Lista de obras - Sara Chandros Hull - Dominio Público Uruguay

A Clinical Service to Support the Return of Secondary Genomic Findings in Human Research

artículo científico publicado en 2016

Access to health insurance: experiences and attitudes of those with genetic versus non-genetic medical conditions.

artículo científico publicado en 2007

Alaska Native genomic research: perspectives from Alaska Native leaders, federal staff, and biomedical researchers

artículo científico publicado en 2020

Ambivalence toward undergoing invasive prenatal testing: an exploration of its origins

artículo científico publicado en 2010

Beyond Belmont: Ensuring Respect for AI/AN Communities Through Tribal IRBs, Laws, and Policies

journal article; published in The American Journal of Bioethics in 2017

Broad Consent for Research With Biological Samples: Workshop Conclusions

artículo científico publicado en 2015

Carrier screening panels for Ashkenazi Jews: is more better?

artículo científico publicado en 2005

Changing the Conversation about The Ethics of Genomics and Health Disparities Research with American Indian and Alaska Native Communities: A Report from the Field

artículo científico publicado en 2019

Consent forms and the therapeutic misconception: the example of gene transfer research

article

Constructing identities: the implications of DTC ancestry testing for tribal communities

scientific article published on 21 January 2019

Developing cellular therapies for retinal degenerative diseases

artículo científico publicado en 2014

Direct-to-consumer sales of genetic services on the Internet

artículo científico publicado en 2003

Disclosure and management of research findings in stem cell research and banking: policy statement.

artículo científico publicado en 2012

Disclosure of Incidental Findings From Next-Generation Sequencing in Pediatric Genomic Research ⬇️

artículo científico publicado el 11 de febrero de 2013

Disclosure, confidentiality, and families: Experiences and attitudes of those with genetic versus nongenetic medical conditions ⬇️

artículo científico publicado el 15 de mayo de 2003

Genetic research involving human biological materials: a need to tailor current consent forms

artículo científico publicado en 2004

Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants’ Relatives ⬇️

artículo científico publicado el 1 de enero de 2012

Genomics really gets personal: How exome and whole genome sequencing challenge the ethical framework of human genetics research ⬇️

artículo científico publicado el 28 de octubre de 2011

Grappling with genomic incidental findings in the clinical realm

scientific article published on February 2014

Harms of Deception in FMR1 Premutation Genotype-Driven Recruitment.

artículo científico publicado en 2017

Identifiability and privacy in pluripotent stem cell research

artículo científico publicado en 2014

Implementing the Single Institutional Review Board Model: Lessons from the Undiagnosed Diseases Network

artículo científico publicado en 2017

Institutional review board perspectives on obligations to disclose genetic incidental findings to research participants.

artículo científico publicado en 2015

Limitations of direct-to-consumer advertising for clinical genetic testing

artículo científico publicado en 2002

Medical privacy and the disclosure of personal medical information: the beliefs and experiences of those with genetic and other clinical conditions.

artículo científico publicado en 2004

Noninvasive Prenatal Whole Genome Sequencing: Pregnant Women's Views and Preferences

scientific article published on 01 March 2019

Patient attitudes about the clinical use of placebo: qualitative perspectives from a telephone survey

artículo científico publicado en 2016

Patients' attitudes about the use of placebo treatments: telephone survey

artículo científico publicado en 2013

Patients' views on identifiability of samples and informed consent for genetic research

artículo científico publicado en 2008

Pediatric biobanks: approaching informed consent for continuing research after children grow up.

artículo científico publicado en 2009

Physicians' responses to resource constraints

artículo científico publicado en 2005

Prenatal whole genome sequencing: just because we can, should we?

artículo científico publicado en 2012

Recontacting participants for expanded uses of existing samples and data: a case study.

artículo científico publicado en 2017

Recruitment approaches for family studies: attitudes of index patients and their relatives.

artículo científico publicado en 2004

Response to Open Peer Commentaries on “Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants’ Relatives” ⬇️

artículo científico publicado el 1 de enero de 2012

Scrutinizing the Right Not to Know

artículo científico publicado en 2015

Single IRBs Are Responsible to Ensure Consent Language Effectively Conveys the Local Context

artículo científico publicado en 2019

Specimen Collection for Induced Pluripotent Stem Cell Research: Harmonizing the Approach to Informed Consent ⬇️

artículo científico publicado el 8 de mayo de 2012

Surrogate receptivity to participation in critical illness genetic research: aligning research oversight and stakeholder concerns

artículo científico publicado en 2015

The "right not to know" in the genomic era: time to break from tradition?

artículo científico publicado en 2014

The DISCUSS Project: Revised Points to Consider for the Derivation of Induced Pluripotent Stem Cell Lines From Previously Collected Research Specimens

artículo científico publicado en 2015

The DISCUSS Project: induced pluripotent stem cell lines from previously collected research biospecimens and informed consent: points to consider

artículo científico publicado en 2013

The Ethics of Repurposing Previously Collected Research Biospecimens in an Infectious Disease Pandemic

artículo científico publicado en 2021

The Meaning of Informed Consent: Genome Editing Clinical Trials for Sickle Cell Disease

artículo científico publicado en 2020

The ethics of early evidence--preparing for a possible breakthrough in Alzheimer's disease

artículo científico publicado en 2012

The invisible hand in clinical research: the study coordinator's critical role in human subjects protection

artículo científico publicado en 2002

The limits of disclosure: what research subjects want to know about investigator financial interests

artículo científico publicado en 2006

The unintended implications of blurring the line between research and clinical care in a genomic age.

artículo científico publicado en 2014

The use of medical records in research: what do patients want?

artículo científico publicado en 2003

Towards a more representative morphology: clinical and ethical considerations for including diverse populations in diagnostic genetic atlases

artículo científico publicado en 2016

Views of American OB/GYNs on the ethics of prenatal whole-genome sequencing

artículo científico publicado en 2016

What does it mean to be identifiable?

artículo científico publicado en 2008

What does the duty to warn require?

artículo científico publicado en 2013

Lista de obras de Sara Chandros Hull

A Clinical Service to Support the Return of Secondary Genomic Findings in Human Research

Access to health insurance: experiences and attitudes of those with genetic versus non-genetic medical conditions.

Alaska Native genomic research: perspectives from Alaska Native leaders, federal staff, and biomedical researchers

Ambivalence toward undergoing invasive prenatal testing: an exploration of its origins

Beyond Belmont: Ensuring Respect for AI/AN Communities Through Tribal IRBs, Laws, and Policies

Broad Consent for Research With Biological Samples: Workshop Conclusions

Carrier screening panels for Ashkenazi Jews: is more better?

Changing the Conversation about The Ethics of Genomics and Health Disparities Research with American Indian and Alaska Native Communities: A Report from the Field

Consent forms and the therapeutic misconception: the example of gene transfer research

Constructing identities: the implications of DTC ancestry testing for tribal communities

Developing cellular therapies for retinal degenerative diseases

Direct-to-consumer sales of genetic services on the Internet

Disclosure and management of research findings in stem cell research and banking: policy statement.

Disclosure of Incidental Findings From Next-Generation Sequencing in Pediatric Genomic Research ⬇️

Disclosure, confidentiality, and families: Experiences and attitudes of those with genetic versus nongenetic medical conditions ⬇️

Genetic research involving human biological materials: a need to tailor current consent forms

Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants’ Relatives ⬇️

Genomics really gets personal: How exome and whole genome sequencing challenge the ethical framework of human genetics research ⬇️

Grappling with genomic incidental findings in the clinical realm

Harms of Deception in FMR1 Premutation Genotype-Driven Recruitment.

Identifiability and privacy in pluripotent stem cell research

Implementing the Single Institutional Review Board Model: Lessons from the Undiagnosed Diseases Network

Institutional review board perspectives on obligations to disclose genetic incidental findings to research participants.

Limitations of direct-to-consumer advertising for clinical genetic testing

Medical privacy and the disclosure of personal medical information: the beliefs and experiences of those with genetic and other clinical conditions.

Noninvasive Prenatal Whole Genome Sequencing: Pregnant Women's Views and Preferences

Patient attitudes about the clinical use of placebo: qualitative perspectives from a telephone survey

Patients' attitudes about the use of placebo treatments: telephone survey

Patients' views on identifiability of samples and informed consent for genetic research

Pediatric biobanks: approaching informed consent for continuing research after children grow up.

Physicians' responses to resource constraints

Prenatal whole genome sequencing: just because we can, should we?

Recontacting participants for expanded uses of existing samples and data: a case study.

Recruitment approaches for family studies: attitudes of index patients and their relatives.

Response to Open Peer Commentaries on “Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants’ Relatives” ⬇️

Scrutinizing the Right Not to Know

Single IRBs Are Responsible to Ensure Consent Language Effectively Conveys the Local Context

Specimen Collection for Induced Pluripotent Stem Cell Research: Harmonizing the Approach to Informed Consent ⬇️

Surrogate receptivity to participation in critical illness genetic research: aligning research oversight and stakeholder concerns

The "right not to know" in the genomic era: time to break from tradition?

The DISCUSS Project: Revised Points to Consider for the Derivation of Induced Pluripotent Stem Cell Lines From Previously Collected Research Specimens

The DISCUSS Project: induced pluripotent stem cell lines from previously collected research biospecimens and informed consent: points to consider

The Ethics of Repurposing Previously Collected Research Biospecimens in an Infectious Disease Pandemic

The Meaning of Informed Consent: Genome Editing Clinical Trials for Sickle Cell Disease

The ethics of early evidence--preparing for a possible breakthrough in Alzheimer's disease

The invisible hand in clinical research: the study coordinator's critical role in human subjects protection

The limits of disclosure: what research subjects want to know about investigator financial interests

The unintended implications of blurring the line between research and clinical care in a genomic age.

The use of medical records in research: what do patients want?

Towards a more representative morphology: clinical and ethical considerations for including diverse populations in diagnostic genetic atlases

Views of American OB/GYNs on the ethics of prenatal whole-genome sequencing

What does it mean to be identifiable?

What does the duty to warn require?