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Lista de obras de Yann Joly

A decision tool to guide the ethics review of a challenging breed of emerging genomic projects

artículo científico publicado en 2016

A proposal for an inclusive working definition of genetic discrimination to promote a more coherent debate

artículo científico publicado en 2024

A review of the key issues associated with the commercialization of biobanks

artículo científico publicado en 2014

ACCE, Pharmacogenomics, and Stopping Clinical Trials: Time to Extend the CONSORT Statement? ⬇️

artículo científico publicado el 1 de marzo de 2011

Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations

artículo científico publicado en 2018

Addressing Privacy Concerns in Sharing Viral Sequences and Minimum Contextual Data in a Public Repository During the COVID-19 Pandemic

artículo científico publicado en 2022

Addressing cancer family history at the end of life: How frequent, relevant, and feasible is it? A survey of palliative care providers

scientific article published on 26 April 2019

An ethical and legal overview of pharmacogenomics: perspectives and issues.

artículo científico publicado en 2008

An implementation framework for the feedback of individual research results and incidental findings in research

artículo científico publicado en 2014

Are Data Sharing and Privacy Protection Mutually Exclusive?

artículo científico publicado en 2016

Are We Asking the Right Ethics Questions on Drug Shortages? Suggestions for a Global and Anticipatory Ethics Framework ⬇️

artículo científico publicado el 1 de enero de 2012

Benefits and barriers in the design of harmonized access agreements for international data sharing

scientific article published on 02 December 2019

Breast Cancer Risk Estimation and Personal Insurance: A Qualitative Study Presenting Perspectives from Canadian Patients and Decision Makers

artículo científico publicado en 2017

Clinical exome sequencing in France and Quebec: what are the challenges? What does the future hold?

article

Commercial Opportunities and Ethical Pitfalls in Personalized Medicine: A Myriad of Reasons to Revisit the Myriad Genetics Saga

artículo científico publicado en 2013

Commercialization versus open science: Making sense of the message(s) in the bottle

scientific article published in 2012

Communicating science: epigenetics in the spotlight

scientific article published on 18 November 2020

Comparative Approaches to Genetic Discrimination: Chasing Shadows?

artículo científico publicado en 2017

Controlled Access under Review: Improving the Governance of Genomic Data Access

artículo científico publicado en 2015

Correction to: Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations

artículo científico publicado en 2019

Country Reports

artículo científico publicado en 2019

Currents in Contemporary Bioethics: Open Access as Benefit Sharing? The Example of Publicly Funded Large-Scale Genomic Databases ⬇️

artículo científico publicado el 1 de enero de 2012

Currents in contemporary ethics. The tuberculosis scare in retrospect

artículo científico publicado en 2007

DNA Testing for Family Reunification in Canada: Points to Consider

article

Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO)

artículo científico publicado en 2012

Diagnostic testing for vaccinomics: is the regulatory approval framework adequate? A comparison of Canada, the United States, and Europe

artículo científico publicado en 2011

Disease Resistance and the Definition of Genetic Enhancement

artículo científico publicado en 2017

Don Chalmers: His Contributions to Legal Research and Education, Health Law, and Research Ethics, Locally and Globally

artículo científico publicado en 2020

Epigenetic Discrimination: Emerging Applications of Epigenetics Pointing to the Limitations of Policies Against Genetic Discrimination.

artículo científico publicado en 2018

Epigenetics ELSI: Darker Than You Think?

artículo científico publicado en 2016

Epigenetics, ethics, law and society: A multidisciplinary review of descriptive, instrumental, dialectical and reflexive analyses

artículo científico publicado en 2019

Epigenome data release: a participant-centered approach to privacy protection

artículo científico publicado en 2015

Epigenome-based cancer risk prediction: rationale, opportunities and challenges.

artículo científico publicado en 2018

Establishing the International Genetic Discrimination Observatory

artículo científico publicado en 2020

Ethical issues of CRISPR technology and gene editing through the lens of solidarity

artículo científico publicado en 2017

Evaluation of BRCA1 and BRCA2 mutation prevalence, risk prediction models and a multistep testing approach in French-Canadian families with high risk of breast and ovarian cancer

artículo científico publicado en 2006

Evolving data access policy: The Canadian context

artículo científico publicado en 2016

Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking

artículo científico publicado en 2015

Falling giants and the rise of gene editing: ethics, private interests and the public good

artículo científico publicado en 2017

Forward Look: Tenth Anniversary of the Human Genome Sequence and 21 Century Postgenomics Global Health - A Close Up on Africa and Women's Health

artículo científico publicado en 2011

GA4GH: International policies and standards for data sharing across genomic research and healthcare

artículo científico publicado en 2021

Genetic discrimination and life insurance: a systematic review of the evidence

artículo científico publicado en 2013

Genetic information and life insurance: a 'real' risk?

artículo científico publicado en 2003

Genetics and Personal Insurance: the Perspectives of Canadian Cancer Genetic Counselors

artículo científico publicado en 2015

Genomic cloud computing: legal and ethical points to consider

artículo científico publicado en 2014

Genomic databases access agreements: legal validity and possible sanctions ⬇️

artículo científico publicado el 25 de junio de 2011

Genomics for All: International Open Science Genomics Projects and Capacity Building in the Developing World

Genomics: data sharing needs an international code of conduct

artículo científico publicado en 2020

Harm, hype and evidence: ELSI research and policy guidance

artículo científico publicado en 2013

Improved understanding of genetic and genomic influences on drug disposition and action : implications for children

artículo científico publicado en 2008

Incidental Findings in Data-Intensive Postgenomics Science and Legal Liability of Clinician–Researchers: Ready for Vaccinomics? ⬇️

artículo científico publicado el 5 de julio de 2011

Integrating artificial intelligence into health care through data access: can the GDPR act as a beacon for policymakers?

scientific article published on 16 September 2019

Integrating hereditary breast and ovarian cancer genetic counselling and testing into mainstream clinical practice: Legal and ethical challenges

artículo científico publicado en 2022

Integrating precision cancer medicine into healthcare-policy, practice, and research challenges

artículo científico publicado en 2016

Intellectual property rights in publicly funded biobanks: much ado about nothing? ⬇️

artículo científico publicado el 1 de abril de 2011

International network of cancer genome projects

artículo científico publicado en 2010

Introduction: the why and whither of genomic data sharing

Is it research or is it clinical? Revisiting an old frontier through the lens of next-generation sequencing technologies

artículo científico publicado en 2018

Issues related to family history of cancer at the end of life: a palliative care providers' survey.

artículo científico publicado en 2018

Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations

artículo científico publicado en 2019

Legal aspects of genetic databases for international biomedical research: the example of the International Cancer Genome Consortium (ICGC).

artículo científico publicado en 2012

Life insurance: genomic stratification and risk classification

artículo científico publicado en 2013

Locating Biobanks in the Canadian Privacy Maze

artículo científico publicado en 2016

Looking Beyond GINA: Policy Approaches to Address Genetic Discrimination

scientific article published on 21 January 2020

Measuring the performance of international genomics research projects in fostering genomic capacity in the developing world ⬇️

artículo científico publicado en 2017

Modeling consent in the time of COVID-19

artículo científico publicado en 2020

Non-invasive Prenatal Testing and the Unveiling of an Impaired Translation Process

artículo científico publicado en 2016

Open biotechnology: licenses needed

artículo científico publicado en 2010

Open science and community norms ⬇️

artículo científico publicado en 2012

Open science versus commercialization: a modern research conflict? ⬇️

artículo científico publicado el 27 de febrero de 2012

Opportunities and challenges provided by cloud repositories for bioinformatics-enabled drug discovery

artículo científico publicado en 2014

Our social genome?

artículo científico publicado en 2007

Overcoming Biases Together: Normative Stakes of Interdisciplinarity in Bioethics

artículo científico publicado en 2020

Pharmacogenomic data sample collection and storage: ethical issues and policy approaches

artículo científico publicado en 2006

Physicians, genetics and life insurance

artículo científico publicado en 2004

Points-to-consider on the return of results in epigenetic research

Policy recommendations for addressing privacy challenges associated with cell-based research and interventions

artículo científico publicado en 2014

Power to the people: a wiki-governance model for biobanks ⬇️

artículo científico publicado el 29 de mayo de 2012

Prepublication data sharing

artículo científico publicado en 2009

Privacy and Biobanking in China: A Case of Policy in Transition

artículo científico publicado en 2015

Public-Private Partnerships in Cloud-Computing Services in the Context of Genomic Research

artículo científico publicado en 2017

Reflections on the cost of "low-cost" whole genome sequencing: framing the health policy debate

artículo científico publicado en 2013

Regulatory approval for new pharmacogenomic tests: a comparative overview

artículo científico publicado en 2011

Researcher perspectives on ethics considerations in epigenetics: an international survey

artículo científico publicado en 2022

Return of research results: general principles and international perspectives

artículo científico publicado en 2011

Risk of re-identification of epigenetic methylation data: a more nuanced response is needed

artículo científico publicado en 2015

Selling direct-to-consumer epigenetic tests: are we ready?

scientific article published on 28 January 2020

Sharing genetic information online: an exploration of GINA's 2.0 frontier

artículo científico publicado en 2014

South Korea: in the midst of a privacy reform centered on data sharing

artículo científico publicado en 2018

Statement on bioinformatics and capturing the benefits of genome sequencing for society

scientific article published on 29 May 2019

Stem cell research funding policies and dynamic innovation: a survey of open access and commercialization requirements

artículo científico publicado en 2014

Streamlining ethics review for international health research

scientific article published in 2022

Survey of palliative care providers' needs, perceived roles, and ethical concerns about addressing cancer family history at the end of life

artículo científico publicado en 2020

The European Union's Adequacy Approach to Privacy and International Data Sharing in Health Research

artículo científico publicado en 2016

The International Cancer Genome Consortium's evolving data-protection policies

artículo científico publicado en 2014

The Role of Whole Genome and Whole Exome Sequencing in Preventive Genomic Sequencing Programs

artículo científico publicado en 2015

The commercialization of genomic research in Canada

artículo científico publicado en 2010

The communication of pharmacogenetic research results: participants weigh in on their informational needs in a pilot study

artículo científico publicado el 21 de marzo de 2011

The emergence of an ethical duty to disclose genetic research results: international perspectives

artículo científico publicado en 2006

The ethical framing of personalized medicine

artículo científico publicado en 2014

The stem cell research environment: a patchwork of patchworks

artículo científico publicado en 2009

Towards an Ecology of Collective Innovation: Human Variome Project (HVP), Rare Disease Consortium for Autosomal Loci (RaDiCAL) and Data-Enabled Life Sciences Alliance (DELSA)

artículo científico publicado en 2011

Trade-secret model: legal limitations

artículo científico publicado en 2011

Unsolved challenges of clinical whole-exome sequencing: a systematic literature review of end-users' views

artículo científico publicado en 2016

What do cancer patients' relatives think about addressing cancer family history and performing genetic testing in palliative care?

scientific article published on 16 September 2019

[Open source biotechnology: synopsis of a meeting of two revolutions]

artículo científico publicado en 2009

[Personalized medicine: equity and access]

scientific article published on 17 November 2014

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