content and reporting in UK cancer clinical trials: the EPiC study protocol ⬇️

artículo científico publicado en 2016

Systematic review of the side effects associated with tyrosine kinase inhibitors used in the treatment of gastrointestinal stromal tumours on behalf of the EORTC Quality of Life Group

artículo científico publicado en 2014

The CONSORT Patient-Reported Outcome (PRO) extension: implications for clinical trials and practice

artículo científico publicado en 2013

The added value of propensity score matching when using health-related quality of life reference data

artículo científico publicado en 2013

The case for an international patient-reported outcomes measurement information system (PROMIS®) initiative

artículo científico publicado en 2013

The level of patient-reported outcome reporting in randomised controlled trials of brain tumour patients: a systematic review

artículo científico publicado en 2014

The prevention of oral mucositis in patients with blood cancers: current concepts and emerging landscapes

artículo científico

The prognostic significance of patient-reported outcomes in cancer clinical trials

artículo científico publicado en 2008

The value of quality of life assessment in chronic myeloid leukemia patients receiving tyrosine kinase inhibitors.

artículo científico publicado en 2016

Time to improve health-related quality of life outcomes in patients with acute promyelocytic leukemia

artículo científico publicado en 2015

Towards a better understanding of the relationship between side effects of analgesia and quality of life in patients with multiple myeloma

artículo científico publicado en 2015

Transfusions at home in patients with myelodysplastic syndromes

artículo científico publicado en 2012

Tyrosine-kinase inhibitors and patient-reported outcomes in chronic myeloid leukemia: a systematic review

artículo científico publicado en 2012

Using patient-reported health status to improve prognostic assessment in patients with acute myeloid leukemia: current challenges and future applications

artículo científico publicado en 2013

Validation of patient's self-reported social functioning as an independent prognostic factor for survival in metastatic colorectal cancer patients: results of an international study by the Chronotherapy Group of the European Organisation for Researc

artículo científico publicado en 2008

Variability and sample size requirements for health-related quality-of-life measures: understanding the challenges facing investigators

artículo científico publicado en 2005

Which health-related quality of life aspects are important to patients with chronic myeloid leukemia receiving targeted therapies and to health care professionals? GIMEMA and EORTC Quality of Life Group

artículo científico publicado en 2012

Lista de obras de

A prospective observational study to assess clinical decision-making, prognosis, quality of life and satisfaction with care in patients with relapsed/refractory multiple myeloma: the CLARITY study protocol.

Adherence and future discontinuation of tyrosine kinase inhibitors in chronic phase chronic myeloid leukemia. A patient-based survey on 1133 patients

Adherence to treatment is a complex and multifaceted issue that can substantially alter the outcome of chronic myeloid leukemia patients treated with tyrosine kinase inhibitors

Are chronic myeloid leukemia patients ready to stop long-term treatment?

Asking patients with hematological malignancies: 'how do you feel?' Does it really provide independent prognostic information for survival?

Assessing HRQOL: a neglected issue for high-grade glioma

Beyond the development of health-related quality-of-life (HRQOL) measures: a checklist for evaluating HRQOL outcomes in cancer clinical trials--does HRQOL evaluation in prostate cancer research inform clinical decision making?

Controlled-release oxycodone for the treatment of bortezomib-induced neuropathic pain in patients with multiple myeloma

Corrigendum to “Does a patient’s self-reported health-related quality of life predict survival beyond key biomedical data in advanced colorectal cancer?” [Eur. J. Cancer 42 (2006) 42–49]

Cross-cultural development of an EORTC questionnaire to assess health-related quality of life in patients with testicular cancer: the EORTC QLQ-TC26

Cross-cultural development of the EORTC QLQ-SWB36: a stand-alone measure of spiritual wellbeing for palliative care patients with cancer

Cultural issues in assessing quality of life in cancer clinical trials.

Developing a core set of patient-reported outcomes in pancreatic cancer: A Delphi survey

Development of an EORTC quality of life phase III module measuring cancer-related fatigue (EORTC QLQ-FA13).

Different perception of surgical risks between physicians and patients undergoing laparoscopic cholecystectomy

Distribution- and anchor-based methods to determine the minimally important difference on patient-reported outcome questionnaires in oncology: a structured review

Does a patient's self-reported health-related quality of life predict survival beyond key biomedical data in advanced colorectal cancer?

Early Palliative Care In Patients With Hematological Malignancies: Where Do We Go From Here?

Evaluating methodological quality of Prognostic models Including Patient-reported HeAlth outcomes iN oncologY (EPIPHANY): a systematic review protocol

Evaluation of patient-reported outcome protocol content and reporting in UK cancer clinical trials: the EPiC study qualitative protocol ⬇️

External beam radiotherapy in prostate cancer patients: short- and long-term health-related quality of life issues

Health related quality of life in Middle Eastern children with beta-thalassemia

Health related quality of life in prostate carcinoma patients: a systematic review of randomized controlled trials

Health-related quality of life and burden of fatigue in patients with primary immune thrombocytopenia by phase of disease

Health-related quality of life and symptom assessment in patients with myelodysplastic syndromes

Health-related quality of life and symptom assessment in randomized controlled trials of patients with leukemia and myelodysplastic syndromes: What have we learned?

Health-related quality of life assessment and reported outcomes in leukaemia randomised controlled trials - a systematic review to evaluate the added value in supporting clinical decision making

Health-related quality of life in chronic myeloid leukemia patients receiving long-term therapy with imatinib compared with the general population

Health-related quality of life in lower-risk MDS patients compared with age- and sex-matched reference populations: a European LeukemiaNet study.

Health-related quality of life in non-small-cell lung cancer: methodologic issues in randomized controlled trials

Health-related quality of life in patients with chronic myeloid leukemia receiving first-line therapy with nilotinib.

Health-related quality of life in survivors of locally advanced breast cancer: an international randomised controlled phase III trial

Health-related quality of life in transfusion-dependent patients with myelodysplastic syndromes: a prospective study to assess the impact of iron chelation therapy

Health-related quality of life outcomes in chronic myeloid leukemia patients treated with second generation tyrosine kinase inhibitors: do we know enough?

Health-related quality of life outcomes in disease-free survivors of mid-low rectal cancer after curative surgery

Health-related quality of life parameters as prognostic factors in a nonmetastatic breast cancer population: an international multicenter study

Imatinib treatment in chronic myelogenous leukemia: What have we learned so far?

Implementing patient-reported health-related quality-of-life data in cancer routine practice to improve accuracy of prognosis. Are we there yet?

Improved Outcomes With Retinoic Acid and Arsenic Trioxide Compared With Retinoic Acid and Chemotherapy in Non-High-Risk Acute Promyelocytic Leukemia: Final Results of the Randomized Italian-German APL0406 Trial.

Improving accuracy of prognosis in patients with myelodysplastic syndromes using self-reported quality of life data. Opportunities for a new research agenda in developing prognostic models

International Society for Quality of Life Research commentary on the draft European Medicines Agency reflection paper on the use of patient-reported outcome (PRO) measures in oncology studies ⬇️

International development of an EORTC questionnaire for assessing health-related quality of life in chronic myeloid leukemia patients: the EORTC QLQ-CML24.

International development of four EORTC disease-specific quality of life questionnaires for patients with Hodgkin lymphoma, high- and low-grade non-Hodgkin lymphoma and chronic lymphocytic leukaemia

International evaluation of the psychometrics of health-related quality of life questionnaires for use among long-term survivors of testicular and prostate cancer ⬇️

Intolerance to tyrosine kinase inhibitors in chronic myeloid leukemia: the possible role of ponatinib.

Long-term health-related quality of life evaluated more than 20 years after hematopoietic stem cell transplantation for thalassemia

Methodological issues in designing and reporting health-related quality of life in cancer clinical trials: the challenge of brain cancer studies

Motor disability in the setting of oral anticoagulant therapy

Moving towards patient-centered decision-making in chronic myeloid leukemia: assessment of quality of life and symptom burden

Overcoming barriers to the implementation of patient-reported outcomes in cancer clinical trials: the PROMOTION Registry

Pain management in hematological patients with major organ dysfunctions and comorbid illnesses

Patient- versus physician-reporting of symptoms and health status in chronic myeloid leukemia

Patient-reported outcomes for the myelodysplastic syndromes: a new MDS-specific measure of quality of life

Patient-reported outcomes in acute leukemia: a roadmap for future research

Patient-reported outcomes in hematology: is it time to focus more on them in clinical trials and hematology practice?

Patient-reported outcomes in randomised controlled trials of colorectal cancer: an analysis determining the availability of robust data to inform clinical decision-making

Patient-reported outcomes in randomised controlled trials of gynaecological cancers: investigating methodological quality and impact on clinical decision-making ⬇️

Patient-reported outcomes in randomised controlled trials of prostate cancer: methodological quality and impact on clinical decision making

Patient-reported outcomes in randomized clinical trials: development of ISOQOL reporting standards

Patient-reported outcomes in relapsed/refractory multiple myeloma: a systematic review.

Personal history and quality of life in chronic myeloid leukemia patients: a cross-sectional study using narrative medicine and quantitative analysis

Physicians' attitude towards selection of second line therapy with nilotinib and dasatinib in chronic myeloid leukemia patients

Predicting survival in advanced hematologic malignancies: do patient-reported symptoms matter?

Prevalence, severity and correlates of fatigue in newly diagnosed patients with myelodysplastic syndromes

Profiling chronic myeloid leukemia patients reporting intentional and unintentional non-adherence to lifelong therapy with tyrosine kinase inhibitors

Prognostic value of health-related quality-of-life data in predicting survival in patients with anaplastic oligodendrogliomas, from a phase III EORTC brain cancer group study

Prognostic value of self-reported fatigue on overall survival in patients with myelodysplastic syndromes: a multicentre, prospective, observational, cohort study

Progressive arterial occlusive disease (PAOD) and pulmonary arterial hypertension (PAH) as new adverse events of second generation TKIs in CML treatment: who's afraid of the big bad wolf?

Prospective assessment of health-related quality of life in pediatric patients with beta-thalassemia following hematopoietic stem cell transplantation

Prospective international validation of the Quality of Life in Myelodysplasia Scale (QUALMS).

Psychological well-being and social support in chronic myeloid leukemia patients receiving lifelong targeted therapies

Pushing the boundaries of care in myelodysplastic syndromes: Physical exercise to improve fatigue and health-related quality of life outcomes

Quality of life and symptom assessment in randomized clinical trials of bladder cancer: A systematic review

Quality of life in breast cancer patients: measurement issues in cancer clinical trials

Quality of patient-reported outcome reporting across cancer randomized controlled trials according to the CONSORT patient-reported outcome extension: A pooled analysis of 557 trials

Reassessing the approach to informed consent: the case of unrelated hematopoietic stem cell transplantation in adult thalassemia patients

Recruiting long-term survivors of European Organisation for Research and Treatment of Cancer phase III clinical trials into quality of life studies: challenges and opportunities

Reply to B. Kurland et al.

Reply to M. Koehler et al.