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"You've got to understand community": community perceptions on "breaking the disconnect" between researchers and communities

artículo científico publicado en 2007

A Journey in Public Health Ethics

artículo científico publicado en 2017

A case study of research ethics capacity development in Africa

artículo científico publicado en 2007

A case study of researchers’ knowledge and opinions about the ethical review process for research in Botswana

artículo científico publicado en 2016

A comparison of online versus on-site training in health research methodology: a randomized study

artículo científico publicado en 2011

A pilot study of simple interventions to improve informed consent in clinical research: feasibility, approach, and results

artículo científico publicado en 2014

A randomized study of multimedia informational aids for research on medical practices: Implications for informed consent

artículo científico publicado en 2016

A study to evaluate the effect of investigator attendance on the efficiency of IRB review.

artículo científico publicado en 2008

ASSESSMENT OF THE ETHICAL REVIEW PROCESS IN SUDAN

scientific article published in 2007

Access to health insurance: experiences and attitudes of those with genetic versus non-genetic medical conditions.

artículo científico publicado en 2007

Access to treatment in HIV prevention trials: perspectives from a South African community

artículo científico publicado en 2009

Addressing low-risk comparative effectiveness research in proposed changes to US federal regulations governing research

artículo científico publicado en 2012

Alternative consent models for comparative effectiveness studies: Views of patients from two institutions

article published in 2016

An ethics framework for a learning health care system: a departure from traditional research ethics and clinical ethics

artículo científico publicado en 2013

An ethics framework for public health and avian influenza pandemic preparedness.

artículo científico publicado en 2005

An intervention to improve cancer patients' understanding of early-phase clinical trials.

artículo científico publicado en 2009

Applying ethical principles to international community-based research: a case study from the Consortium to Respond Effectively to the AIDS-TB Epidemic (CREATE) .

artículo científico publicado en 2014

Are Research Subjects Adequately Protected? A Review and Discussion of Studies Conducted by the Advisory Committee on Human Radiation Experiments

artículo científico publicado en 2007

Are research subjects adequately protected? A review and discussion of studies conducted by the Advisory Committee on Human Radiation Experiments

artículo científico publicado en 1996

Assessing the readability of non-English-language consent forms: the case of Kiswahili for research conducted in Kenya ⬇️

artículo científico publicado el 1 de julio de 2010

Assessing training needs in health research ethics: a case study from the University of Zambia School of Medicine

artículo científico publicado en 2020

Assessment of the ethical review process in Sudan

artículo científico publicado en 2007

Attending to local justice: lessons from pediatric HIV.

artículo científico publicado en 2002

Bioethics consultation in the private sector

scientific article published on 01 May 2002

Bioethics training programmes for Africa: evaluating professional and bioethics-related achievements of African trainees after a decade of Fogarty NIH investment

artículo científico publicado en 2016

Budget- and priority-setting criteria at state health agencies in times of austerity: a mixed-methods study

scientific article published on 17 April 2014

Building trust for engagement of minorities in human subjects research: is the glass half full, half empty, or the wrong size?

artículo científico publicado en 2013

Can Physicians Work in US Immigration Detention Facilities While Upholding Their Hippocratic Oath?

scientific article published on 30 August 2019

Categorizing empirical research in bioethics: why count the ways?

artículo científico publicado en 2009

Challenges for mental health services raised by disaster preparedness: mapping the ethical and therapeutic terrain

artículo científico publicado en 2011

Clinical trials and medical care: defining the therapeutic misconception

artículo científico publicado en 2007

Community engagement strategies in the original and renewal applications for CTSA grant funding

artículo científico publicado en 2013

Conducting empirical research on informed consent: challenges and questions.

artículo científico publicado en 2003

Controversy and quality improvement: lingering questions about ethics, oversight, and patient safety research

artículo científico publicado en 2008

Decision-making and motivation to participate in biomedical research in southwest Nigeria

artículo científico publicado en 2012

Deliberative Engagement Methods for Patient-Centered Outcomes Research

artículo científico publicado en 2017

Development of a research ethics knowledge and analytical skills assessment tool

artículo científico publicado en 2011

Disclosure of personal medical information: differences among parents and affected adults for genetic and nongenetic conditions

artículo científico publicado en 2005

Disclosure, confidentiality, and families: Experiences and attitudes of those with genetic versus nongenetic medical conditions ⬇️

artículo científico publicado el 15 de mayo de 2003

Early phase clinical trials: communicating the uncertainties of 'magnitude of benefit' and 'likelihood of benefit'.

artículo científico publicado en 2008

Ebola, ethics, and public health: what next?

artículo científico publicado en 2014

Ethical Issues in Patient Safety Research: A Systematic Review of the Literature

artículo científico

Ethical challenges in research on post-abortion care with adolescents: experiences of researchers in Zambia

artículo científico publicado en 2018

Ethical conduct of radiology research with human participants

artículo científico publicado en 2006

Ethical issues raised in addressing the needs of people with serious mental disorders in complex emergencies

artículo científico publicado en 2012

Ethical oversight of research in developing countries

artículo científico publicado en 2003

Ethics Issues Arising in the Transition to Learning Health Care Systems: Results from Interviews with Leaders from 25 Health Systems

artículo científico publicado en 2016

Ethics and Learning Health Care: The Essential roles of engagement, transparency, and accountability.

artículo científico publicado en 2018

Ethics and informed consent for comparative effectiveness research with prospective electronic clinical data

artículo científico publicado en 2013

Ethics and obesity prevention: ethical considerations in 3 approaches to reducing consumption of sugar-sweetened beverages

article by Nancy E Kass et al published May 2014 in American Journal of Public Health

Ethics and severe pandemic influenza: maintaining essential functions through a fair and considered response

artículo científico publicado en 2008

Ethics challenges and guidance related to research involving adolescent post-abortion care: a scoping review.

artículo científico publicado en 2018

Ethics, Refugees, and the President's Executive Order.

artículo científico publicado en 2017

Ethics, regulation, and comparative effectiveness research: time for a change

artículo científico publicado en 2014

Evaluating institutional capacity for research ethics in Africa: a case study from Botswana.

artículo científico publicado en 2013

Evaluating international research ethics capacity development: an empirical approach

artículo científico publicado en 2014

Excluding particular information from consent forms

artículo científico publicado en 2005

Exploring Institutional Research Ethics Systems: A Case Study From Uganda

artículo científico publicado en 2015

Faculty beliefs, perceptions, and level of community involvement in their research: a survey at one urban academic institution

artículo científico publicado en 2010

Faculty perspectives on community-based research: "I see this still as a journey".

artículo científico publicado en 2009

Forecast for the Physician Payment Sunshine Act: partly to mostly cloudy?

scientific article published on December 2014

Genetic screening and disability insurance: what can we learn from the health insurance experience?

scientific article published on 01 January 2007

Health information, the HIPAA privacy rule, and health care: what do physicians think?

artículo científico publicado en 2005

How are PCORI-funded researchers engaging patients in research and what are the ethical implications?

artículo científico publicado en 2016

Human rights research and ethics review: protecting individuals or protecting the state?

artículo científico publicado en 2012

Human rights, politics, and reviews of research ethics

artículo científico publicado en 2002

Improving informed consent: the medium is not the message.

artículo científico publicado en 2003

Improving institutional research ethics capacity assessments: lessons from sub-Saharan Africa

artículo científico publicado en 2018

Informed consent for comparative effectiveness trials

artículo científico publicado en 2014

Informed consent for dementia research: the study enrollment encounter.

artículo científico publicado en 2007

Informed consent, comparative effectiveness, and learning health care

artículo científico publicado en 2014

Investigator Disclosure and Advanced Cancer Patient Understanding of Informed Consent and Prognosis in Phase I Clinical Trials

Learning Is Not Enough: Earning Institutional Trustworthiness Through Knowledge Translation

journal article; published in The American Journal of Bioethics in 2018

Learning health care systems and justice

artículo científico publicado en 2011

Length and complexity of US and international HIV consent forms from federal HIV network trials

artículo científico publicado en 2011

Medical privacy and the disclosure of personal medical information: the beliefs and experiences of those with genetic and other clinical conditions.

artículo científico publicado en 2004

Motivations, understanding, and voluntariness in international randomized trials

artículo científico publicado en 2005

Nomenclature and definitions for emergency department human immunodeficiency virus (HIV) testing: report from the 2007 conference of the National Emergency Department HIV Testing Consortium

artículo científico publicado en 2008

On the importance of research ethics and mentoring

artículo científico publicado en 2002

Our two cents: research ethics consultation at Johns Hopkins Bloomberg School of Public Health

artículo científico publicado en 2008

Outcome of a research ethics training workshop among clinicians and scientists in a Nigerian university

artículo científico publicado en 2008

Participants' perceptions of research benefits in an African genetic epidemiology study

artículo científico publicado en 2011

Participation in pedigree studies and the risk of impeded access to health insurance.

artículo científico publicado en 1993

Patient engagement in patient-centered outcomes research: challenges, facilitators and actions to strengthen the field

artículo científico publicado en 2017

Patients' Views Concerning Research on Medical Practices: Implications for Consent

artículo científico publicado en 2015

Patients' perceptions of research in emergency settings: a study of survivors of sudden cardiac death

artículo científico publicado en 2008

Policy options for prenatal screening programs for HIV: the preferences of inner-city pregnant women.

artículo científico publicado en 1992

Post-consent assessment of dental subjects' understanding of informed consent in oral health research in Nigeria

artículo científico publicado en 2009

Prenatal HIV-antibody testing and the meaning of consent.

artículo científico publicado en 1994

Public health ethics: from foundations and frameworks to justice and global public health

artículo científico publicado en 2004

Public health ethics: mapping the terrain

artículo científico publicado en 2002

Purpose and benefits of early phase cancer trials: what do oncologists say? What do patients hear?

artículo científico publicado en 2008

Quality, Safety, and Institutional Review Boards: Navigating Ethics and Oversight in Applied Health Systems Research ⬇️

artículo científico publicado el 1 de marzo de 2011

Randomized comparison of two interventions to enhance understanding during the informed consent process for research

artículo científico publicado en 2021

Rapid estimate of adult literacy in medicine: feasible by telephone?

artículo científico publicado en 2010

Regulation and comparative effectiveness research--reply

artículo científico publicado en 2014

Repeated assessments of informed consent comprehension among HIV-infected participants of a three-year clinical trial in Botswana

artículo científico publicado en 2011

Research Ethics Committees in Africa: Authors' Reply.

artículo científico publicado en 2007

Research Ethics Consultation at the Johns Hopkins Bloomberg School of Public Health.

artículo científico publicado en 2009

Research ethics capacity building in Sub-Saharan Africa: a review of NIH Fogarty-funded programs 2000–2012.

artículo científico publicado en 2014

Research ethics capacity development in Africa: exploring a model for individual success

artículo científico publicado en 2012

Response to Open Peer Commentaries for “Ethical Considerations of Providing Screening Tests to Individuals When Evidence is Insufficient to Support Screening Populations”

journal article; published in The American Journal of Bioethics in 2009

Screening in the dark: ethical considerations of providing screening tests to individuals when evidence is insufficient to support screening populations

artículo científico publicado en 2009

Setting budgets and priorities at state health agencies

artículo científico publicado en 2015

Stakeholder perspectives regarding alternate approaches to informed consent for comparative effectiveness research

scientific article published on 05 December 2017

Stakeholders' Views of Alternatives to Prospective Informed Consent for Minimal-Risk Pragmatic Comparative Effectiveness Trials

artículo científico publicado en 2015

The OHRP and SUPPORT

artículo científico publicado en 2013

The ethical review of health care quality improvement initiatives: findings from the field.

artículo científico publicado en 2010

The ethics of contact tracing programs and their implications for women

scientific article published on 01 January 1998

The ethics of health systems research in low- and middle-income countries: a call to action

artículo científico publicado en 2014

The features and qualities of online training modules in research ethics: a case study evaluating their institutional application for the University of Botswana

artículo científico publicado en 2019

The influence of HIV serostatus on physicians' clinical decisions

artículo científico publicado en 1994

The informed consent process in a rural African setting: A case study of the kassena-nankana district of northern Ghana

artículo científico publicado en 2006

The public's role in COVID-19 vaccination: Human-centered recommendations to enhance pandemic vaccine awareness, access, and acceptance in the United States

artículo científico publicado en 2020

The research-treatment distinction: a problematic approach for determining which activities should have ethical oversight

artículo científico publicado en 2013

The structure and function of research ethics committees in Africa: a case study.

artículo científico publicado en 2007

The use of CT for screening: a national survey of radiologists' activities and attitudes

artículo científico publicado en 2008

The use of medical records in research: what do patients want?

artículo científico publicado en 2003

The value of unhealthy eating and the ethics of healthy eating policies

artículo científico publicado en 2014

The views of quality improvement professionals and comparative effectiveness researchers on ethics, IRBs, and oversight

artículo científico publicado en 2015

Toward a more comprehensive approach to protecting human subjects: the interface of data safety monitoring boards and institutional review boards in randomized clinical trials.

artículo científico publicado en 1998

Tradeoffs in resource allocation at state health agencies

artículo científico publicado en 2014

Translating Professional Obligations to Care for Patients With Ebola Virus Disease Into Practice in Nonepidemic Settings

artículo científico publicado en 2015

Understanding the supports of and challenges to community engagement in the CTSAs

artículo científico publicado en 2014

Variation in local institutional review board evaluations of a multicenter patient safety study

artículo científico

Views of US researchers about informed consent in international collaborative research

artículo científico publicado en 2005

What allows a health care system to become a learning health care system: Results from interviews with health system leaders

scientific article published on 21 October 2016

What patients say about medical research

artículo científico publicado en 1998

When a serious adverse event in research occurs, how do other volunteers react?

artículo científico publicado en 2011

Why mothers choose to enrol their children in malaria clinical studies and the involvement of relatives in decision making: evidence from Malawi

artículo científico publicado en 2008

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