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Assessing the supportive care needs of parents with a child with a bleeding disorder using the Parental Needs Scale for Rare Diseases (PNS-RD): A single-centre pilot study

artículo científico publicado en 2019

HOw Patients view Extended half-life products: Impressions from real-world experience (The HOPE study)

artículo científico publicado en 2019

Health-Related Quality of Life and Psychological Aspects of Adults With Hemophilia in Iran

artículo científico publicado en 2018

Parental perspectives on gene therapy for children with haemophilia: The Exigency study

scientific article published on 20 November 2020

Pattern of bleeding in a large prospective cohort of haemophilia A patients: A three-year follow-up of the AHEAD (Advate in HaEmophilia A outcome Database) study

artículo científico publicado en 2017

Physiotherapy interventions for pain management in haemophilia: A systematic review

artículo científico publicado en 2020

Prophylactic bypassing agent use before and during immune tolerance induction in patients with haemophilia A and inhibitors to FVIII

scientific article published on 14 June 2018

Study of physical function in adolescents with haemophilia: The SO-FIT study.

artículo científico

The Kids' immune thrombocytopenia Tool is not suitable for assessing quality of life in children with platelet function disorders

scientific article published on 01 July 2018

The UK haemophilia specialist nurse: Competencies fit for practice in the 21st century

artículo científico publicado en 2020

The burden of bleeds and other clinical determinants on caregivers of children with haemophilia (the BBC Study)

scientific article published on 29 March 2019

The impact of clinical practice on the outcome of central venous access devices in children with haemophilia.

artículo científico publicado en 2017

The impact of psychosocial determinants on caregivers' burden of children with haemophilia (results of the BBC study)

artículo científico publicado en 2019

The top 10 research priorities in bleeding disorders: a James Lind Alliance Priority Setting Partnership

scientific article published on 23 April 2019

Validation of the Haemophilia & Exercise Project-Test-Questionnaire (HEP-Test-Q)-An instrument for the assessment of subjective physical functioning in children with haemophilia

artículo científico publicado en 2018

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