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A 'short walk' is longer before radiotherapy than afterwards: a qualitative study questioning the baseline and follow-up design

artículo científico publicado en 2010

A Web-based, educational, quality-of-life intervention for patients with a chronic skin disease: feasibility and acceptance in routine dermatological practice

artículo científico publicado en 2015

A comparison of 3 valuation methods for temporary health states in patients treated with oral anticoagulants.

artículo científico publicado en 2004

A global analysis of multitrial data investigating quality of life and symptoms as prognostic factors for survival in different tumor sites

A simulation study provided sample size guidance for differential item functioning (DIF) studies using short scales

artículo científico publicado en 2008

Activities of daily living and quality of life during treatment with neoadjuvant chemoradiotherapy and after surgery in patients with esophageal cancer

artículo científico publicado en 2016

Adult attachment as mediator between recollections of childhood and satisfaction with life.

artículo científico publicado en 2009

An application of structural equation modeling to detect response shifts and true change in quality of life data from cancer patients undergoing invasive surgery

artículo científico publicado en 2005

An introduction to quality of life assessment in oncology: the value of measuring patient-reported outcomes

artículo científico publicado en 2002

Anxiety levels of patients undergoing coronary procedures in the catheterization laboratory

artículo científico publicado en 2016

Applications of health-related quality of life for guiding health care: advances in response shift research

artículo científico publicado en 2009

Are retrospective measures of change in quality of life more valid than prospective measures?

artículo científico publicado en 2007

Are the most distressing concerns of patients with inoperable lung cancer adequately assessed? A mixed-methods analysis

artículo científico publicado en 2010

Assessing clinical significance in measuring oncology patient quality of life: introduction to the symposium, content overview, and definition of terms

artículo científico publicado en 2002

Assessing meaningful change in quality of life over time: a users' guide for clinicians

artículo científico publicado en 2002

Assessing reserve-building pursuits and person characteristics: psychometric validation of the Reserve-Building Measure

artículo científico publicado en 2017

Baseline quality of life as a prognostic indicator of survival: a meta-analysis of individual patient data from EORTC clinical trials

artículo científico publicado en 2009

Biological pathways and genetic mechanisms involved in social functioning

artículo científico publicado en 2012

Biological pathways, candidate genes, and molecular markers associated with quality-of-life domains: an update

artículo científico publicado en 2014

Breast cancer patients on adjuvant chemotherapy report a wide range of problems not identified by health-care staff.

artículo científico publicado en 2006

Cancer in full-colour: use of a graphic novel to identify distress in women with breast cancer

artículo científico publicado en 2013

Change of perspective: A measurable and desired outcome of chronic disease self-management intervention programs that violates the premise of preintervention/postintervention assessment

article by Richard Osborne et al published 15 June 2006 in Arthritis and Rheumatism

Changes in cancer patients' personal goals in the first 6 months after diagnosis: the role of illness variables

artículo científico publicado en 2014

Characteristics of patients with universal vitiligo and health-related quality of life.

artículo científico publicado en 2008

Children With Anorectal Malformations, Hirschsprung Disease, and Their Siblings: Proxy Reports and Self-Reports

artículo científico publicado en 2015

Clarifying quality of life assessment: do theoretical models capture the underlying cognitive processes?

artículo científico publicado en 2008

Clinical and psychological characteristics predict future healthcare use in adults with congenital heart disease

artículo científico publicado en 2014

Clinically distinct trajectories of fatigue and their longitudinal relationship with the disturbance of personal goals following a cancer diagnosis

artículo científico publicado en 2017

Clinician's checklist for reading and using an article about patient-reported outcomes

artículo científico publicado en 2014

Colonic stenting as bridge to surgery versus emergency surgery for management of acute left-sided malignant colonic obstruction: a multicenter randomized trial (Stent-in 2 study)

artículo científico publicado en 2007

Comparing higher order models for the EORTC QLQ-C30.

artículo científico publicado en 2011

Complementary and alternative medicine use of women with breast cancer: self-help CAM attracts other women than guided CAM therapies

artículo científico publicado en 2012

Core outcome set development: the effect of Delphi panel composition and feedback on prioritisation of outcomes

artículo científico publicado en 2013

Critical factors affecting quality of life of adult patients with anorectal malformations or Hirschsprung's disease.

artículo científico publicado en 2004

Developing core outcomes sets: methods for identifying and including patient-reported outcomes (PROs).

artículo científico publicado en 2014

Development and validation of a colorectal functional outcome questionnaire.

artículo científico publicado en 2004

Development of the patient Harvey Bradshaw index and a comparison with a clinician-based Harvey Bradshaw index assessment of Crohn's disease activity

artículo científico publicado en 2013

Differential item functioning (DIF) analyses of health-related quality of life instruments using logistic regression

artículo científico publicado en 2010

Differential item functioning (DIF) in the EORTC QLQ-C30: a comparison of baseline, on-treatment and off-treatment data

artículo científico publicado en 2009

Disregarding clinical trial-based patient-reported outcomes is unwarranted: Five advances to substantiate the scientific stringency of quality-of-life measurement.

artículo científico publicado en 2010

Distinct trajectories of positive and negative affect after colorectal cancer diagnosis

artículo científico publicado en 2017

Do internal standards of quality of life change in lung cancer patients?

article by Eva Broberger et al published July 2006 in Nursing Research

Do not throw out the baby with the bath water: build on current approaches to realize conceptual clarity. Response to Ubel, Peeters, and Smith

artículo científico publicado en 2010

Do patients trust their physician? The role of attachment style in the patient-physician relationship within one year after a cancer diagnosis

artículo científico publicado en 2012

Don't forget the dentist: Dental care use and needs of women with breast cancer

artículo científico publicado en 2016

EORTC QLQ-C15-PAL: the new standard in the assessment of health-related quality of life in advanced cancer?

artículo científico publicado en 2006

Each measure of patient-reported change provides useful information and is susceptible to bias: the need to combine methods to assess their relative validity

artículo científico publicado en 2009

Effect of Neoadjuvant Chemoradiotherapy on Health-Related Quality of Life in Esophageal or Junctional Cancer: Results From the Randomized CROSS Trial

artículo científico publicado en 2017

Effectiveness of cognitive-behavioral therapy on quality of life, anxiety, and depressive symptoms among patients with inflammatory bowel disease: A multicenter randomized controlled trial

artículo científico

Employment status, difficulties at work and quality of life in inflammatory bowel disease patients

artículo científico publicado en 2016

Establishing anchor-based minimally important differences (MID) with the EORTC quality-of-life measures: a meta-analysis protocol ⬇️

artículo científico publicado en 2018

Explaining change in quality of life of children and adolescents with anorectal malformations or Hirschsprung disease

artículo científico publicado en 2007

Explaining quality of life with crisis theory.

artículo científico publicado en 2002

Exploring the black box of a decision aid: what information do patients select from an interactive Cd-Rom on treatment options in breast cancer?

artículo científico

Factors affecting quality of life of children and adolescents with anorectal malformations or Hirschsprung disease

artículo científico publicado en 2008

Factors reported to influence the return to work of cancer survivors: a literature review

artículo científico publicado en 2002

Fatigue in COPD: an important yet ignored symptom

artículo científico publicado en 2017

Fluctuations in appraisal over time in the context of stable versus non-stable health

artículo científico publicado en 2013

Formal definitions of measurement bias and explanation bias clarify measurement and conceptual perspectives on response shift.

artículo científico publicado en 2009

Genetic variations underlying self-reported physical functioning: a review

artículo científico publicado en 2014

Guidelines for improving the stringency of response shift research using the thentest

artículo científico publicado en 2010

Guidelines for secondary analysis in search of response shift

artículo científico

HIV stigma and depressive symptoms are related to adherence and virological response to antiretroviral treatment among immigrant and indigenous HIV infected patients

artículo científico publicado en 2012

Health care providers underestimate symptom intensities of cancer patients: a multicenter European study

artículo científico publicado en 2010

Health-related quality of life and disability in patients with ulcerative colitis and proctocolectomy with ileoanal pouch versus treatment with anti-TNF agents

artículo científico publicado en 2014

Health-related quality of life and survival among HIV-infected patients receiving highly active antiretroviral therapy: a study of patients in the AIDS Therapy Evaluation in the Netherlands (ATHENA) Cohort

artículo científico publicado en 2010

Health-related quality of life assessment in dermatology: interpretation of Skindex-29 scores using patient-based anchors

artículo científico publicado en 2009

Health-related quality of life in locally advanced and metastatic breast cancer: methodological and clinical issues in randomised controlled trials ⬇️

artículo científico publicado en 2016

Health-related quality of life in patients with cutaneous rosacea: a systematic review

artículo científico

Health-related quality of life in small-cell lung cancer: a systematic review on reporting of methods and clinical issues in randomised controlled trials

artículo científico

Health-related quality of life measurement in randomized clinical trials in surgical oncology

artículo científico publicado en 2006

Health-related quality of life of HIV-infected adults receiving combination antiretroviral therapy in Addis Ababa

artículo científico publicado en 2015

How recent health-related life events affected my perspective on quality-of-life research

artículo científico publicado en 2014

Illness perceptions of adults with congenital heart disease and their predictive value for quality of life two years later

artículo científico publicado en 2013

Impact of comorbidity and ageing on health-related quality of life in HIV-positive and HIV-negative individuals

artículo científico publicado en 2017

Implementation of Web-based Education for Patients with Chronic Skin Disease.

artículo científico publicado en 2016

In Search for the Genetic Basis of Quality of Life in Healthy Swedish Women--A GWAS Study Using the iCOGS Custom Genotyping Array

artículo científico publicado en 2015

International development of an EORTC questionnaire for assessing health-related quality of life in chronic myeloid leukemia patients: the EORTC QLQ-CML24.

artículo científico publicado en 2013

Interpretation of differential item functioning analyses using external review

artículo científico publicado en 2010

Item bias detection in the Hospital Anxiety and Depression Scale using structural equation modeling: comparison with other item bias detection methods

artículo científico publicado en 2016

Item response theory was used to shorten EORTC QLQ-C30 scales for use in palliative care.

artículo científico publicado en 2005

Laparoscopic ileocolic resection versus infliximab treatment of distal ileitis in Crohn's disease: a randomized multicenter trial (LIR!C-trial).

artículo científico publicado en 2008

Laparoscopy in combination with fast track multimodal management is the best perioperative strategy in patients undergoing colonic surgery: a randomized clinical trial (LAFA-study).

artículo científico publicado en 2011

Let's engage the patient within us: a personal perspective on patient engagement

artículo científico publicado en 2013

Linking concurrent self-reports and retrospective proxy reports about the last year of life: a prevailing picture of life satisfaction decline

artículo científico publicado en 2013

Listen to their answers! Response behaviour in the measurement of physical and role functioning

artículo científico publicado en 2008

Long-term effects of goal disturbance and adjustment on well-being in cancer patients

artículo científico publicado en 2015

Long-term sexual function in survivors of vulvar cancer: a cross-sectional study

artículo científico publicado en 2012

Long-term surgical recurrence, morbidity, quality of life, and body image of laparoscopic-assisted vs. open ileocolic resection for Crohn's disease: a comparative study

artículo científico publicado en 2008

Lower levels of trust in one's physician is associated with more distress over time in more anxiously attached individuals with cancer

artículo científico publicado en 2014

Lower perceived necessity of HAART predicts lower treatment adherence and worse virological response in the ATHENA cohort

artículo científico publicado en 2008

Mental quality of life is related to a cytokine genetic pathway

artículo científico publicado en 2012

Method variation in the impact of missing data on response shift detection

artículo científico publicado en 2014

Methods to detect response shift in quality of life data: a convergent validity study

artículo científico publicado en 2005

Narrative meaning making and integration: Toward a better understanding of the way falling ill influences quality of life

artículo científico publicado en 2017

New York Heart Association class assessment by cardiologists and outpatients with congenital cardiac disease: a head-to-head comparison of three patient-based versions

artículo científico publicado en 2011

Opening the black box of cancer patients' quality-of-life change assessments: a think-aloud study examining the cognitive processes underlying responses to transition items

artículo científico publicado en 2011

Patient-Reported Outcome Measurement in Clinical Dermatological Practice: Relevance and Feasibility of a Web-Based Portal

artículo científico publicado en 2015

Patients with genetic cancer undergoing surveillance at a specialized clinic rate the quality of their care better than patients at non-specialized clinics.

artículo científico publicado en 2012

Patients with unexplained physical symptoms have poorer quality of life and higher costs than other patient groups: a cross-sectional study on burden

artículo científico publicado en 2013

People with cancer use goal adjustment strategies in the first 6 months after diagnosis and tell us how.

artículo científico publicado en 2015

Peri-operative care in adults with congenital heart disease: room for improvement in after care

artículo científico publicado en 2012

Personalized Stigma and Disclosure Concerns Among HIV-Infected Immigrant and Indigenous HIV-Infected Persons in the Netherlands

article

Postoperative information needs and communication barriers of esophageal cancer patients

artículo científico publicado en 2012

Predictors and correlates of adherence to combination antiretroviral therapy (ART) for chronic HIV infection: a meta-analysis

artículo científico publicado en 2014

Predictors of Health Care Use of Women with Breast Cancer: A Systematic Review

artículo científico publicado en 2015

Predictors of enduring clinical distress in women with breast cancer

scientific article published on 14 July 2016

Predictors of general quality of life and the mediating role of health related quality of life in patients with schizophrenia

artículo científico publicado en 2008

Predictors of participation in risk-based prostate cancer screening

artículo científico publicado en 2018

Premedication to reduce anxiety in patients undergoing coronary angiography and percutaneous coronary intervention

article

Preoperative and early postoperative quality of life predict survival in potentially curable patients with esophageal cancer

artículo científico publicado en 2009

Prognostic value of self-reported fatigue on overall survival in patients with myelodysplastic syndromes: a multicentre, prospective, observational, cohort study

artículo científico publicado en 2015

Public interest in and acceptability of the prospect of risk-stratified screening for breast and prostate cancer

artículo científico publicado en 2015

Quality of life after starting highly active antiretroviral therapy for chronic HIV-1 infection at different CD4 cell counts.

artículo científico publicado en 2007

Quality of life and fear of cancer recurrence after endoscopic treatment for early Barrett's neoplasia: a prospective study

artículo científico publicado en 2016

Quality of life and the duration of treatment with vitamin K antagonists in patients with deep venous thrombosis.

artículo científico publicado en 2003

Quality of life in adult survivors of correction of esophageal atresia.

artículo científico publicado en 2005

Quality of life in newly diagnosed cancer patients waiting for surgery is seriously impaired

artículo científico publicado en 2006

Quality-of-life assessment in oncology. Achievements and challenges

artículo científico publicado en 2002

Reducing discrepancies of personal goals in the context of cancer: A longitudinal study on the relation with well-being, psychological characteristics, and goal progress

artículo científico publicado en 2017

Reflections on changeability versus stability of health-related quality of life: distinguishing between its environmental and genetic components

artículo científico publicado en 2008

Reflections on genes and sustainable change: toward a trait and state conceptualization of response shift

artículo científico publicado en 2009

Replication and validation of higher order models demonstrated that a summary score for the EORTC QLQ-C30 is robust ⬇️

artículo científico publicado en 2015

Response shift in patients with multiple sclerosis: an application of three statistical techniques

artículo científico publicado en 2011

Retention in HIV Care and Predictors of Attrition from Care among HIV-Infected Adults Receiving Combination Anti-Retroviral Therapy in Addis Ababa

artículo científico publicado en 2015

Scientific imperatives, clinical implications, and theoretical underpinnings for the investigation of the relationship between genetic variables and patient-reported quality-of-life outcomes

artículo científico publicado en 2010

Scoring based on item response theory did not alter the measurement ability of EORTC QLQ-C30 scales

artículo científico publicado en 2005

Self-reported symptoms among HIV-lnfected patients on highly active antiretroviral therapy in the ATHENA cohort in The Netherlands

artículo científico publicado en 2011

Severe pelvic floor symptoms after cervical cancer treatment are predominantly associated with mental and physical well-being and body image: a cross-sectional study

artículo científico publicado en 2012

Significance, truth and proof of p values: reminders about common misconceptions regarding null hypothesis significance testing

artículo científico publicado en 2013

Small-cell lung cancer patients are just 'a little bit' tired: response shift and self-presentation in the measurement of fatigue

artículo científico publicado en 2007

Somatically ill persons' self-nominated quality of life domains: review of the literature and guidelines for future studies

artículo científico publicado en 2010

Spontaneous reports of most distressing concerns in patients with inoperable lung cancer: at present, in retrospect and in comparison with EORTC-QLQ-C30+LC13.

artículo científico publicado en 2007

Structural equation modeling-based effect-size indices were used to evaluate and interpret the impact of response shift effects

artículo científico publicado en 2017

Sub-optimal adherence to combination anti-retroviral therapy and its associated factors according to self-report, clinician-recorded and pharmacy-refill assessment methods among HIV-infected adults in Addis Ababa

artículo científico publicado en 2016

Symptom prevalence, intensity, and distress in patients with inoperable lung cancer in relation to time of death

artículo científico publicado en 2007

Symptoms and problems with functioning among women and men with inoperable lung cancer--a longitudinal study

artículo científico publicado en 2007

Systematic Review of the Side Effects Associated With Anti-HER2-Targeted Therapies Used in the Treatment of Breast Cancer, on Behalf of the EORTC Quality of Life Group

artículo científico publicado en 2015

Systematic review of the side effects associated with tyrosine kinase inhibitors used in the treatment of gastrointestinal stromal tumours on behalf of the EORTC Quality of Life Group

artículo científico publicado en 2014

Systematic review reveals limitations of studies evaluating health-related quality of life after potentially curative treatment for esophageal cancer

artículo científico publicado en 2012

Taking into account the impact of attrition on the assessment of response shift and true change: a multigroup structural equation modeling approach

artículo científico publicado en 2014

The Added Value of Analyzing Pooled Health-Related Quality of Life Data: A Review of the EORTC PROBE Initiative ⬇️

artículo científico publicado en 2015

The Impact of Goal Disturbance after Cancer on Cortisol Levels over Time and the Moderating Role of COMT.

artículo científico publicado en 2015

The clinical significance of adaptation to changing health: a meta-analysis of response shift

artículo científico publicado en 2006

The clinical significance of quality of life assessments in oncology: a summary for clinicians

artículo científico publicado en 2006

The course of chronic solvent induced encephalopathy: a systematic review

scientific article published on 16 June 2009

The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative care

artículo científico publicado en 2005

The effect of spiritual interventions addressing existential themes using a narrative approach on quality of life of cancer patients: a systematic review and meta-analysis

artículo científico publicado en 2015

The effectiveness of cognitive behavioral therapy on the quality of life of patients with inflammatory bowel disease: multi-center design and study protocol (KL!C- study)

artículo científico publicado en 2012

The effects of age on health-related quality of life in cancer populations: A pooled analysis of randomized controlled trials using the European Organisation for Research and Treatment of Cancer (EORTC) QLQ-C30 involving 6024 cancer patients ⬇️

artículo científico publicado en 2015

The efficacy of a health-related quality-of-life intervention during 48 weeks of biologic treatment of patients with moderate to severe psoriasis: study protocol for a multicenter randomized controlled trial

artículo científico publicado en 2012

The establishment of the GENEQOL consortium to investigate the genetic disposition of patient-reported quality-of-life outcomes

artículo científico publicado en 2009

The genetic basis of quality of life in healthy Swedish women: a candidate gene approach

artículo científico publicado en 2015

The implausibility of response shifts in dementia patients

artículo científico publicado en 2016

The life in sight application study (LISA): design of a randomized controlled trial to assess the role of an assisted structured reflection on life events and ultimate life goals to improve quality of life of cancer patients

artículo científico publicado en 2013

The need for patient-centred clinical research in idiopathic pulmonary fibrosis

artículo científico publicado en 2015

The patient simple clinical colitis activity index (P-SCCAI) can detect ulcerative colitis (UC) disease activity in remission: a comparison of the P-SCCAI with clinician-based SCCAI and biological markers.

artículo científico publicado en 2012

The perspective of patients with congenital heart disease: does health care meet their needs?

artículo científico publicado en 2011

The practical impact of differential item functioning analyses in a health-related quality of life instrument

artículo científico publicado en 2009

The relationship between overall quality of life and its subdimensions was influenced by culture: analysis of an international database

artículo científico publicado en 2008

The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease

artículo científico publicado en 2002

The role of neuropsychological functioning in cancer survivors' return to work one year after diagnosis

artículo científico publicado en 2009

The role of recalibration response shift in explaining bodily pain in cancer patients undergoing invasive surgery: an empirical investigation of the Sprangers and Schwartz model

artículo científico publicado en 2012

The suitability of quality-of-life questionnaires for psoriasis research: a systematic literature review

artículo científico publicado en 2002

Toward mindfulness in quality-of-life research: perspectives on how to avoid rigor becoming rigidity

artículo científico publicado en 2017

Treatment of venous thromboembolism with vitamin K antagonists: patients' health state valuations and treatment preferences.

artículo científico publicado en 2004

Understanding self-rated health.

artículo científico publicado en 2002

Use of differential item functioning analysis to assess the equivalence of translations of a questionnaire

artículo científico publicado en 2003

Using a retrospective pretest instead of a conventional pretest is replacing biases: a qualitative study of cognitive processes underlying responses to thentest items

artículo científico publicado en 2015

Using patient-reported measurement to pave the path towards personalized medicine

artículo científico publicado en 2013

Using structural equation modeling to detect response shift in performance and health-related quality of life scores of multiple sclerosis patients

artículo científico publicado en 2011

Using structural equation modeling to detect response shifts and true change in discrete variables: an application to the items of the SF-36.

artículo científico publicado en 2015

Which adherence measure - self-report, clinician recorded or pharmacy refill - is best able to predict detectable viral load in a public ART programme without routine plasma viral load monitoring?

artículo científico publicado en 2016

Which goal adjustment strategies do cancer patients use? A longitudinal study

artículo científico publicado en 2015

Which health-related quality of life aspects are important to patients with chronic myeloid leukemia receiving targeted therapies and to health care professionals? GIMEMA and EORTC Quality of Life Group

artículo científico publicado en 2012

Which patient will feel down, which will be happy? The need to study the genetic disposition of emotional states

artículo científico publicado en 2010

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