Lista de obras -

A RaDiCAL gene hunt

scientific article published on 19 January 2017

A review of the key issues associated with the commercialization of biobanks

artículo científico publicado en 2014

Addressing Privacy Concerns in Sharing Viral Sequences and Minimum Contextual Data in a Public Repository During the COVID-19 Pandemic

artículo científico publicado en 2022

An ethics safe harbor for international genomics research?

artículo científico publicado en 2013

Barriers and Opportunities in Consent and Access Procedures in Low- and Middle-Income Country Biobanks: Meeting Notes from the BCNet Training and General Assembly.

artículo científico publicado en 2018

Biobanking for Genomic and Personalized Health Research: Participant Perceptions and Preferences

scientific article published on 17 April 2020

Biobanks and the return of research results: out with the old and in with the new?

artículo científico

Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings

artículo científico publicado en 2014

Closure of population biobanks and direct-to-consumer genetic testing companies

scientific article published on 26 June 2011

Consent Processes for Mobile App Mediated Research: Systematic Review

artículo científico

Country Reports

artículo científico publicado en 2019

Demystifying biobanks

artículo científico publicado en 2013

Diagnostic testing for vaccinomics: is the regulatory approval framework adequate? A comparison of Canada, the United States, and Europe

artículo científico publicado en 2011

Ethical and Analytic Challenges With Genomic Sequencing of Relapsed Hematologic Malignancies Following Allogeneic Hematopoietic Stem-Cell Transplantation

Ethics education for clinician-researchers in genetics: The combined approach

artículo científico publicado en 2015

How to Integrate Personalized Medicine into Prevention? Recommendations from the Personalized Prevention of Chronic Diseases (PRECeDI) Consortium

scientific article published on 05 December 2019

Incidental findings in data-intensive postgenomics science and legal liability of clinician-researchers: ready for vaccinomics?

artículo científico publicado en 2011

International Guidelines for Privacy in Genomic Biobanking (or the Unexpected Virtue of Pluralism).

artículo científico publicado en 2015

International mHealth Research: Old Tools and New Challenges

scientific article published on 01 March 2020

International normative perspectives on the return of individual research results and incidental findings in genomic biobanks

artículo científico publicado en 2012

Introduction to the Country Reports

artículo científico publicado en 2019

Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations

artículo científico publicado en 2019

Legal and Ethical Considerations for the Design and Use of Web Portals for Researchers, Clinicians, and Patients: Scoping Literature Review

artículo científico publicado en 2021

Letter: Relearning the 3 R's? Reinterpretation, recontact, and return of genetic variants

artículo científico publicado en 2019

Mind the App: Considerations for the Future of Mobile Health in Canada

scientific article published on 04 November 2019

Next-Generation Sequencing and the Return of Results

artículo científico publicado en 2016

Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility

publication published on 31 March 2021

Pediatric research 'personalized'? International perspectives on the return of results

artículo científico publicado en 2013

Point-of-Care Genetic Tests for Infectious Disease: Legal Considerations

scholarly article by Adrian Thorogood et al published 12 June 2014 in Current Pharmacogenomics and Personalized Medicine: the international journal for expert reviews in pharmacogenomics

Population biobanking and international collaboration

artículo científico

Population studies: return of research results and incidental findings Policy Statement

artículo científico publicado en 2012

RMGA Statement of Principles on the Return of Research Results and Incidental Findings

Reciprocity and the Quest for Meaningful Disclosure

scientific article published on 01 May 2019

Recontacting Pediatric Research Participants for Consent When They Reach the Age of Majority

Regulatory Landscape of International Direct-to-Participant (DTP) Genomic Research: Time to Untie the Gordian Knot?

scientific article published on 01 June 2019

Reporting results from whole-genome and whole-exome sequencing in clinical practice: a proposal for Canada?

artículo científico publicado en 2013

Return of genetic testing results in the era of whole-genome sequencing

artículo científico

Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform

artículo científico publicado en 2013

Sampling populations of humans across the world: ELSI issues

artículo científico

Special Issue - From Biobanks to the Clinic

artículo científico publicado en 2014

Streamlining ethics review for international health research

scientific article published in 2022

Streamlining review of research involving humans: Canadian models

artículo científico publicado en 2015

Strengthen climate adaptation research globally

artículo científico publicado en 2022

The Canadian Partnership for Tomorrow Project: a pan-Canadian platform for research on chronic disease prevention.

artículo científico publicado en 2018

The Provision of Genetic Testing and Related Services in Quebec, Canada

artículo científico publicado en 2020

The Role of Whole Genome and Whole Exome Sequencing in Preventive Genomic Sequencing Programs

artículo científico publicado en 2015

The app will see you now: mobile health, diagnosis, and the practice of medicine in Quebec and Ontario.

artículo científico publicado en 2018

The author who wasn't there? Fairness and attribution in publications following access to population biobanks.

artículo científico publicado en 2018

The best interests of the child and the return of results in genetic research: international comparative perspectives

artículo científico publicado en 2014

The clinical application of genome-wide sequencing for monogenic diseases in Canada: Position Statement of the Canadian College of Medical Geneticists

artículo científico publicado en 2015

The impact of reporting magnetic resonance imaging incidental findings in the Canadian alliance for healthy hearts and minds cohort

Towards a data sharing Code of Conduct for international genomic research

artículo científico publicado en 2011

Towards an Ecology of Collective Innovation: Human Variome Project (HVP), Rare Disease Consortium for Autosomal Loci (RaDiCAL) and Data-Enabled Life Sciences Alliance (DELSA)

artículo científico publicado en 2011

Towards an ethics safe harbor for global biomedical research

artículo científico publicado en 2014

Vaccines of the 21st century and vaccinomics: data-enabled science meets global health to spark collective action for vaccine innovation.

artículo científico publicado en 2011

What's in the Box?: Uncertain Accountability of Machine Learning Applications in Healthcare

artículo científico publicado en 2020

Whole Genome Sequencing as a Genetic Test for Autism Spectrum Disorder: From Bench to Bedside and then Back Again

artículo científico publicado en 2016

noncc de principes du RMGA sur la communication des rrsultats de recherche et des ddcouvertes fortuites (RMGA Statement of Principles on the Return of Research Results and Incidental Findings)

Lista de obras de

A RaDiCAL gene hunt

A review of the key issues associated with the commercialization of biobanks

Addressing Privacy Concerns in Sharing Viral Sequences and Minimum Contextual Data in a Public Repository During the COVID-19 Pandemic

An ethics safe harbor for international genomics research?

Barriers and Opportunities in Consent and Access Procedures in Low- and Middle-Income Country Biobanks: Meeting Notes from the BCNet Training and General Assembly.

Biobanking for Genomic and Personalized Health Research: Participant Perceptions and Preferences

Biobanks and the return of research results: out with the old and in with the new?

Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings

Closure of population biobanks and direct-to-consumer genetic testing companies

Consent Processes for Mobile App Mediated Research: Systematic Review

Country Reports

Demystifying biobanks

Diagnostic testing for vaccinomics: is the regulatory approval framework adequate? A comparison of Canada, the United States, and Europe

Ethical and Analytic Challenges With Genomic Sequencing of Relapsed Hematologic Malignancies Following Allogeneic Hematopoietic Stem-Cell Transplantation

Ethics education for clinician-researchers in genetics: The combined approach

How to Integrate Personalized Medicine into Prevention? Recommendations from the Personalized Prevention of Chronic Diseases (PRECeDI) Consortium

Incidental findings in data-intensive postgenomics science and legal liability of clinician-researchers: ready for vaccinomics?

International Guidelines for Privacy in Genomic Biobanking (or the Unexpected Virtue of Pluralism).

International mHealth Research: Old Tools and New Challenges

International normative perspectives on the return of individual research results and incidental findings in genomic biobanks

Introduction to the Country Reports

Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations

Legal and Ethical Considerations for the Design and Use of Web Portals for Researchers, Clinicians, and Patients: Scoping Literature Review

Letter: Relearning the 3 R's? Reinterpretation, recontact, and return of genetic variants

Mind the App: Considerations for the Future of Mobile Health in Canada

Next-Generation Sequencing and the Return of Results

Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility

Pediatric research 'personalized'? International perspectives on the return of results

Point-of-Care Genetic Tests for Infectious Disease: Legal Considerations

Population biobanking and international collaboration

Population studies: return of research results and incidental findings Policy Statement

RMGA Statement of Principles on the Return of Research Results and Incidental Findings

Reciprocity and the Quest for Meaningful Disclosure

Recontacting Pediatric Research Participants for Consent When They Reach the Age of Majority

Regulatory Landscape of International Direct-to-Participant (DTP) Genomic Research: Time to Untie the Gordian Knot?

Reporting results from whole-genome and whole-exome sequencing in clinical practice: a proposal for Canada?

Return of genetic testing results in the era of whole-genome sequencing

Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform

Sampling populations of humans across the world: ELSI issues

Special Issue - From Biobanks to the Clinic

Streamlining ethics review for international health research

Streamlining review of research involving humans: Canadian models

Strengthen climate adaptation research globally

The Canadian Partnership for Tomorrow Project: a pan-Canadian platform for research on chronic disease prevention.

The Provision of Genetic Testing and Related Services in Quebec, Canada

The Role of Whole Genome and Whole Exome Sequencing in Preventive Genomic Sequencing Programs

The app will see you now: mobile health, diagnosis, and the practice of medicine in Quebec and Ontario.

The author who wasn't there? Fairness and attribution in publications following access to population biobanks.

The best interests of the child and the return of results in genetic research: international comparative perspectives

The clinical application of genome-wide sequencing for monogenic diseases in Canada: Position Statement of the Canadian College of Medical Geneticists

The impact of reporting magnetic resonance imaging incidental findings in the Canadian alliance for healthy hearts and minds cohort

Towards a data sharing Code of Conduct for international genomic research

Towards an Ecology of Collective Innovation: Human Variome Project (HVP), Rare Disease Consortium for Autosomal Loci (RaDiCAL) and Data-Enabled Life Sciences Alliance (DELSA)

Towards an ethics safe harbor for global biomedical research

Vaccines of the 21st century and vaccinomics: data-enabled science meets global health to spark collective action for vaccine innovation.

What's in the Box?: Uncertain Accountability of Machine Learning Applications in Healthcare

Whole Genome Sequencing as a Genetic Test for Autism Spectrum Disorder: From Bench to Bedside and then Back Again

noncc de principes du RMGA sur la communication des rrsultats de recherche et des ddcouvertes fortuites (RMGA Statement of Principles on the Return of Research Results and Incidental Findings)