Lista de obras - Anna Middleton - Dominio Público Uruguay

'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods

article by Anna Middleton et al published 1 July 2018 in Personalized Medicine

A Maturity Matrix for Nurse Leaders to Facilitate and Benchmark Progress in Genomic Healthcare Policy, Infrastructure, Education, and Delivery

artículo científico publicado en 2020

A Roadmap for Global Acceleration of Genomics Integration Across Nursing

scientific article published on 17 April 2020

A pilot study of attitudes of deaf and hearing parents towards issues surrounding genetic testing for deafness

artículo científico publicado en 1997

A roadmap for restoring trust in Big Data

article by Mark Lawler et al published August 2018 in Lancet Oncology Commission

APPLaUD: access for patients and participants to individual level uninterpreted genomic data

artículo científico publicado en 2018

Attitudes of deaf adults toward genetic testing for hereditary deafness

artículo científico publicado en 1998

Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research

artículo científico publicado en 2015

Attitudes of publics who are unwilling to donate DNA data for research.

artículo científico publicado en 2018

Australians' perspectives on support around use of personal genomic testing: Findings from the Genioz study

artículo científico publicado en 2018

Australians' views and experience of personal genomic testing: survey findings from the Genioz study

scientific article published on 21 January 2019

Australians' views on personal genomic testing: focus group findings from the Genioz study

article

Communicating in a healthcare setting with people who have hearing loss.

artículo científico publicado en 2010

Communication about DTC testing: commentary on a 'family experience of personal genomics'.

artículo científico publicado en 2012

Congenital non-syndromal sensorineural hearing impairment due to connexin 26 gene mutations--molecular and audiological findings

artículo científico publicado en 1999

Consumer Health Informatics Aspects of Direct-to-Consumer Personal Genomic Testing

article

Direct-to-consumer genetic testing: where and how does genetic counseling fit?

article by Anna Middleton et al published May 2017 in Personalized Medicine

Editorial on Supervision

artículo científico publicado en 2007

Empirical research on the ethics of genomic research.

artículo científico publicado en 2013

Finding people who will tell you their thoughts on genomics-recruitment strategies for social sciences research

artículo científico publicado en 2014

From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing

artículo científico publicado en 2019

GA4GH: International policies and standards for data sharing across genomic research and healthcare

artículo científico publicado en 2021

Genetic counseling globally: Where are we now?

artículo científico publicado en 2018

Genetic counselling in the era of genomic medicine.

artículo científico publicado en 2018

Genetic counselors and Genomic Counseling in the United Kingdom

artículo científico publicado en 2015

Genetic diagnosis of developmental disorders in the DDD study: a scalable analysis of genome-wide research data

artículo científico publicado en 2014

Genetics in the 21st Century: Implications for patients, consumers and citizens.

artículo científico publicado en 2017

Genomic variant sharing: a position statement

artículo científico publicado en 2019

Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?

scientific article published on 14 September 2020

Global citizen deliberation on genome editing

scientific article published on 01 September 2020

Human Germline Genome Editing

artículo científico publicado en 2017

Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data

artículo científico publicado en 2019

No expectation to share incidental findings in genomic research

artículo científico publicado en 2014

Online questionnaire development: using film to engage participants and then gather attitudes towards the sharing of genomic data

artículo científico publicado en 2014

Policy challenges of clinical genome sequencing

artículo científico publicado en 2013

Popular culture and genetics; friend, foe or something more complex?

artículo científico publicado en 2018

Position statement on opportunistic genomic screening from the Association of Genetic Nurses and Counsellors (UK and Ireland).

artículo científico publicado en 2014

Potential research participants support the return of raw sequence data

artículo científico publicado en 2015

Prelingual deafness: high prevalence of a 30delG mutation in the connexin 26 gene

artículo científico publicado en 1997

Prenatal diagnosis for inherited deafness--what is the potential demand?

artículo científico publicado en 2001

Prevalence, phenotype and architecture of developmental disorders caused by de novo mutation

scholarly article

Professional duties are now considered legal duties of care within genomic medicine

artículo científico publicado en 2020

Providing a transcultural genetic counseling service in the UK.

artículo científico publicado en 2007

Reflections on the experience of counseling supervision by a team of genetic counselors from the UK.

artículo científico

Reply to Michie and Marteau.

artículo científico publicado en 1999

Report from the UK and Eire Association of Genetic Nurses and Counsellors (AGNC) Supervision Working Group on Genetic Counselling Supervision

artículo científico publicado en 2007

Reproductive liberty and deafness: Clause 14(4)(9) of embryo bill should be amended or deleted.

artículo científico publicado en 2008

Returning genome sequences to research participants: Policy and practice

artículo científico publicado en 2017

Socialising the genome.

artículo científico publicado en 2017

Society and personal genome data.

artículo científico publicado en 2018

Stakeholders in psychiatry and their attitudes toward receiving pertinent and incident findings in genomic research. ⬇️

artículo científico publicado en 2017

The Global Landscape of Nursing and Genomics.

artículo científico publicado en 2018

The Global State of the Genetic Counseling Profession

The preferences of potential stakeholders in psychiatric genomic research regarding consent procedures and information delivery

article published in 2018

The preferences of potential stakeholders in psychiatric genomic research regarding consent procedures and information delivery

The role of genetic counsellors in genomic healthcare in the United Kingdom: a statement by the Association of Genetic Nurses and Counsellors

artículo científico publicado en 2017

Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia

artículo científico publicado en 2019

Views, Knowledge, and Beliefs about Genetics and Genetic Counseling among Deaf People

article

Whose Deaf Genes Are They Anyway?: The Deaf Community’s Challenge to Legislation on Embryo Selection

article

Your DNA, Your Say.

artículo científico publicado en 2017

Lista de obras de Anna Middleton

'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods

A Maturity Matrix for Nurse Leaders to Facilitate and Benchmark Progress in Genomic Healthcare Policy, Infrastructure, Education, and Delivery

A Roadmap for Global Acceleration of Genomics Integration Across Nursing

A pilot study of attitudes of deaf and hearing parents towards issues surrounding genetic testing for deafness

A roadmap for restoring trust in Big Data

APPLaUD: access for patients and participants to individual level uninterpreted genomic data

Attitudes of deaf adults toward genetic testing for hereditary deafness

Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research

Attitudes of publics who are unwilling to donate DNA data for research.

Australians' perspectives on support around use of personal genomic testing: Findings from the Genioz study

Australians' views and experience of personal genomic testing: survey findings from the Genioz study

Australians' views on personal genomic testing: focus group findings from the Genioz study

Communicating in a healthcare setting with people who have hearing loss.

Communication about DTC testing: commentary on a 'family experience of personal genomics'.

Congenital non-syndromal sensorineural hearing impairment due to connexin 26 gene mutations--molecular and audiological findings

Consumer Health Informatics Aspects of Direct-to-Consumer Personal Genomic Testing

Direct-to-consumer genetic testing: where and how does genetic counseling fit?

Editorial on Supervision

Empirical research on the ethics of genomic research.

Finding people who will tell you their thoughts on genomics-recruitment strategies for social sciences research

From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing

GA4GH: International policies and standards for data sharing across genomic research and healthcare

Genetic counseling globally: Where are we now?

Genetic counselling in the era of genomic medicine.

Genetic counselors and Genomic Counseling in the United Kingdom

Genetic diagnosis of developmental disorders in the DDD study: a scalable analysis of genome-wide research data

Genetics in the 21st Century: Implications for patients, consumers and citizens.

Genomic variant sharing: a position statement

Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?

Global citizen deliberation on genome editing

Human Germline Genome Editing

Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data

No expectation to share incidental findings in genomic research

Online questionnaire development: using film to engage participants and then gather attitudes towards the sharing of genomic data

Policy challenges of clinical genome sequencing

Popular culture and genetics; friend, foe or something more complex?

Position statement on opportunistic genomic screening from the Association of Genetic Nurses and Counsellors (UK and Ireland).

Potential research participants support the return of raw sequence data

Prelingual deafness: high prevalence of a 30delG mutation in the connexin 26 gene

Prenatal diagnosis for inherited deafness--what is the potential demand?

Prevalence, phenotype and architecture of developmental disorders caused by de novo mutation

Professional duties are now considered legal duties of care within genomic medicine

Providing a transcultural genetic counseling service in the UK.

Reflections on the experience of counseling supervision by a team of genetic counselors from the UK.

Reply to Michie and Marteau.

Report from the UK and Eire Association of Genetic Nurses and Counsellors (AGNC) Supervision Working Group on Genetic Counselling Supervision

Reproductive liberty and deafness: Clause 14(4)(9) of embryo bill should be amended or deleted.

Returning genome sequences to research participants: Policy and practice

Socialising the genome.

Society and personal genome data.

Stakeholders in psychiatry and their attitudes toward receiving pertinent and incident findings in genomic research. ⬇️

The Global Landscape of Nursing and Genomics.

The Global State of the Genetic Counseling Profession

The preferences of potential stakeholders in psychiatric genomic research regarding consent procedures and information delivery

The preferences of potential stakeholders in psychiatric genomic research regarding consent procedures and information delivery

The role of genetic counsellors in genomic healthcare in the United Kingdom: a statement by the Association of Genetic Nurses and Counsellors

Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia

Views, Knowledge, and Beliefs about Genetics and Genetic Counseling among Deaf People

Whose Deaf Genes Are They Anyway?: The Deaf Community’s Challenge to Legislation on Embryo Selection

Your DNA, Your Say.