Lista de obras - Stephanie A Kraft - Dominio Público Uruguay

A comparison of institutional review board professionals' and patients' views on consent for research on medical practices

artículo científico publicado en 2016

Adrift in the Gray Zone: IRB Perspectives on Research in the Learning Health System

artículo científico publicado en 2016

An Ethical Case for Dual-Role Consent: Increasing Research Diversity as a Matter of Respect and Justice

scientific article published on 01 April 2019

Attending to the Interrelatedness of the Functions of Consent

artículo científico publicado en 2017

Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research

scientific article published on 01 April 2018

Bridging the Researcher-Participant Gap: A Research Agenda to Build Effective Research Relationships

scientific article published on 01 June 2020

Demonstrating 'respect for persons' in clinical research: findings from qualitative interviews with diverse genomics research participants

scientific article published on 06 October 2020

Engaging populations underrepresented in research through novel approaches to consent.

artículo científico publicado en 2018

Exploring Ethical Concerns About Human Challenge Studies: A Qualitative Study of Controlled Human Malaria Infection Study Participants' Motivations and Attitudes

scientific article published on 26 December 2018

Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution

artículo científico publicado en 2020

Participant Reactions to a Literacy-Focused, Web-Based Informed Consent Approach for a Genomic Implementation Study

scientific article published on 26 September 2020

Patient actions and reactions after receiving negative results from expanded carrier screening.

artículo científico publicado en 2018

Patient perspectives on the use of categories of conditions for decision making about genomic carrier screening results

scientific article published on 18 December 2017

Promoting Disclosure and Understanding in Informed Consent: Optimizing the Impact of the Common Rule “Key Information” Requirement

artículo científico publicado en 2021

Respect and Trustworthiness in the Patient-Provider-Machine Relationship: Applying a Relational Lens to Machine Learning Healthcare Applications