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Lista de obras de Ute Thyen

"Any decision is better than none" decision-making about sex of rearing for siblings with 17beta-hydroxysteroid-dehydrogenase-3 deficiency

artículo científico publicado en 2006

A multicenter prospective quasi-experimental study on the impact of a transition-oriented generic patient education program on health service participation and quality of life in adolescents and young adults

artículo científico publicado en 2015

Access of children with cerebral palsy to the physical, social and attitudinal environment they need: a cross-sectional European study.

artículo científico publicado en 2010

Adaptation and validation of the German Patient Activation Measure for adolescents with chronic conditions in transitional care: PAM® 13 for Adolescents

artículo científico publicado en 2017

Age, metabolic control and type of insulin regime influences health-related quality of life in children and adolescents with type 1 diabetes mellitus

artículo científico publicado en 2005

An assessment of the experiences and needs of adolescents with chronic conditions in transitional care: a qualitative study to develop a patient education programme

artículo científico publicado en 2016

Assessing empowerment as multidimensional outcome of a patient education program for adolescents with chronic conditions: A latent difference score model

artículo científico publicado en 2020

Assessment of data quality in a multi-centre cross-sectional study of participation and quality of life of children with cerebral palsy

artículo científico publicado en 2006

Assessment of vision and hearing in children conceived spontaneously and by ICSI: a prospective controlled, single-blinded follow-up study.

artículo científico publicado en 2009

Association between participation in life situations of children with cerebral palsy and their physical, social, and attitudinal environment: a cross-sectional multicenter European study

artículo científico publicado en 2012

Attitudes towards disclosure of conception mode in 899 pregnancies conceived after ICSI.

artículo científico publicado en 2008

Can we sense ART? The blinded examiner is not blind-a problem with follow-up studies on children born after assisted reproduction.

artículo científico publicado en 2009

Clinical evaluation study of the German network of disorders of sex development (DSD)/intersexuality: study design, description of the study population, and data quality

artículo científico publicado en 2009

Cross-cultural development of a child health care questionnaire on satisfaction, utilization, and needs

artículo científico publicado en 2007

Deciding on gender in children with intersex conditions: considerations and controversies

artículo científico publicado en 2005

Deficiencies in health care of chronically ill and handicapped children and their families

artículo científico publicado el 1 de enero de 2002

Determinants of child-parent agreement in quality-of-life reports: a European study of children with cerebral palsy.

artículo científico publicado en 2007

Development and evaluation of a generic education program for chronic diseases in childhood

artículo científico publicado en 2017

Differential effect of a patient-education transition intervention in adolescents with IBD vs. diabetes

artículo científico publicado en 2018

Disorders of sex development

artículo científico publicado en 2007

Disorders or Differences of Sex Development? Views of Affected Individuals on DSD Terminology

artículo científico publicado en 2020

Disparity of child/parent-reported quality of life in cerebral palsy persists into adolescence

artículo científico publicado en 2020

Epidemiology and initial management of ambiguous genitalia at birth in Germany

artículo científico publicado en 2006

Erratum: Transition of Patients with Esophageal Atresia to Adult Care: Results of a Transition-Specific Education Program.

artículo científico publicado en 2016

Ethical principles and recommendations for the medical management of differences of sex development (DSD)/intersex in children and adolescents

artículo científico publicado en 2010

Evaluation of a generic patient education program in children with different chronic conditions

scientific article published on 01 February 2019

Fertility outcome and information on fertility issues in individuals with different forms of disorders of sex development: findings from the dsd-LIFE study

artículo científico publicado en 2017

Frequency of participation of 8-12-year-old children with cerebral palsy: a multi-centre cross-sectional European study.

artículo científico publicado en 2008

Gender Dysphoria and Gender Change in Disorders of Sex Development/Intersex Conditions: Results From the dsd-LIFE Study.

artículo científico publicado en 2018

Gender role behavior in children with XY karyotype and disorders of sex development

artículo científico publicado en 2007

Health Related Quality of Life, Self-Esteem and Health Behaviour on Average 6 Years after an Obesity Outpatient Lifestyle Program

artículo científico publicado en 2017

Health care needs of children and adolescents with chronic conditions

artículo científico publicado en 2008

Health-Related Quality of Life in Children and Adolescents with Cerebral Palsy: A Secondary Analysis of the DISABKIDS Questionnaire in the Field-Study Cerebral Palsy Subgroup.

artículo científico publicado en 2016

Health-related quality of life and psychological well-being in adults with differences/disorders of sex development.

artículo científico publicado en 2016

Health-related quality of life in children with disorders of sex development (DSD).

artículo científico publicado en 2014

Hormone therapy and patient satisfaction with treatment, in a large cohort of diverse disorders of sex development

artículo científico publicado en 2017

Implementation of the Kids-CAT in clinical settings: a newly developed computer-adaptive test to facilitate the assessment of patient-reported outcomes of children and adolescents in clinical practice in Germany

artículo científico publicado en 2016

Improving the communication of healthcare professionals with affected children and adolescents

artículo científico

Long-Term Health Outcomes and Health-Related Quality of Life in Adolescents from a Cohort of Extremely Premature Infants Born at Less Than 27 Weeks of Gestation in Northern Germany

artículo científico publicado en 2016

Mental Health of a Large Group of Adults With Disorders of Sex Development in Six European Countries

artículo científico publicado en 2019

Minimal Associations Between Clinical Data and Children's Self-Reported Health-Related Quality of Life in Children With Chronic Conditions-A Cross-Sectional Study

scientific article published on 05 February 2019

Multicentre cross-sectional clinical evaluation study about quality of life in adults with disorders/differences of sex development (DSD) compared to country specific reference populations (dsd-LIFE).

artículo científico publicado en 2018

Neuromotor development and mental health at 5.5 years of age of singletons born at term after intracytoplasmatic sperm injection ICSI: results of a prospective controlled single-blinded study in Germany

artículo científico publicado en 2008

Parent-reported quality of life of children with cerebral palsy in Europe.

artículo científico publicado en 2008

Participation in life situations of 8-12 year old children with cerebral palsy: cross sectional European study

artículo científico publicado en 2009

Participation of adults with disorders/differences of sex development (DSD) in the clinical study dsd-LIFE: design, methodology, recruitment, data quality and study population

artículo científico publicado en 2017

Physical health at 5.5 years of age of term-born singletons after intracytoplasmic sperm injection: results of a prospective, controlled, single-blinded study

artículo científico publicado en 2008

Predictors of health-related quality of life in chronically ill children and adolescents over time.

artículo científico publicado en 2018

Predictors of parent-reported quality of life of adolescents with cerebral palsy: A longitudinal study

artículo científico publicado en 2017

Predictors of self-reported health-related quality of life according to the EQ-5D-Y in chronically ill children and adolescents with asthma, diabetes, and juvenile arthritis: longitudinal results

artículo científico publicado en 2017

Prevalence and characteristics of children and youth with special health care needs (CSHCN) in the German Health Interview and Examination Survey for Children and Adolescents (KiGGS)

artículo científico publicado en 2007

Psychological adjustment and sexual development of adolescents with disorders of sex development

artículo científico publicado en 2010

Psychological problems in children with cerebral palsy: a cross-sectional European study

artículo científico publicado en 2007

Psychosexual development in adolescents and adults with disorders of sex development--results from the German Clinical Evaluation Study.

artículo científico publicado en 2012

Psychosexual development in children with disorder of sex development (DSD)--results from the German Clinical Evaluation Study

artículo científico publicado en 2010

Psychosocial well-being and quality of life in women with Turner syndrome

scientific article published on 23 December 2019

Puberty in disorders of somatosexual differentiation

artículo científico publicado el 1 de marzo de 2003

Quality of health care in adolescents and adults with disorders/differences of sex development (DSD) in six European countries (dsd-LIFE).

artículo científico publicado en 2018

Satisfaction with Genital Surgery and Sexual Life of Adults with XY Disorders of Sex Development: Results from the German Clinical Evaluation Study ⬇️

artículo científico publicado el 16 de noviembre de 2011

Self- and proxy-reported outcomes after surgery in people with disorders/differences of sex development (DSD) in Europe (dsd-LIFE)

artículo científico publicado en 2020

Self-reported quality of life of 8-12-year-old children with cerebral palsy: a cross-sectional European study

artículo científico publicado en 2007

Self-reported quality of life of adolescents with cerebral palsy: a cross-sectional and longitudinal analysis

artículo científico publicado en 2014

Sexuality in Adults with Differences/Disorders of Sex Development (DSD): Findings from the dsd-LIFE Study

artículo científico publicado en 2019

Subjective health, school victimization, and protective factors in a high-risk school sample

artículo científico publicado en 2015

Subjective need for psychological support (PsySupp) in parents of children and adolescents with disorders of sex development (dsd).

artículo científico publicado en 2015

The Youth Health Care measure-satisfaction, utilization, and needs (YHC-SUN)-development of a self-report version of the Child Health Care (CHC-SUN) proxy-measure

artículo científico publicado en 2016

The basis of gender assignment in disorders of somatosexual differentiation

artículo científico publicado en 2005

The performance of the screener to identify children with special health care needs in a European sample of children with chronic conditions

article

The validation of a computer-adaptive test (CAT) for assessing health-related quality of life in children and adolescents in a clinical sample: study design, methods and first results of the Kids-CAT study

artículo científico publicado en 2016

Trajectories of Health-Related Quality of Life and HbA1c Values of Children and Adolescents With Diabetes Mellitus Type 1 Over 6 Months: A Longitudinal Observational Study

artículo científico publicado en 2019

Transition of Patients with Esophageal Atresia to Adult Care: Results of a Transition-Specific Education Program

artículo científico publicado en 2016

Unmet health care needs and impact on families with children with disabilities in Germany

artículo científico publicado en 2003

Utilization of health care services and satisfaction with care in adults affected by disorders of sex development (DSD).

artículo científico publicado en 2014

Voice dissatisfaction in individuals with a disorder of sex development

scientific article published on 15 May 2019

[How are Effects of Patient Education Programs Influenced by Psychosocial Risk Factors in Pediatrics?]

artículo científico publicado en 2017

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