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Lista de obras de Rachel Knowles

"I was so worried about every drop of milk" - feeding problems at home are a significant concern for parents after major heart surgery in infancy

artículo científico publicado en 2016

Challenges for funders in monitoring compliance with policies on clinical trials registration and reporting: analysis of funding and registry data in the UK

artículo científico publicado en 2020

Combining qualitative and quantitative operational research methods to inform quality improvement in pathways that span multiple settings

artículo científico publicado en 2017

Comparing the clinical and economic effects of clinical examination, pulse oximetry, and echocardiography in newborn screening for congenital heart defects: a probabilistic cost-effectiveness model and value of information analysis

artículo científico publicado en 2007

Death and Emergency Readmission of Infants Discharged After Interventions for Congenital Heart Disease: A National Study of 7643 Infants to Inform Service Improvement ⬇️

artículo científico publicado en 2016

Ethics, governance and consent in the UK: implications for research into the longer-term outcomes of congenital heart defects.

artículo científico publicado en 2009

Ethnic and socioeconomic variation in incidence of congenital heart defects ⬇️

artículo científico publicado en 2016

Ethnic-specific mortality of infants undergoing congenital heart surgery in England and Wales

scientific article published on 01 March 2019

Functional health status of adults with tetralogy of Fallot: matched comparison with healthy siblings.

artículo científico publicado en 2012

Going home after infant cardiac surgery: a UK qualitative study

artículo científico publicado en 2016

Identifying improvements to complex pathways: evidence synthesis and stakeholder engagement in infant congenital heart disease

artículo científico publicado en 2016

Incidence and clinical features of congenital adrenal hyperplasia in Great Britain

artículo científico publicado en 2012

Issues facing families of infants discharged after cardiac surgery: the perceptions of charity helpline staff

artículo científico publicado en 2018

Late clinical presentation of congenital adrenal hyperplasia in older children: findings from national paediatric surveillance

artículo científico publicado en 2013

Life Study: a UK-wide birth cohort study of environment, development, health, and wellbeing

scientific article published in The Lancet

Modelling survival and mortality risk to 15 years of age for a national cohort of children with serious congenital heart defects diagnosed in infancy.

artículo científico publicado en 2014

Mortality with congenital heart defects in England and Wales, 1959-2009: exploring technological change through period and birth cohort analysis.

artículo científico publicado en 2012

Newborn screening for congenital heart defects: a systematic review and cost-effectiveness analysis.

artículo científico publicado en 2005

Parents' Experiences of Caring for Their Child at the Time of Discharge After Cardiac Surgery and During the Postdischarge Period: Qualitative Study Using an Online Forum.

artículo científico publicado en 2018

Parents� Experiences of Caring for Their Child at the Time of Discharge After Cardiac Surgery and During the Postdischarge Period: Qualitative Study Using an Online Forum (Preprint)

Patient-reported outcome measures (PROMs) in paediatric ophthalmology: a systematic review

artículo científico

Patient-reported quality of life outcomes for children with serious congenital heart defects.

artículo científico publicado en 2014

Prevalence of permanent childhood hearing loss detected at the universal newborn hearing screen: Systematic review and meta-analysis

scientific article published on 11 July 2019

Quality of life and congenital heart defects: comparing parent and professional values

artículo científico publicado en 2006

Risk factors for permanent childhood hearing impairment

artículo científico publicado en 2018

Self-Reported Health Experiences of Children Living with Congenital Heart Defects: Including Patient-Reported Outcomes in a National Cohort Study

artículo científico publicado en 2016

Sharing and reuse of individual participant data from clinical trials: principles and recommendations.

artículo científico publicado en 2017

Signs of deterioration in infants discharged home following congenital heart surgery in the first year of life: a qualitative study

artículo científico publicado en 2016

Surveillance of rare diseases: a public health evaluation of the British Paediatric Surveillance Unit

artículo científico publicado en 2011

The impact and efficacy of routine pulse oximetry screening for CHD in a local hospital

artículo científico publicado en 2016

The implementation of a new parallel child health record

article

Twenty years of active paediatric surveillance in the the UK and Republic of Ireland

artículo científico publicado en 2006

Unexpected deaths and unplanned re-admissions in infants discharged home after cardiac surgery: a systematic review of potential risk factors

artículo científico publicado en 2014

Using multiple sources to improve and measure case ascertainment in surveillance studies: 20 years of the British Paediatric Surveillance Unit

artículo científico publicado en 2006

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