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Lista de obras de Johannes van Delden

"The good life" for demented persons living in nursing homes

scientific article published on 01 December 2004

A Health Professions Education Research-Specific Ethical Review Board

artículo científico publicado en 2016

A Qualitative Study into Dependent Relationships and Voluntary Informed Consent for Research in Pediatric Oncology

artículo científico publicado en 2016

A comparison of physicians' end-of-life decision making for non-western migrants and Dutch natives in the Netherlands

scientific article published on 27 September 2008

A framework for the ethics review of education research.

artículo científico

A qualitative study on acceptable levels of risk for pregnant women in clinical research

artículo científico publicado en 2017

A qualitative study on stakeholders' views on the participation of pregnant women in the APOSTEL VI study: a low-risk obstetrical RCT

A thick opt-out is often sufficient

artículo científico publicado en 2013

Accuracy of the Wells clinical prediction rule for pulmonary embolism in older ambulatory adults

artículo científico publicado en 2014

Adaptive trials in clinical research: scientific and ethical issues to consider

artículo científico publicado en 2012

Advance care planning in patients with advanced cancer: A 6-country, cluster-randomised clinical trial

artículo científico publicado en 2020

Advance care planning--a multi-centre cluster randomised clinical trial: the research protocol of the ACTION study

artículo científico publicado en 2016

Aims and tasks in parental caregiving for children receiving palliative care at home: a qualitative study

artículo científico publicado en 2017

Am I My Family's Keeper? Disclosure Dilemmas in Next-Generation Sequencing

artículo científico publicado en 2016

Assistance in dying for older people without a serious medical condition who have a wish to die: a national cross-sectional survey

artículo científico publicado en 2013

Balancing research interests and patient interests: a qualitative study into the intertwinement of care and research in paediatric oncology

artículo científico publicado en 2015

Barriers and facilitators to the implementation of a paediatric palliative care team

artículo científico publicado en 2018

Being a parent of a child with cancer throughout the end-of-life course

artículo científico publicado en 2011

Being there: parenting the child with acute lymphoblastic leukaemia

artículo científico publicado en 2008

Beliefs on mandatory influenza vaccination of health care workers in nursing homes: a questionnaire study from the Netherlands

artículo científico publicado en 2009

Big Data in medical research and EU data protection law: challenges to the consent or anonymise approach

artículo científico publicado en 2015

Broad Consent Is Consent for Governance

artículo científico publicado en 2015

Challenges of informed consent for pragmatic trials

artículo científico publicado en 2017

Clarifying assent in pediatric research

artículo científico publicado en 2013

Classification of end-of-life decisions by Dutch physicians: findings from a cross-sectional survey

artículo científico publicado en 2020

Comorbidity and favorable neurologic outcome after out-of-hospital cardiac arrest in patients of 70 years and older

artículo científico publicado en 2015

Comparative Survival among Older Adults with Advanced Kidney Disease Managed Conservatively Versus with Dialysis.

artículo científico publicado en 2016

Comparatively low attendance during Human Papillomavirus catch-up vaccination among teenage girls in the Netherlands: Insights from a behavioral survey among parents

artículo científico publicado en 2012

Conflating scientific with clinical considerations

artículo científico publicado en 2009

Consent procedures in pediatric biobanks

artículo científico publicado en 2014

Considerations of physicians about the depth of palliative sedation at the end of life

artículo científico publicado en 2012

Continuous deep sedation for patients nearing death in the Netherlands: descriptive study

artículo científico publicado en 2008

Continuous palliative sedation for cancer and noncancer patients

artículo científico publicado en 2011

Dances with data

artículo científico publicado en 1993

Decision theory and the evaluation of risks and benefits of clinical trials

artículo científico publicado en 2012

Decisions to withhold diagnostic investigations in nursing home patients with a clinical suspicion of venous thromboembolism

artículo científico publicado en 2014

Determinants of successful implementation of population-based cancer screening programmes

artículo científico publicado en 2011

Developments in euthanasia practice in the Netherlands: Balancing professional responsibility and the patient's autonomy

artículo científico publicado en 2018

Diagnostic accuracy of conventional or age adjusted D-dimer cut-off values in older patients with suspected venous thromboembolism: systematic review and meta-analysis

artículo científico publicado en 2013

Disclosure of individual genetic data to research participants: the debate reconsidered

artículo científico publicado en 2010

Do-Not-Resuscitate, the next generation: VF-only

artículo científico publicado en 2013

Do-not-resuscitate decisions in six European countries*

Doctor-assisted dying: what difference does legalisation make?

artículo científico publicado en 2004

Drug regulators and ethics: which GCP issues are also ethical issues?

artículo científico publicado en 2015

Dutch experience of monitoring active ending of life for newborns

scientific article published on April 2010

End-of-Life Decisions in the Netherlands over 25 Years

artículo científico publicado en 2017

End-of-life decision-making in Canada: the report by the Royal Society of Canada expert panel on end-of-life decision-making

artículo científico publicado en 2011

End-of-life practices in the Netherlands under the Euthanasia Act

artículo científico publicado en 2007

Equipoise should be amended, not abandoned

artículo científico publicado en 2011

Estimating the potential life-shortening effect of continuous sedation until death: a comparison between two approaches

artículo científico publicado en 2014

Ethical challenges for pediatric liver organoid transplantation

artículo científico publicado en 2020

Ethical implications of regenerative medicine in orthopedics: an empirical study with surgeons and scientists in the field

artículo científico publicado en 2013

Ethics of Informed Consent for Pragmatic Trials with New Interventions

artículo científico publicado en 2017

Euthanasia or physician-assisted suicide? A survey from the Netherlands

artículo científico publicado en 2013

Evaluation of lexical clarification by patients reading their clinical notes: a quasi-experimental interview study

artículo científico publicado en 2020

Facilitators and barriers to pregnant women's participation in research: A systematic review

artículo científico publicado en 2018

Factors influencing parental readiness to let their child with cancer die.

artículo científico publicado en 2010

Fair inclusion of pregnant women in clinical trials: an integrated scientific and ethical approach

artículo científico publicado en 2018

Forgoing artificial nutrition or hydration in patients nearing death in six European countries.

artículo científico publicado en 2007

Forgoing treatment at the end of life in 6 European countries

artículo científico publicado en 2005

Ideals regarding a good life for nursing home residents with dementia: views of professional caregivers

artículo científico publicado en 2005

Inclusion of residual tissue in biobanks: opt-in or opt-out?

artículo científico publicado en 2012

Informed consent and phase IV non-interventional drug research.

artículo científico publicado en 2011

Introducing PALETTE: an iterative method for conducting a literature search for a review in palliative care.

artículo científico publicado en 2018

Intuitions in Moral Reasoning – Normative Empirical Reflective Equilibrium as a Model for Substantial Justification of Moral Claims

Involvement of the Dutch general population in advance care planning: a cross-sectional survey

artículo científico publicado en 2013

Is It Our Duty To Hunt for Pathogenic Mutations?

artículo científico publicado en 2017

Is a New Protocol for Acute Lymphoblastic Leukemia Research or Standard Therapy?

artículo científico publicado en 2015

Is informed consent necessary for randomized Phase IV 'observational' drug studies?

artículo científico publicado en 2011

Is physician-assisted death only for developed countries? Latin America as a case study.

artículo científico publicado en 2004

Justification of exclusion criteria was underreported in a review of cardiovascular trials

artículo científico

Medical decision-making for seriously ill non-elderly and elderly patients

scientific article published on 01 December 2005

Mini-guts in a dish: Perspectives of adult Cystic Fibrosis (CF) patients and parents of young CF patients on organoid technology.

artículo científico publicado en 2018

Modified informed consent procedure: consent to postponed information

artículo científico publicado en 2003

Moral Duties of Genomics Researchers: Why Personalized Medicine Requires a Collective Approach

artículo científico publicado en 2016

Moral intuitions as a source for empirical ethics.

artículo científico publicado en 2002

Need for tailored strategies to diagnose venous thrombo-embolism in older primary care patients. Extension of a keynote presentation at the 2012 Wonca Europe conference.

artículo científico publicado en 2013

News media coverage of euthanasia: a content analysis of Dutch national newspapers

artículo científico publicado en 2013

Next-generation sequencing: does the next generation still have a right to an open future?

artículo científico publicado en 2013

Old age and forgoing treatment: a nationwide mortality follow-back study in the Netherlands

artículo científico publicado en 2015

On using people merely as a means in clinical research

artículo científico publicado en 2010

Opinions about euthanasia and advanced dementia: a qualitative study among Dutch physicians and members of the general public

artículo científico publicado en 2015

Opinions of health care professionals and the public after eight years of euthanasia legislation in the Netherlands: a mixed methods approach.

artículo científico publicado en 2012

Opinions of the Dutch public on palliative sedation: a mixed-methods approach

scientific article published on October 2013

Organoid biobanking: identifying the ethics: Organoids revive old and raise new ethical challenges for basic research and therapeutic use.

artículo científico publicado en 2016

Organoids as hybrids: ethical implications for the exchange of human tissues

artículo científico publicado en 2018

Palliative sedation: not just normal medical practice. Ethical reflections on the Royal Dutch Medical Association's guideline on palliative sedation

artículo científico publicado en 2012

Parental experience at the end-of-life in children with cancer: 'preservation' and 'letting go' in relation to loss

artículo científico publicado en 2009

Participant selection for preventive Regenerative Medicine trials: ethical challenges of selecting individuals at risk

artículo científico publicado en 2015

Patient representatives' contributions to the benefit-risk assessment tasks of the European Medicines Agency scientific committees

artículo científico publicado en 2014

Patients' evaluation of informed consent to postponed information: cohort study

artículo científico publicado en 2004

Pediatric oncology as a Learning Health System: Ethical implications for best available treatment protocols

artículo científico publicado en 2018

Personalized assent for pediatric biobanks

artículo científico publicado en 2016

Phase IV non-inferiority trials and additional claims of benefit

artículo científico publicado en 2013

Phase IV research: innovation in need of ethics

article

Physicians' and Public Attitudes Toward Euthanasia in People with Advanced Dementia

scientific article published on 11 July 2020

Physicians' experiences with euthanasia: a cross-sectional survey amongst a random sample of Dutch physicians to explore their concerns, feelings and pressure

artículo científico publicado en 2019

Physicians' willingness to grant requests for assistance in dying for children: a study of hypothetical cases

artículo científico publicado en 2005

Postmortem disclosure of genetic information to family members: active or passive?

artículo científico publicado en 2015

Pragmatic clinical trials: ethical imperatives and opportunities

scientific article published on 12 June 2018

Pragmatic randomized trials in drug development pose new ethical questions: a systematic review

artículo científico

Pre-arrest predictors of survival after resuscitation from out-of-hospital cardiac arrest in the elderly a systematic review

artículo científico publicado en 2013

Preemptive use of palliative sedation and amyotrophic lateral sclerosis

artículo científico publicado en 2012

Prevention comes of age?

scientific article published on 01 January 2003

Professional opinion on oral cleft during pregnancy: a comparison between Israel and The Netherlands

artículo científico publicado en 2015

Public and physicians' support for euthanasia in people suffering from psychiatric disorders: a cross-sectional survey study

scientific article published on 11 September 2019

Real-Time Access to Electronic Health Record via a Patient Portal: Is it Harmful? A Retrospective Observational Study

scientific article published on 06 February 2020

Reconsidering the ethics of sham interventions in an era of emerging technologies

artículo científico publicado en 2015

Reply to Waligora

artículo científico publicado en 2013

Reporting of euthanasia and physician-assisted suicide in the Netherlands: descriptive study

artículo científico publicado en 2009

Response to open peer commentaries on "What is the best standard for the standard of care in clinical research?".

artículo científico publicado en 2009

Responsible data sharing in international health research: a systematic review of principles and norms

article

Revised CIOMS International Ethical Guidelines for Health-Related Research Involving Humans

artículo científico publicado en 2017

Should we deny ICU admission to the elderly? Ethical considerations in times of COVID-19

artículo científico publicado en 2020

Societal impacts of regenerative medicine: reflections on the views of orthopedic professionals

artículo científico publicado en 2015

Stakeholders' views on the ethical challenges of pragmatic trials investigating pharmaceutical drugs

artículo científico publicado en 2016

Stem cell trials for cardiovascular medicine: ethical rationale

artículo científico publicado en 2013

Strengths and weaknesses of guideline approaches to safeguard voluntary informed consent of patients within a dependent relationship

artículo científico publicado en 2014

Studying the lay of the land: views and experiences of professionals in the translational pluripotent stem cell field

artículo científico publicado en 2015

Survival after Perioperative Cardiopulmonary Resuscitation: Providing an Evidence Base for Ethical Management of Do-not-resuscitate Orders

artículo científico

Tailor-made pharmacotherapy: future developments and ethical challenges in the field of pharmacogenomics.

artículo científico publicado en 2004

Terminal sedation and euthanasia: a comparison of clinical practices

artículo científico publicado en 2006

Terminal sedation: source of a restless ethical debate

artículo científico publicado en 2007

The Rising Frequency of Continuous Deep Sedation in the Netherlands, a Repeated Cross-Sectional Survey in 2005, 2010, and 2015

artículo científico publicado en 2019

The Social Value of Pragmatic Trials

artículo científico publicado en 2017

The ethics of cluster-randomized trials requires further evaluation: a refinement of the Ottawa Statement

artículo científico publicado en 2015

The fiduciary obligation of the physician-researcher in phase IV trials

artículo científico publicado en 2014

The inherent ethical challenge of first-in-human pluripotent stem cell trials

artículo científico publicado en 2014

The need to balance merits and limitations from different disciplines when considering the stepped wedge cluster randomized trial design

artículo científico publicado en 2015

The need to explicate the ethical evaluation tools to avoid ethical inflation

artículo científico publicado en 2009

The parents' ability to attend to the "voice of their child" with incurable cancer during the palliative phase

artículo científico publicado en 2015

The predictive value of early acute kidney injury for long-term survival and quality of life of critically ill patients

artículo científico publicado en 2016

The risk-benefit task of research ethics committees: an evaluation of current approaches and the need to incorporate decision studies methods

artículo científico publicado en 2012

The social value of clinical research

artículo científico publicado en 2014

The unfortunate research inertia on studying VTE in nursing homes

artículo científico publicado en 2015

The unique status of first-in-human studies: strengthening the social value requirement

artículo científico publicado en 2016

Toward a "post-posthuman dignity area" in evaluating emerging enhancement technologies.

artículo científico publicado en 2010

Trends in end-of-life practices before and after the enactment of the euthanasia law in the Netherlands from 1990 to 2010: a repeated cross-sectional survey

artículo científico

Two Decades of Research on Euthanasia from the Netherlands. What Have We Learnt and What Questions Remain?

artículo científico publicado en 2009

Two decades of do-not-resuscitate decisions in the Netherlands

artículo científico publicado en 2015

Une mort tres douce: end-of-life decisions in France; reflections from a Dutch perspective

artículo científico publicado en 2006

Unraveling patients' readiness in advance care planning conversations: a qualitative study as part of the ACTION Study

scientific article published on 01 October 2020

Uptake of influenza vaccination in Dutch nursing home personnel following national recommendations

scientific article published on 01 September 2007

Use and the Users of a Patient Portal: Cross-Sectional Study

scientific article published on 17 September 2018

Validation of the Oudega diagnostic decision rule for diagnosing deep vein thrombosis in frail older out-of-hospital patients

artículo científico publicado en 2014

Validation of two age dependent D-dimer cut-off values for exclusion of deep vein thrombosis in suspected elderly patients in primary care: retrospective, cross sectional, diagnostic analysis

artículo científico publicado en 2012

Value-based evaluation of dialysis versus conservative care in older patients with advanced chronic kidney disease: a cohort study

scholarly article by Wouter R Verberne et al published 16 August 2018 in BMC Nephrology

What do international ethics guidelines say in terms of the scope of medical research ethics?

artículo científico publicado en 2016

What is the best standard for the standard of care in clinical research?

scientific article published on March 2009

When Children Become Adults: Should Biobanks Re-Contact?

artículo científico publicado en 2016

[Frequency and characteristics of use of morphine at the end of life: a cross-sectional study]

[Hip fracture in patients with dementia: surgery is not always the best alternative]

scientific article published on 01 January 2012

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