Lista de obras -

A Review: carers, MND and service provision

artículo científico publicado en 2006

A patient-based questionnaire to assess outcomes of foot surgery: validation in the context of surgery for hallux valgus

artículo científico publicado en 2006

A scoring system for the foot and ankle that is acceptable, reliable, valid and responsive ⬇️

artículo científico publicado el 17 de marzo de 2012

A systematic review of generic multidimensional patient-reported outcome measures for children, part I: descriptive characteristics

artículo científico publicado en 2015

Adhering to best practice guidelines in outcomes measurement

artículo científico publicado en 2018

Ambulatory blood pressure after therapeutic and subtherapeutic nasal continuous positive airway pressure for obstructive sleep apnoea: a randomised parallel trial

artículo científico publicado en 2002

An electronic version of the PDQ-39: acceptability to respondents and assessment of alternative response formats

artículo científico publicado en 2014

An exploration of social and economic outcome and associated health-related quality of life after critical illness in general intensive care unit survivors: a 12-month follow-up study

artículo científico publicado en 2013

Aspects of methodology relevant to patient-reported outcome measures (PROMs)

Association between spousal emotional abuse and reproductive outcomes of women in India: findings from cross-sectional analysis of the 2005-2006 National Family Health Survey

artículo científico publicado en 2018

Can pain and function be distinguished in the Oxford Knee Score in a meaningful way? An exploratory and confirmatory factor analysis ⬇️

artículo científico publicado el 23 de marzo de 2013

Carer quality of life and experiences of health services: a cross-sectional survey across three neurological conditions

artículo científico publicado en 2013

Change in health status in long-term conditions over a one year period: a cohort survey using patient-reported outcome measures

artículo científico publicado en 2014

Comparing alternative Rasch-based methods vs raw scores in measuring change in health

artículo científico publicado en 2004

Comparing health inequalities among men aged 18-65 years in Australia and England using the SF-36.

artículo científico publicado en 2002

Comparing results from long and short form versions of the Parkinson's disease questionnaire in a longitudinal study

artículo científico publicado en 2015

Correction to: multiple imputation for patient reported outcome measures in randomised controlled trials: advantages and disadvantages of imputing at the item, subscale or composite score level

artículo científico publicado en 2018

Cost-utility analysis of deep brain stimulation surgery plus best medical therapy versus best medical therapy in patients with Parkinson's: Economic evaluation alongside the PD SURG trial

artículo científico publicado en 2016

Cross-cultural evaluation of the Parkinson's Disease Questionnaire: tests of data quality, score reliability, response rate, and scaling assumptions in the United States, Canada, Japan, Italy, and Spain ⬇️

artículo científico publicado el 1 de septiembre de 2003

Cross-cultural evaluation of the short form 8-item Parkinson's Disease Questionnaire (PDQ-8): results from America, Canada, Japan, Italy and Spain

artículo científico publicado en 2006

Data quality, floor and ceiling effects, and test-retest reliability of the Mild Cognitive Impairment Questionnaire

artículo científico publicado en 2018

Deep brain stimulation plus best medical therapy versus best medical therapy alone for advanced Parkinson's disease (PD SURG trial): a randomised, open-label trial

artículo científico publicado en 2010

Developing symptom-based predictive models of endometriosis as a clinical screening tool: results from a multicenter study ⬇️

artículo científico publicado el 30 de mayo de 2012

Development of the Motor Neuron Disease Carer Questionnaire

artículo científico publicado en 2009

Development of the Oxford Participation and Activities Questionnaire: constructing an item pool

artículo científico publicado en 2015

Development of the Short Form Endometriosis Health Profile Questionnaire: the EHP-5.

artículo científico publicado en 2004

Distribution-based criteria for change in health-related quality of life in Parkinson's disease

artículo científico publicado en 2004

Do South Asian women with PCOS have poorer health-related quality of life than Caucasian women with PCOS? A comparative cross-sectional study

artículo científico publicado en 2010

Does self-reported well-being of patients with Parkinson's disease influence caregiver strain and quality of life?

artículo científico publicado en 2011

Does stimulus predict the best candidates for deep brain stimulation for PD?

artículo científico publicado en 2013

European patients' views on the responsiveness of health systems and healthcare providers

article

Evaluating the psychometric properties of an e-based version of the 39-item Parkinson's Disease Questionnaire

artículo científico publicado en 2015

Evaluating the responsiveness of the Endometriosis Health Profile Questionnaire: the EHP-30.

artículo científico publicado en 2004

Evaluation of the American version of the 30-item Endometriosis Health Profile (EHP-30).

artículo científico publicado en 2008

Evaluation of the Dutch version of the Parkinson's Disease Questionnaire 39.

artículo científico publicado en 2007

Examining the role of patients’ experiences as a resource for choice and decision-making in health care: a creative, interdisciplinary mixed-method study in digital health

artículo científico publicado en 2016

Experiences of Using Web-Based and Mobile Technologies to Support Self-Management of Type 2 Diabetes: Qualitative Study

scientific article published on 11 May 2018

Exploring the experiences of people with mild cognitive impairment and their caregivers with particular reference to healthcare - a qualitative study

artículo científico publicado en 2013

Fabry International Prognostic Index: a predictive severity score for Anderson-Fabry disease ⬇️

artículo científico publicado el 7 de febrero de 2012

Factors associated with patient satisfaction with foot and ankle surgery in a large prospective study ⬇️

artículo científico publicado el 6 de junio de 2012

Factors relating to patients' reports about hospital care for coronary heart disease in England

artículo científico publicado en 2003

Factors which predict physical and mental health status in patients with amyotrophic lateral sclerosis over time

artículo científico publicado en 2003

Factors which predict physical and mental health status in patients with amyotrophic lateral sclerosis over time

article

Furthering our understanding of the needs of adolescent children of parents with Parkinson's disease

artículo científico publicado en 2013

Health Care Professionals' Perceptions of the Arthroplasty Patient Experience: Planning Phase in the Development of a Patient-Reported Outcome Measure

artículo científico publicado en 2018

Health selection in the Whitehall II study, UK.

artículo científico publicado en 2003

Health-related quality of life measurement in women with common benign gynecologic conditions: a systematic review

artículo científico publicado en 2002

Health-status of adult survivors of childhood cancer: a large-scale population-based study from the British Childhood Cancer Survivor Study

artículo científico publicado en 2007

Impact of endometriosis on quality of life and work productivity: a multicenter study across ten countries

artículo científico publicado en 2011

Impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy

artículo científico publicado en 2004

Living with breathlessness in chronic heart failure: a qualitative study

artículo científico publicado en 2016

Long-term effectiveness of dopamine agonists and monoamine oxidase B inhibitors compared with levodopa as initial treatment for Parkinson's disease (PD MED): a large, open-label, pragmatic randomised trial

artículo científico publicado en 2014

Management of respiration in MND/ALS patients: an evidence based review

artículo científico publicado en 2006

Mapping from the Parkinson's Disease Questionnaire PDQ-39 to the Generic EuroQol EQ-5D-3L: The Value of Mixture Models

artículo científico publicado en 2015

Measuring outcomes for neurological disorders: a review of disease-specific health status instruments for three degenerative neurological conditions

artículo científico publicado en 2005

Measuring patients' experiences and outcomes

artículo científico publicado en 2009

Measuring quality of life in women with endometriosis: tests of data quality, score reliability, response rate and scaling assumptions of the Endometriosis Health Profile Questionnaire

artículo científico publicado en 2006

Measuring the effects of online health information for patients: item generation for an e-health impact questionnaire

artículo científico publicado en 2013

Measuring the effects of online health information: Scale validation for the e-Health Impact Questionnaire

artículo científico

Medical education leaders' perceptions of postgraduate medical education reform

artículo científico publicado en 2014

Minimally important change was estimated for the Manchester-Oxford Foot Questionnaire after foot/ankle surgery

artículo científico publicado en 2014

Multiple imputation for patient reported outcome measures in randomised controlled trials: advantages and disadvantages of imputing at the item, subscale or composite score level

Nutritional management in MND/ALS patients: an evidence based review

artículo científico publicado en 2004

Outcome measurement in neurodegenerative disease: attributes, applications & interpretation

artículo científico

Outcome measures used in forensic mental health research: a structured review

artículo científico publicado en 2009

Outcome selection and role of patient reported outcomes in contemporary cardiovascular trials: systematic review

artículo científico publicado en 2010

Patient attitudes to clinical trials: development of a questionnaire and results from asthma and cancer patients

scientific article published on September 2005

Patient reported outcomes

artículo científico publicado en 2015

Patient reports of the outcomes of treatment: a structured review of approaches

artículo científico

People with limiting long-term conditions report poorer experiences and more problems with hospital care

scientific article published on 23 January 2014

Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: a qualitative study ⬇️

artículo científico publicado en 2015

Predictors of activity and participation across neurodegenerative conditions: a comparison of people with motor neurone disease, multiple sclerosis and Parkinson's disease

artículo científico publicado en 2018

Proceedings of Patient Reported Outcome Measure's (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research : Oxford, UK. 8th June 2017

Properties of the Picker Patient Experience questionnaire in a randomized controlled trial of long versus short form survey instruments

artículo científico publicado en 2003

Psychometric validation of a multi-dimensional capability instrument for outcome measurement in mental health research (OxCAP-MH).

artículo científico publicado en 2017

Quality in the provision of headache care. 1: systematic review of the literature and commentary ⬇️

artículo científico publicado el 27 de junio de 2012

Quality in the provision of headache care. 2: defining quality and its indicators

artículo científico publicado en 2012

Quality of life in amyotrophic lateral sclerosis/motor neuron disease: a structured review

artículo científico publicado en 2009

Quality of life in coeliac disease: item reduction, scale development and psychometric evaluation of the Coeliac Disease Assessment Questionnaire (CDAQ)

article

Quality of life in coeliac disease: qualitative interviews to develop candidate items for the Coeliac Disease Assessment Questionnaire.

artículo científico publicado en 2018

Quality of life in patients with Parkinson's disease: Translation and psychometric evaluation of the Iranian version of PDQ-39 ⬇️

artículo científico publicado el 1 de marzo de 2010

Rasch scoring of outcomes of total hip replacement

artículo científico publicado en 2003

Social and psychological factors affecting the impact of painful chronic illness upon mental health ⬇️

doctoral thesis by Crispin Jenkinson

The Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40): evidence for a method of imputing missing data

artículo científico publicado en 2007

The Long-Term Conditions Questionnaire: conceptual framework and item development ⬇️

artículo científico publicado en 2016

The Outcomes and Experiences Questionnaire: development and validation

artículo científico publicado en 2015

The Oxford Participation and Activities Questionnaire: study protocol

artículo científico publicado en 2013

The Parkinson's Disease Questionnaire (PDQ-39): evidence for a method of imputing missing data

artículo científico publicado en 2006

The Picker Patient Experience Questionnaire: development and validation using data from in-patient surveys in five countries

artículo científico publicado en 2002

The Stroke Impact Scale: validation in a UK setting and development of a SIS short form and SIS index

artículo científico publicado en 2013

The current practice of handling and reporting missing outcome data in eight widely used PROMs in RCT publications: a review of the current literature

artículo científico publicado en 2016

The development and validation of a patient-reported quality of life measure for people with mild cognitive impairment

artículo científico publicado en 2013

The development and validation of a quality of life measure for the carers of people with Parkinson's disease (the PDQ-Carer).

artículo científico publicado en 2012

The impact of endometriosis upon quality of life: a qualitative analysis

artículo científico publicado en 2004

The impact of perceived lack of support provided by health and social care services to caregivers of people with motor neuron disease ⬇️

artículo científico publicado el 1 de febrero de 2012

The routine use of patient reported outcome measures in healthcare settings.

artículo científico publicado en 2010

The use of the SF-36 questionnaire in adult survivors of childhood cancer: evaluation of data quality, score reliability, and scaling assumptions

artículo científico publicado en 2006

Towards a shared vision for measureable and meaningful health outcomes for children and young people with neurodisability: qualitative research, Delphi survey, systematic review, and stakeholder prioritisation

artículo científico publicado en 2015

Use of the short form health survey (SF-36) in patients with amyotrophic lateral sclerosis: tests of data quality, score reliability, response rate and scaling assumptions

artículo científico publicado en 2002

Validation of the Oxford Participation and Activities Questionnaire

artículo científico publicado en 2016

Web-Based and mHealth Technologies to Support Self-Management in People Living With Type 2 Diabetes: Validation of the Diabetes Self-Management and Technology Questionnaire (DSMT-Q)

artículo científico publicado en 2020

Withdrawing gluten-free food from prescriptions in England: a mixed-methods study to examine the impact of policy changes on quality of life

artículo científico publicado en 2019

Lista de obras de

A Review: carers, MND and service provision

A patient-based questionnaire to assess outcomes of foot surgery: validation in the context of surgery for hallux valgus

A scoring system for the foot and ankle that is acceptable, reliable, valid and responsive ⬇️

A systematic review of generic multidimensional patient-reported outcome measures for children, part I: descriptive characteristics

Adhering to best practice guidelines in outcomes measurement

Ambulatory blood pressure after therapeutic and subtherapeutic nasal continuous positive airway pressure for obstructive sleep apnoea: a randomised parallel trial

An electronic version of the PDQ-39: acceptability to respondents and assessment of alternative response formats

An exploration of social and economic outcome and associated health-related quality of life after critical illness in general intensive care unit survivors: a 12-month follow-up study

Aspects of methodology relevant to patient-reported outcome measures (PROMs)

Association between spousal emotional abuse and reproductive outcomes of women in India: findings from cross-sectional analysis of the 2005-2006 National Family Health Survey

Can pain and function be distinguished in the Oxford Knee Score in a meaningful way? An exploratory and confirmatory factor analysis ⬇️

Carer quality of life and experiences of health services: a cross-sectional survey across three neurological conditions

Change in health status in long-term conditions over a one year period: a cohort survey using patient-reported outcome measures

Comparing alternative Rasch-based methods vs raw scores in measuring change in health

Comparing health inequalities among men aged 18-65 years in Australia and England using the SF-36.

Comparing results from long and short form versions of the Parkinson's disease questionnaire in a longitudinal study

Correction to: multiple imputation for patient reported outcome measures in randomised controlled trials: advantages and disadvantages of imputing at the item, subscale or composite score level

Cost-utility analysis of deep brain stimulation surgery plus best medical therapy versus best medical therapy in patients with Parkinson's: Economic evaluation alongside the PD SURG trial

Cross-cultural evaluation of the Parkinson's Disease Questionnaire: tests of data quality, score reliability, response rate, and scaling assumptions in the United States, Canada, Japan, Italy, and Spain ⬇️

Cross-cultural evaluation of the short form 8-item Parkinson's Disease Questionnaire (PDQ-8): results from America, Canada, Japan, Italy and Spain

Data quality, floor and ceiling effects, and test-retest reliability of the Mild Cognitive Impairment Questionnaire

Deep brain stimulation plus best medical therapy versus best medical therapy alone for advanced Parkinson's disease (PD SURG trial): a randomised, open-label trial

Developing symptom-based predictive models of endometriosis as a clinical screening tool: results from a multicenter study ⬇️

Development of the Motor Neuron Disease Carer Questionnaire

Development of the Oxford Participation and Activities Questionnaire: constructing an item pool

Development of the Short Form Endometriosis Health Profile Questionnaire: the EHP-5.

Distribution-based criteria for change in health-related quality of life in Parkinson's disease

Do South Asian women with PCOS have poorer health-related quality of life than Caucasian women with PCOS? A comparative cross-sectional study

Does self-reported well-being of patients with Parkinson's disease influence caregiver strain and quality of life?

Does stimulus predict the best candidates for deep brain stimulation for PD?

European patients' views on the responsiveness of health systems and healthcare providers

Evaluating the psychometric properties of an e-based version of the 39-item Parkinson's Disease Questionnaire

Evaluating the responsiveness of the Endometriosis Health Profile Questionnaire: the EHP-30.

Evaluation of the American version of the 30-item Endometriosis Health Profile (EHP-30).

Evaluation of the Dutch version of the Parkinson's Disease Questionnaire 39.

Examining the role of patients’ experiences as a resource for choice and decision-making in health care: a creative, interdisciplinary mixed-method study in digital health

Experiences of Using Web-Based and Mobile Technologies to Support Self-Management of Type 2 Diabetes: Qualitative Study

Exploring the experiences of people with mild cognitive impairment and their caregivers with particular reference to healthcare - a qualitative study

Fabry International Prognostic Index: a predictive severity score for Anderson-Fabry disease ⬇️

Factors associated with patient satisfaction with foot and ankle surgery in a large prospective study ⬇️

Factors relating to patients' reports about hospital care for coronary heart disease in England

Factors which predict physical and mental health status in patients with amyotrophic lateral sclerosis over time

Factors which predict physical and mental health status in patients with amyotrophic lateral sclerosis over time

Furthering our understanding of the needs of adolescent children of parents with Parkinson's disease

Health Care Professionals' Perceptions of the Arthroplasty Patient Experience: Planning Phase in the Development of a Patient-Reported Outcome Measure

Health selection in the Whitehall II study, UK.

Health-related quality of life measurement in women with common benign gynecologic conditions: a systematic review

Health-status of adult survivors of childhood cancer: a large-scale population-based study from the British Childhood Cancer Survivor Study

Impact of endometriosis on quality of life and work productivity: a multicenter study across ten countries

Impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy

Living with breathlessness in chronic heart failure: a qualitative study

Long-term effectiveness of dopamine agonists and monoamine oxidase B inhibitors compared with levodopa as initial treatment for Parkinson's disease (PD MED): a large, open-label, pragmatic randomised trial

Management of respiration in MND/ALS patients: an evidence based review

Mapping from the Parkinson's Disease Questionnaire PDQ-39 to the Generic EuroQol EQ-5D-3L: The Value of Mixture Models

Measuring outcomes for neurological disorders: a review of disease-specific health status instruments for three degenerative neurological conditions

Measuring patients' experiences and outcomes

Measuring quality of life in women with endometriosis: tests of data quality, score reliability, response rate and scaling assumptions of the Endometriosis Health Profile Questionnaire

Measuring the effects of online health information for patients: item generation for an e-health impact questionnaire

Measuring the effects of online health information: Scale validation for the e-Health Impact Questionnaire

Medical education leaders' perceptions of postgraduate medical education reform

Minimally important change was estimated for the Manchester-Oxford Foot Questionnaire after foot/ankle surgery

Multiple imputation for patient reported outcome measures in randomised controlled trials: advantages and disadvantages of imputing at the item, subscale or composite score level

Nutritional management in MND/ALS patients: an evidence based review

Outcome measurement in neurodegenerative disease: attributes, applications & interpretation

Outcome measures used in forensic mental health research: a structured review

Outcome selection and role of patient reported outcomes in contemporary cardiovascular trials: systematic review

Patient attitudes to clinical trials: development of a questionnaire and results from asthma and cancer patients

Patient reported outcomes

Patient reports of the outcomes of treatment: a structured review of approaches

People with limiting long-term conditions report poorer experiences and more problems with hospital care

Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: a qualitative study ⬇️

Predictors of activity and participation across neurodegenerative conditions: a comparison of people with motor neurone disease, multiple sclerosis and Parkinson's disease

Proceedings of Patient Reported Outcome Measure's (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research : Oxford, UK. 8th June 2017

Properties of the Picker Patient Experience questionnaire in a randomized controlled trial of long versus short form survey instruments

Psychometric validation of a multi-dimensional capability instrument for outcome measurement in mental health research (OxCAP-MH).

Quality in the provision of headache care. 1: systematic review of the literature and commentary ⬇️

Quality in the provision of headache care. 2: defining quality and its indicators

Quality of life in amyotrophic lateral sclerosis/motor neuron disease: a structured review

Quality of life in coeliac disease: item reduction, scale development and psychometric evaluation of the Coeliac Disease Assessment Questionnaire (CDAQ)