Lista de obras - Janet K. Williams - Dominio Público Uruguay

"No one else sees the difference: "family members' perceptions of changes in persons with preclinical Huntington disease

artículo científico publicado en 2007

A closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairs

artículo científico publicado en 2013

A comparison of memory and attention in Turner syndrome and learning disability

artículo científico publicado en 1991

A new scale to measure family members' perception of community health care services for persons with Huntington disease

artículo científico publicado en 2010

A review of quality of life after predictive testing for and earlier identification of neurodegenerative diseases

artículo científico publicado en 2013

Academic and Institutional Review Board Collaboration to Ensure Ethical Conduct of Doctor of Nursing Practice Projects

artículo científico

Advanced nursing practice and research contributions to precision medicine

artículo científico publicado en 2015

Advancing Genetic Nursing Research

artículo científico publicado en 2001

Advancing genetic nursing knowledge

artículo científico publicado en 2004

Assessment of Day-to-Day Functioning in Prodromal and Early Huntington Disease

artículo científico publicado en 2011

Caregiving by teens for family members with Huntington disease

artículo científico publicado en 2009

Challenges assessing clinical endpoints in early Huntington disease

artículo científico publicado en 2010

Challenges in evaluating next-generation sequence data for clinical decisions

artículo científico publicado en 2014

Characterization of depression in prodromal Huntington disease in the neurobiological predictors of HD (PREDICT-HD) study

scientific article published on 19 June 2013

Clinical and Biomarker Changes in Premanifest Huntington Disease Show Trial Feasibility: A Decade of the PREDICT-HD Study

artículo científico publicado en 2014

Communication, encouragement, and cancer screening in families with and without mutations for hereditary nonpolyposis colorectal cancer: a pilot study

artículo científico publicado en 2009

Couples' attributions for work function changes in prodromal Huntington disease

artículo científico publicado en 2010

Couples' coping in prodromal Huntington disease: a mixed methods study

artículo científico publicado en 2012

Cystic fibrosis: A new perspective in genetic counseling

artículo científico publicado en 1992

Development of the HD-Teen Inventory

artículo científico publicado en 2011

Development of the Huntington Disease Work Function Scale ⬇️

artículo científico publicado el 1 de octubre de 2012

Development of the Huntington disease family concerns and strategies survey from focus group data

artículo científico publicado en 2010

Disclosing genetic test results to family members

artículo científico publicado en 2005

Disclosure of incidental genomic findings involving children: are we making progress?

Ethical issues in genetic testing

artículo científico publicado en 2005

Ethics, policy, and educational issues in genetic testing

artículo científico publicado en 2006

Evolution and current status of graduate programs in nursing genetics.

artículo científico publicado en 1999

Experiences of teens living in the shadow of Huntington Disease

artículo científico publicado en 2008

Family carer personal concerns in Huntington disease

artículo científico publicado en 2011

Five-Year Bibliometric Review of Genomic Nursing Science Research

artículo científico publicado en 2016

From Nightingale and Mendel to Genomics in Health Care for Children

article

From ecology to base pairs: nursing and genetic science.

artículo científico publicado en 2001

Genetic Screening

artículo científico publicado en 1985

Genetics in Health Practice and Education Special Issue

article

Genetics specialists' perspectives on disclosure of genomic incidental findings in the clinical setting

artículo científico publicado en 2012

Genomics in nursing education

artículo científico publicado en 2005

Genomics, clinical research, and learning health care systems: Strategies to improve patient care

artículo científico publicado en 2015

Huntington disease: families' experiences of healthcare services

artículo científico publicado en 2010

Implementation science, genomic precision medicine, and improved health: A new path forward?

artículo científico publicado en 2016

Implications for educating the next generation of nurses on genetics and genomics in the 21st century

artículo científico publicado en 2011

In their own words: reports of stigma and genetic discrimination by people at risk for Huntington disease in the International RESPOND-HD study

artículo científico publicado en 2010

Increasing participation in genomic research and biobanking through community-based capacity building

artículo científico publicado en 2014

Individual genetic and genomic research results and the tradition of informed consent: exploring US review board guidance

artículo científico publicado en 2012

Informed consent and genomic incidental findings: IRB chair perspectives

artículo científico publicado en 2011

Life trajectories, genetic testing, and risk reduction decisions in 18-39 year old women at risk for hereditary breast and ovarian cancer

artículo científico publicado en 2008

Living with genetic test results for hereditary breast and ovarian cancer

artículo científico publicado en 2009

Nurses transforming health care using genetics and genomics

artículo científico publicado en 2010

Nursing and genetic health care

article

Parenting a daughter with precocious puberty of turner syndrome

artículo científico publicado en 1995

Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD study

artículo científico publicado en 2010

Perception, experience, and response to genetic discrimination in Huntington's disease: the Australian results of The International RESPOND-HD study

artículo científico publicado en 2013

Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease

artículo científico publicado en 2008

Personal factors associated with reported benefits of Huntington disease family history or genetic testing

artículo científico publicado en 2010

Prediction of manifest Huntington's disease with clinical and imaging measures: a prospective observational study

artículo científico publicado en 2014

Pregnancy as foreground in cystic fibrosis carrier testing decisions in primary care

artículo científico publicado en 2009

Preparation of Undergraduate Nursing Faculty to Incorporate Genetics Content into Curricula

article

Recommendations for educating nurses in genetics ⬇️

artículo científico publicado el 1 de noviembre de 2001

Researcher and institutional review board chair perspectives on incidental findings in genomic research

artículo científico publicado en 2012

Risk reduction and health promotion behaviors following genetic testing for adult-onset disorders

artículo científico publicado en 2007

School Nurses' Experiences with Children with Chronic Conditions

artículo científico publicado en 1995

Screening for genetic disorders

artículo científico publicado en 1989

Self Reports of Day-to-Day Function in a Small Cohort of People with Prodromal and Early HD.

artículo científico publicado en 2011

Self-reported race and ethnicity of US biobank participants compared to the US Census

artículo científico publicado en 2017

Strategies to prepare faculty to integrate genomics into nursing education programs

artículo científico publicado en 2011

Strategies used by teens growing up in families with Huntington disease

artículo científico publicado en 2013

Stressors in Teens with Type 1 Diabetes and Their Parents: Immediate and Long-Term Implications for Transition to Self-Management

artículo científico publicado en 2016

Teratogenic Potential of Valproic Acid

artículo científico publicado en 1987

The disclosure of incidental genomic findings: an "ethically important moment" in pediatric research and practice

artículo científico publicado en 2013

The emotional experiences of family carers in Huntington disease

artículo científico publicado en 2009

The importance of patient engagement

artículo científico publicado en 2013

Toward a biopsychosocial model for 21st-century genetics

artículo científico publicado en 2005

U.S. Genetics Nurses in Advanced Practice

article

Using clinical genomics in health care: Strategies to create a prepared workforce

article

WHODAS 2.0 in prodromal Huntington disease: measures of functioning in neuropsychiatric disease

artículo científico publicado en 2013

Lista de obras de Janet K. Williams

"No one else sees the difference: "family members' perceptions of changes in persons with preclinical Huntington disease

A closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairs

A comparison of memory and attention in Turner syndrome and learning disability

A new scale to measure family members' perception of community health care services for persons with Huntington disease

A review of quality of life after predictive testing for and earlier identification of neurodegenerative diseases

Academic and Institutional Review Board Collaboration to Ensure Ethical Conduct of Doctor of Nursing Practice Projects

Advanced nursing practice and research contributions to precision medicine

Advancing Genetic Nursing Research

Advancing genetic nursing knowledge

Assessment of Day-to-Day Functioning in Prodromal and Early Huntington Disease

Caregiving by teens for family members with Huntington disease

Challenges assessing clinical endpoints in early Huntington disease

Challenges in evaluating next-generation sequence data for clinical decisions

Characterization of depression in prodromal Huntington disease in the neurobiological predictors of HD (PREDICT-HD) study

Clinical and Biomarker Changes in Premanifest Huntington Disease Show Trial Feasibility: A Decade of the PREDICT-HD Study

Communication, encouragement, and cancer screening in families with and without mutations for hereditary nonpolyposis colorectal cancer: a pilot study

Couples' attributions for work function changes in prodromal Huntington disease

Couples' coping in prodromal Huntington disease: a mixed methods study

Cystic fibrosis: A new perspective in genetic counseling

Development of the HD-Teen Inventory

Development of the Huntington Disease Work Function Scale ⬇️

Development of the Huntington disease family concerns and strategies survey from focus group data

Disclosing genetic test results to family members

Disclosure of incidental genomic findings involving children: are we making progress?

Ethical issues in genetic testing

Ethics, policy, and educational issues in genetic testing

Evolution and current status of graduate programs in nursing genetics.

Experiences of teens living in the shadow of Huntington Disease

Family carer personal concerns in Huntington disease

Five-Year Bibliometric Review of Genomic Nursing Science Research

From Nightingale and Mendel to Genomics in Health Care for Children

From ecology to base pairs: nursing and genetic science.

Genetic Screening

Genetics in Health Practice and Education Special Issue

Genetics specialists' perspectives on disclosure of genomic incidental findings in the clinical setting

Genomics in nursing education

Genomics, clinical research, and learning health care systems: Strategies to improve patient care

Huntington disease: families' experiences of healthcare services

Implementation science, genomic precision medicine, and improved health: A new path forward?

Implications for educating the next generation of nurses on genetics and genomics in the 21st century

In their own words: reports of stigma and genetic discrimination by people at risk for Huntington disease in the International RESPOND-HD study

Increasing participation in genomic research and biobanking through community-based capacity building

Individual genetic and genomic research results and the tradition of informed consent: exploring US review board guidance

Informed consent and genomic incidental findings: IRB chair perspectives

Life trajectories, genetic testing, and risk reduction decisions in 18-39 year old women at risk for hereditary breast and ovarian cancer

Living with genetic test results for hereditary breast and ovarian cancer

Nurses transforming health care using genetics and genomics

Nursing and genetic health care

Parenting a daughter with precocious puberty of turner syndrome

Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD study

Perception, experience, and response to genetic discrimination in Huntington's disease: the Australian results of The International RESPOND-HD study

Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease

Personal factors associated with reported benefits of Huntington disease family history or genetic testing

Prediction of manifest Huntington's disease with clinical and imaging measures: a prospective observational study

Pregnancy as foreground in cystic fibrosis carrier testing decisions in primary care

Preparation of Undergraduate Nursing Faculty to Incorporate Genetics Content into Curricula

Recommendations for educating nurses in genetics ⬇️

Researcher and institutional review board chair perspectives on incidental findings in genomic research

Risk reduction and health promotion behaviors following genetic testing for adult-onset disorders

School Nurses' Experiences with Children with Chronic Conditions

Screening for genetic disorders

Self Reports of Day-to-Day Function in a Small Cohort of People with Prodromal and Early HD.

Self-reported race and ethnicity of US biobank participants compared to the US Census

Strategies to prepare faculty to integrate genomics into nursing education programs

Strategies used by teens growing up in families with Huntington disease

Stressors in Teens with Type 1 Diabetes and Their Parents: Immediate and Long-Term Implications for Transition to Self-Management

Teratogenic Potential of Valproic Acid

The disclosure of incidental genomic findings: an "ethically important moment" in pediatric research and practice

The emotional experiences of family carers in Huntington disease

The importance of patient engagement

Toward a biopsychosocial model for 21st-century genetics

U.S. Genetics Nurses in Advanced Practice

Using clinical genomics in health care: Strategies to create a prepared workforce

WHODAS 2.0 in prodromal Huntington disease: measures of functioning in neuropsychiatric disease

`I'm like you': establishing and protecting a common ground in focus groups with Huntington disease caregivers