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Lista de obras de Mahsa Shabani

"You want the right amount of oversight": interviews with data access committee members and experts on genomic data access

artículo científico publicado en 2016

A review of the key issues associated with the commercialization of biobanks

artículo científico publicado en 2014

Attitudes of research participants and the general public towards genomic data sharing: a systematic literature review

artículo científico publicado en 2014

Challenges of web-based personal genomic data sharing

artículo científico publicado en 2015

Controlled Access under Review: Improving the Governance of Genomic Data Access

artículo científico publicado en 2015

Credit and Recognition for Contributions to Data-Sharing Platforms Among Cohort Holders and Platform Developers in Europe: Interview Study

artículo científico publicado en 2022

Data sharing platforms and the academic evaluation system

scientific article published on 12 July 2020

Data sharing platforms: instruments to inform and shape science policy on data sharing?

scientific article published in 2022

From the principles of genomic data sharing to the practices of data access committees

artículo científico publicado en 2015

Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?

artículo científico publicado en 2017

RESEARCH ETHICS. Ethics review for international data-intensive research

artículo científico publicado en 2016

Raw Genomic Data: Storage, Access, and Sharing.

artículo científico publicado en 2017

Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory

Registered access: a 'Triple-A' approach

artículo científico publicado en 2016

Research ethics review for the use of anonymized samples and data: A systematic review of normative documents.

artículo científico publicado en 2017

Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation.

artículo científico publicado en 2017

The challenges of the expanded availability of genomic information: an agenda-setting paper

artículo científico publicado en 2017

Toward better governance of human genomic data

artículo científico publicado en 2021

Transparency and objectivity in governance of clinical trials data sharing: Current practices and approaches

scientific article published on 26 July 2019

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