Lista de obras -

A draft human pangenome reference

scientific article published on 10 May 2023

A framework for enhancing ethical genomic research with Indigenous communities

artículo científico publicado en 2018

A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.

artículo científico publicado en 2015

An Ethical Case for Dual-Role Consent: Increasing Research Diversity as a Matter of Respect and Justice

scientific article published on 01 April 2019

Ancient-DNA researchers write their own rules

artículo científico publicado en 2021

Awareness and Acceptable Practices: IRB and Researcher Reflections on the Havasupai Lawsuit

artículo científico publicado en 2013

Beyond the recommendation: discerning achievable goals in clinical ethics consultation

artículo científico publicado en 2015

Carnitine palmitoyltransferase 1A P479L and infant death: policy implications of emerging data

artículo científico publicado en 2017

Creating a data resource: what will it take to build a medical information commons?

artículo científico publicado en 2017

Customers or research participants? Guidance for research practices in commercialization of personal genomics

artículo científico publicado en 2012

Direct-to-consumer genomics companies should provide guidance to their customers on (not) sharing personal genomic information.

artículo científico publicado en 2014

Forensic familial searching: scientific and social implications

artículo científico publicado en 2013

Genome-wide association studies of quantitatively measured skin, hair, and eye pigmentation in four European populations

artículo científico publicado en 2012

Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism

scientific article published on 01 January 2019

Genomics in the clinic: ethical and policy challenges in clinical next-generation sequencing programs at early adopter USA institutions

scientific article published on 01 June 2015

Impact of Psychiatric Information on Potential Jurors in Evaluating High-Functioning Autism Spectrum Disorder (hfASD).

artículo científico publicado en 2015

Meningococccal meningitis and complement component 6 deficiency associated with oculocutaneous albinism

scientific article published on 23 November 2004

Naming Indigenous Concerns, Framing Considerations for Stored Biospecimens

journal article; published in The American Journal of Bioethics in 2015

New Words and Old Stories: Indigenous Teachings in Health Care and Bioethics

journal article; published in The American Journal of Bioethics in 2016

Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey

scientific article published on 01 July 2018

Predicting phenotype from genotype: normal pigmentation

artículo científico publicado en 2010

Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US

artículo científico publicado en 2017

Relationships matter: ethical considerations for returning results to family members of deceased subjects

artículo científico publicado en 2013

Response to Patryn and Zagaja.

artículo científico publicado en 2016

Return of genomic results to research participants: the floor, the ceiling, and the choices in between

artículo científico publicado en 2014

Return of results in the genomic medicine projects of the eMERGE network

artículo científico publicado en 2014

Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data

scientific article published on 06 April 2020

Stress across generations: A qualitative study of stress, coping, and caregiving among Mexican immigrant mothers.

artículo científico publicado en 2017

The instrumental role of hospital ethics committees in policy work

artículo científico publicado en 2012

Trust, Precision Medicine Research, and Equitable Participation of Underserved Populations.

artículo científico publicado en 2018

Understanding as an Ethical Aspiration in an Era of Digital Technology-Based Communication: An Analysis of Informed Consent Functions

scientific article published on 01 May 2019

Lista de obras de

A draft human pangenome reference

A framework for enhancing ethical genomic research with Indigenous communities

A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.

An Ethical Case for Dual-Role Consent: Increasing Research Diversity as a Matter of Respect and Justice

Ancient-DNA researchers write their own rules

Awareness and Acceptable Practices: IRB and Researcher Reflections on the Havasupai Lawsuit

Beyond the recommendation: discerning achievable goals in clinical ethics consultation

Carnitine palmitoyltransferase 1A P479L and infant death: policy implications of emerging data

Creating a data resource: what will it take to build a medical information commons?

Customers or research participants? Guidance for research practices in commercialization of personal genomics

Direct-to-consumer genomics companies should provide guidance to their customers on (not) sharing personal genomic information.

Forensic familial searching: scientific and social implications

Genome-wide association studies of quantitatively measured skin, hair, and eye pigmentation in four European populations

Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism

Genomics in the clinic: ethical and policy challenges in clinical next-generation sequencing programs at early adopter USA institutions

Impact of Psychiatric Information on Potential Jurors in Evaluating High-Functioning Autism Spectrum Disorder (hfASD).

Meningococccal meningitis and complement component 6 deficiency associated with oculocutaneous albinism

Naming Indigenous Concerns, Framing Considerations for Stored Biospecimens

New Words and Old Stories: Indigenous Teachings in Health Care and Bioethics

Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey

Predicting phenotype from genotype: normal pigmentation

Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US

Relationships matter: ethical considerations for returning results to family members of deceased subjects

Response to Patryn and Zagaja.

Return of genomic results to research participants: the floor, the ceiling, and the choices in between

Return of results in the genomic medicine projects of the eMERGE network

Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data

Stress across generations: A qualitative study of stress, coping, and caregiving among Mexican immigrant mothers.

The instrumental role of hospital ethics committees in policy work

Trust, Precision Medicine Research, and Equitable Participation of Underserved Populations.

Understanding as an Ethical Aspiration in an Era of Digital Technology-Based Communication: An Analysis of Informed Consent Functions