Lista de obras - Adrian Thorogood - Dominio Público Uruguay

'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods

article by Anna Middleton et al published 1 July 2018 in Personalized Medicine

A P3G generic access agreement for population genomic studies

artículo científico publicado en 2013

A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research

APPLaUD: access for patients and participants to individual level uninterpreted genomic data

artículo científico publicado en 2018

Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations

artículo científico publicado en 2018

An implementation framework for the feedback of individual research results and incidental findings in research

artículo científico publicado en 2014

Applying GDPR roles and responsibilities to scientific data sharing

artículo científico publicado en 2022

Attitudes of publics who are unwilling to donate DNA data for research.

artículo científico publicado en 2018

BRCA Challenge: BRCA Exchange as a global resource for variants in BRCA1 and BRCA2

artículo científico publicado en 2018

Bringing Code to Data: Don't Forget Governance

artículo científico publicado en 2020

COVID-19 Research: Navigating the European General Data Protection Regulation

artículo científico publicado en 2020

Canada: will privacy rules continue to favour open science?

article

Consent Processes for Mobile App Mediated Research: Systematic Review

artículo científico

Consent insufficient for data release

artículo científico publicado en 2019

Consent recommendations for research and international data sharing involving persons with dementia

scholarly article by Adrian Thorogood et al published October 2018 in Alzheimer's and Dementia

Correction to: Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations

artículo científico publicado en 2019

Correction to: Canada: will privacy rules continue to favour open science?

article

Genetic database software as medical devices

Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe

scientific article published on 06 May 2020

Genomics: data sharing needs an international code of conduct

artículo científico publicado en 2020

Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?

scientific article published on 14 September 2020

Informed Consent in Genetics

article

International Coordination of Research Ethics Review: An Adequacy Model

artículo científico publicado en 2021

International Guidelines for Privacy in Genomic Biobanking (or the Unexpected Virtue of Pluralism).

artículo científico publicado en 2015

Isolated aerobic exercise and weight loss: a systematic review and meta-analysis of randomized controlled trials

artículo científico

Letter: Relearning the 3 R's? Reinterpretation, recontact, and return of genetic variants

artículo científico publicado en 2019

Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data

artículo científico publicado en 2019

Open Data Governance at the Canadian Open Neuroscience Platform (CONP): From the Walled Garden to the Arboretum

Openness, inclusion, and respect in dementia research

scientific article published on 01 February 2019

Point-of-Care Genetic Tests for Infectious Disease: Legal Considerations

scholarly article by Adrian Thorogood et al published 12 June 2014 in Current Pharmacogenomics and Personalized Medicine: the international journal for expert reviews in pharmacogenomics

Policy-aware data lakes: a flexible approach to achieve legal interoperability for global research collaborations

scientific article published on 01 January 2020

Population biobanking and international collaboration

artículo científico

Public variant databases: liability?

artículo científico publicado en 2016

Registered access: a 'Triple-A' approach

artículo científico publicado en 2016

Reporting results from whole-genome and whole-exome sequencing in clinical practice: a proposal for Canada?

artículo científico publicado en 2013

Reproducibility and Reuse of Adaptive Immune Receptor Repertoire Data.

artículo científico publicado en 2017

Responsible sharing of biomedical data and biospecimens via the "Automatable Discovery and Access Matrix" (ADA-M)

Return of individual genomic research results: are laws and policies keeping step?

artículo científico publicado en 2019

Sharing Bioinformatic Data for Machine Learning: Maximizing Interoperability through License Selection

scholarly article published 2020

Substitute consent to data sharing: a way forward for international dementia research?

artículo científico

The Human Cell Atlas White Paper ⬇️

artículo científico publicado en 2018

The Human Genome Organisation: towards next-generation ethics

artículo científico publicado en 2013

Toward better governance of human genomic data

artículo científico publicado en 2021

Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia

artículo científico publicado en 2019

Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts

artículo científico publicado en 2016

Whole-genome sequencing and the physician

artículo científico publicado en 2012

Lista de obras de Adrian Thorogood

'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods

A P3G generic access agreement for population genomic studies

A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research

APPLaUD: access for patients and participants to individual level uninterpreted genomic data

Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations

An implementation framework for the feedback of individual research results and incidental findings in research

Applying GDPR roles and responsibilities to scientific data sharing

Attitudes of publics who are unwilling to donate DNA data for research.

BRCA Challenge: BRCA Exchange as a global resource for variants in BRCA1 and BRCA2

Bringing Code to Data: Don't Forget Governance

COVID-19 Research: Navigating the European General Data Protection Regulation

Canada: will privacy rules continue to favour open science?

Consent Processes for Mobile App Mediated Research: Systematic Review

Consent insufficient for data release

Consent recommendations for research and international data sharing involving persons with dementia

Correction to: Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations

Correction to: Canada: will privacy rules continue to favour open science?

Genetic database software as medical devices

Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe

Genomics: data sharing needs an international code of conduct

Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?

Informed Consent in Genetics

International Coordination of Research Ethics Review: An Adequacy Model

International Guidelines for Privacy in Genomic Biobanking (or the Unexpected Virtue of Pluralism).

Isolated aerobic exercise and weight loss: a systematic review and meta-analysis of randomized controlled trials

Letter: Relearning the 3 R's? Reinterpretation, recontact, and return of genetic variants

Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data

Open Data Governance at the Canadian Open Neuroscience Platform (CONP): From the Walled Garden to the Arboretum

Openness, inclusion, and respect in dementia research

Point-of-Care Genetic Tests for Infectious Disease: Legal Considerations

Policy-aware data lakes: a flexible approach to achieve legal interoperability for global research collaborations

Population biobanking and international collaboration

Public variant databases: liability?

Registered access: a 'Triple-A' approach

Reporting results from whole-genome and whole-exome sequencing in clinical practice: a proposal for Canada?

Reproducibility and Reuse of Adaptive Immune Receptor Repertoire Data.

Responsible sharing of biomedical data and biospecimens via the "Automatable Discovery and Access Matrix" (ADA-M)

Return of individual genomic research results: are laws and policies keeping step?

Sharing Bioinformatic Data for Machine Learning: Maximizing Interoperability through License Selection

Substitute consent to data sharing: a way forward for international dementia research?

The Human Cell Atlas White Paper ⬇️

The Human Genome Organisation: towards next-generation ethics

Toward better governance of human genomic data

Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia

Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts

Whole-genome sequencing and the physician