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Lista de obras de Sabina Gainotti

'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research

artículo científico publicado en 2016

A model for the European platform for rare disease registries.

artículo científico publicado en 2013

A personalist approach to public-health ethics.

artículo científico publicado en 2008

A study of the Healthy Growth Charter in socially disadvantaged children.

artículo científico publicado en 2011

Antipsychotics in individuals with intellectual disability

artículo científico publicado en 2008

Characterization and classification of Rare Disease Registries by using exploratory data analyses

artículo científico publicado en 2014

EPIRARE survey on activities and needs of rare disease registries in the European Union

Ethical Issues in Uterine Transplantation: Psychological Implications and Informed Consent

artículo científico publicado en 2017

Ethical models underpinning responses to threats to public health: a comparison of approaches to communicable disease control in Europe.

artículo científico publicado en 2008

Evaluation of medical practices in France: who is the best teacher?

scientific article published on 01 January 2008

From Experimental Technique to Clinical Practice: Which Pathway in Transplant Surgery?

scientific article published on 30 June 2018

How are the interests of incapacitated research participants protected through legislation? An Italian study on legal agency for dementia patients

artículo científico publicado en 2010

How legislation on decisional capacity can negatively affect the feasibility of clinical trials in patients with dementia

artículo científico publicado en 2012

Improving the informed consent process in international collaborative rare disease research: effective consent for effective research

artículo científico publicado en 2016

Informed consent in clinical research in France: assessment and factors associated with therapeutic misconception.

artículo científico publicado en 2008

Meeting Patients' Right to the Correct Diagnosis: Ongoing International Initiatives on Undiagnosed Rare Diseases and Ethical and Social Issues

scholarly article by Sabina Gainotti et al published 21 September 2018 in International Journal of Environmental Research and Public Health

Nonurgent patients in the emergency department? A French formula to prevent misuse

artículo científico publicado en 2010

Organ Transplantation From Nonstandard Risk Donors: Midway Between Rigid and Flexible Rules

scientific article published on 09 October 2019

Personalism for public health ethics.

artículo científico publicado en 2010

Rare disease registries classification and characterization: a data mining approach

artículo científico publicado en 2015

Recommendations for Improving the Quality of Rare Disease Registries

The EPIRARE proposal of a set of indicators and common data elements for the European platform for rare disease registration

artículo científico publicado en 2014

The Italian National Centre for Rare Diseases: where research and public health translate into action

artículo científico publicado en 2014

The Quality of Rare Disease Registries: Evaluation and Characterization.

artículo científico publicado en 2016

The RD-Connect Registry & Biobank Finder: a tool for sharing aggregated data and metadata among rare disease researchers

artículo científico publicado en 2018

The Role of Solidarity(-ies) in Rare Diseases Research.

artículo científico publicado en 2017

The TREAT-NMD Duchenne muscular dystrophy registries: conception, design, and utilization by industry and academia

artículo científico

The current situation and needs of rare disease registries in Europe.

artículo científico publicado en 2013

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