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Lista de obras de Merryn Gott

"Opening a can of worms": GP and practice nurse barriers to talking about sexual health in primary care

article

"Sometimes I've gone home feeling that my voice hasn't been heard": a focus group study exploring the views and experiences of health care assistants when caring for dying residents

artículo científico publicado en 2016

"You get old, you get breathless, and you die": chronic obstructive pulmonary disease in Barnsley, UK.

artículo científico publicado en 2012

'Because it's the wife who has to look after the man': A descriptive qualitative study of older women and the intersection of gender and the provision of family caregiving at the end of life

artículo científico publicado en 2016

'But I do believe you've got to accept that that's what life's about': older adults living in New Zealand talk about their experiences of loss and bereavement support

artículo científico publicado en 2013

'I daresay I might find it embarrassing': general practitioners' perspectives on discussing sexual health issues with lesbian and gay patients

artículo científico publicado en 2005

'It was peaceful, it was beautiful': A qualitative study of family understandings of good end-of-life care in hospital for people dying in advanced age

artículo científico publicado en 2019

'No matter what the cost': A qualitative study of the financial costs faced by family and whānau caregivers within a palliative care context

artículo científico publicado en 2015

'People haven't got that close connection': meanings of loneliness and social isolation to culturally diverse older people

artículo científico publicado en 2019

'That's part of everybody's job': the perspectives of health care staff in England and New Zealand on the meaning and remit of palliative care

artículo científico publicado en 2011

'Where do I go from here'? A cultural perspective on challenges to the use of hospice services

artículo científico publicado en 2013

A narrative literature review of older people's cancer pain experience

artículo científico publicado en 2013

A narrative literature review of the evidence regarding the economic impact of avoidable hospitalizations amongst palliative care patients in the UK

article

A population-based study of patients in Danish hospitals who are in their last year of life

artículo científico publicado en 2019

A qualitative study exploring the benefits of hospital admissions from the perspectives of patients with palliative care needs

artículo científico publicado en 2015

A qualitative study of heterosexual women's attempts to renegotiate sexual relationships in the context of severe sexual problems

artículo científico publicado en 2012

A qualitative study of nurses' clinical experience in recognising low mood and depression in older patients with multiple long-term conditions

artículo científico publicado en 2015

Advance care planning for Māori, Pacific and Asian people: the views of New Zealand healthcare professionals

artículo científico publicado en 2013

Advanced heart failure: impact on older patients and informal carers

article by Hazel Aldred et al published January 2005 in Journal of Advanced Nursing

An exploration of how community-dwelling older adults enhance their well-being

scientific article published on 26 August 2019

Approaches to capturing the financial cost of family care-giving within a palliative care context: a systematic review

artículo científico

Are older people at risk of sexually transmitted infections? A new look at the evidence

article

Are we getting it wrong? Perspectives on the future of palliative care in hospitals

artículo científico publicado en 2018

At odds with the End of Life Care Strategy

scientific article published on 1 September 2008

Attachment to place in advanced age: A study of the LiLACS NZ cohort

artículo científico publicado en 2017

Attitudes and beliefs in health promotion

article

Attitudes of health care professionals to opioid prescribing in end-of-life care: a qualitative focus group study

artículo científico publicado en 2012

Australia's first fossil marsupial mole (Notoryctemorphia) resolves controversies about their evolution and palaeoenvironmental origins

artículo científico publicado en 2011

Autonomy and choice in palliative care: time for a new model?

artículo científico publicado en 2013

Avoidable for whom? Hospital use at the end of life

Awareness contexts revisited: indeterminacy in initiating discussions at the end-of-life

artículo científico publicado en 2013

Barriers and facilitators to the receipt of palliative care for people with dementia: the views of medical and nursing staff

artículo científico publicado en 2011

Barriers to advance care planning in chronic obstructive pulmonary disease

artículo científico publicado en 2009

Barriers to providing palliative care for older people in acute hospitals

article

Barriers to seeking treatment for sexual problems in primary care: a qualitative study with older people

artículo científico publicado en 2003

Befriending Services for Culturally Diverse Older People

scientific article published on 11 July 2019

Bereaved Families' Perspectives of End-of-Life Care. Towards a Bicultural Whare Tapa Whā Older person's Palliative Care Model

artículo científico publicado en 2020

Beyond prognostication: ambulance personnel's lived experiences of cardiac arrest decision-making

artículo científico publicado en 2018

Burnout matters: The impact on residential aged care staffs’ willingness to undertake formal palliative care training

scholarly article

Burnout, compassion fatigue and psychological capital: Findings from a survey of nurses delivering palliative care

article

CARING FOR OLDER INDIGENOUS PEOPLE WITH CO-MORBIDITIES AT END OF LIFE

artículo científico publicado en 2019

CARING FOR OLDER INDIGENOUS PEOPLE WITH DEMENTIA: ATTENDING TO THE PERSONALITY

scholarly article

Can digital stories go where palliative care research has never gone before? A descriptive qualitative study exploring the application of an emerging public health research method in an indigenous palliative care context

artículo científico publicado en 2017

Can we predict which hospitalised patients are in their last year of life? A prospective cross-sectional study of the Gold Standards Framework Prognostic Indicator Guidance as a screening tool in the acute hospital setting

artículo científico publicado en 2014

Care vs. care: ‘Biomedical’ and ‘holistic’ worldviews of palliative care

scholarly article

Caregivers for people at end of life in advanced age: knowing, doing and negotiating care

scientific article published on 1 November 2018

Challenged but not threatened: Managing health in advanced age

article

Challenging social myths and stereotypes of women and aging: heterosexual women talk about sex.

artículo científico publicado en 2008

Characteristics and views of family carers of older people with heart failure.

artículo científico publicado en 2006

Chromatographic separation of selenium and arsenic: A potential (72)Se/(72)As generator

artículo científico publicado en 2014

Circumstances of hospital admissions in palliative care: A cross-sectional survey of patients admitted to hospital with palliative care needs

artículo científico publicado en 2018

Clarification of the common aspects of dignity in end-of-life care

Clinical staff perceptions of palliative care-related quality of care, service access, education and training needs and delivery confidence in an acute hospital setting

artículo científico publicado en 2013

Cohort Profile: Te Puawaitanga o Nga Tapuwae Kia Ora Tonu, Life and Living in Advanced Age: a Cohort Study in New Zealand (LiLACS NZ).

artículo científico publicado en 2015

Commence, continue, withhold or terminate?: a systematic review of decision-making in out-of-hospital cardiac arrest

artículo científico publicado en 2016

Communication in heart failure: perspectives from older people and primary care professionals

article by Sarah Barnes et al published November 2006 in Health & Social Care in the Community

Communication surrounding transitions to palliative care in heart failure: a review and discussion of the literature

article

Community-led and/or focused initiatives to support family carers within a palliative care context: An integrative review

article

Comparison of financial support for family caregivers of people at the end of life across six countries: A descriptive study

scientific article published on 12 July 2019

Complex contradictions in conceptualisations of 'dignity' in palliative care

artículo científico publicado en 2018

Conceptualising relational care from an Indigenous Māori perspective: A scoping review

artículo científico publicado en 2023

Connecting theory with practice: Time to explore social reality and rethink resilience among health professionals

artículo científico publicado en 2020

Contemporary women's understandings of female sexuality: findings from an in-depth interview study

Controversies and contentions: a gay man conducting research with women about their understandings of sexuality, sex and sexual problems

artículo científico publicado en 2011

Correlation of hyperforin content of Hypericum perforatum (St John's Wort) extracts with their effects on alcohol drinking in C57BL/6J mice: a preliminary study

artículo científico publicado en 2003

Decision making among older people with advanced heart failure as they transition to dependency and death

artículo científico publicado el 1 de diciembre de 2010

Delay in Symptom Presentation among a Sample of Older GUM Clinic Attenders

artículo científico publicado en 1999

Development of a peer education programme for advance end-of-life care planning

article

Digital story-telling research methods: Supporting the reclamation and retention of indigenous end-of-life care customs in Aotearoa New Zealand

artículo científico publicado en 2020

Distress in post-treatment hematological cancer survivors: Prevalence and predictors

artículo científico publicado en 2019

Doctoral education in nursing for practitioner knowledge and for academic knowledge: the University of Adelaide, Australia

artículo científico publicado en 1997

Dying trajectories in heart failure

article by Merryn Gott et al published March 2007 in Palliative Medicine

Dying, death and bereavement: a qualitative study of the views of carers of people with heart failure in the UK.

artículo científico publicado en 2009

Economic analysis of potentially avoidable hospital admissions in patients with palliative care needs

article

Economic impact of hospitalisations among patients in the last year of life: an observational study

artículo científico

Education given to parents of children newly diagnosed with acute lymphoblastic leukemia: a narrative review

artículo científico publicado en 2011

Education given to parents of children newly diagnosed with acute lymphoblastic leukemia: the parent's perspective

artículo científico publicado en 2014

Elderly patients compliance and elderly patients and health professional's, views, and attitudes towards prescribed sip- feed supplements.

artículo científico publicado en 2005

End of life care for long-term care residents with dementia, chronic illness and cancer: prospective staff survey

scientific article published on 22 May 2019

End of life care preferences among people of advanced age: LiLACS NZ

artículo científico publicado en 2017

Enhancing patient-professional communication about end-of-life issues in life-limiting conditions: a critical review of the literature

artículo científico

Equity and the financial costs of informal caregiving in palliative care: a critical debate

scientific article published on 19 May 2020

Erratum to: Where do people die? An international comparison of the percentage of deaths occurring in hospital and residential aged care settings in 45 populations, using published and available statistics

scholarly article published in International Journal of Public Health

Ethics and transgenesis: toward a policy framework incorporating intrinsic objections and societal perceptions

artículo científico publicado en 2004

Evaluating a peer education programme for advance end-of-life care planning for older adults: The peer educators' perspective

scholarly article

Exploring education and training needs among the palliative care workforce.

artículo científico publicado en 2013

Exploring health professionals' views regarding the optimum physical environment for palliative and end of life care in the acute hospital setting: a qualitative study

article

Exploring the care needs of patients with advanced COPD: an overview of the literature

scientific article published on 08 October 2009

Exploring the extent of communication surrounding transitions to palliative care in heart failure: the perspectives of health care professionals

artículo científico publicado en 2011

Exploring the financial impact of caring for family members receiving palliative and end-of-life care: a systematic review of the literature

artículo científico publicado en 2013

Exploring the sexual histories of older GUM clinic attenders

artículo científico publicado en 2000

Exploring the transition from curative care to palliative care: a systematic review of the literature

artículo científico

Exploring the transition from curative care to palliative care: a systematic review of the literature

artículo científico

Extent of palliative care need in the acute hospital setting: a survey of two acute hospitals in the UK.

artículo científico publicado en 2012

Factors associated with overall satisfaction with care at the end-of-life: Caregiver voices in New Zealand

scientific article published on 21 June 2020

Factors supporting good partnership working between generalist and specialist palliative care services: a systematic review

artículo científico publicado en 2012

Falling research in the NHS. Research passports haven't streamlined processes.

artículo científico publicado en 2010

Family experiences of the transition to palliative care in aged residential care (ARC): a qualitative study

artículo científico publicado en 2017

GPs' perceptions of the gender-related barriers to discussing sexual health in consultations--a qualitative study

article

Gardens as resources in advanced age in aotearoa NZ: More than therapeutic

artículo científico publicado en 2020

Gender and family caregiving at the end-of-life in the context of old age: A systematic review

artículo científico publicado en 2016

Gender and palliative care: a call to arms

artículo científico publicado en 2020

General practice and specialist palliative care teams: an exploration of their working relationship from the perspective of clinical staff working in New Zealand

artículo científico publicado en 2015

General practitioner attitudes to discussing sexual health issues with older people

article

Going for gold: exploring the making of the arts-based health research artefact Golden Years, a short story and one-act play about ageing and mortality

artículo científico publicado en 2024

Good deaths, bad deaths: Older people's assessments of the risks and benefits of morphine and terminal sedation in end-of-life care

article published in 2002

Gout flare severity from the patient perspective: a qualitative interview study

artículo científico publicado en 2020

Grey areas: New Zealand ambulance personnel's experiences of challenging resuscitation decision-making

artículo científico publicado en 2017

Health promotion: practice and the prospect for change

article

Holding onto womanhood: a qualitative study of heterosexual women with sexual desire loss.

artículo científico publicado en 2009

Hospitalisation of older people before and after long-term care entry in Auckland, New Zealand

artículo científico publicado en 2016

How can we improve palliative care provision for older people? Global perspectives

How family caregivers help older relatives navigate statutory services at the end of life: A descriptive qualitative study

artículo científico publicado en 2018

How important is sex in later life? The views of older people

artículo científico publicado en 2003

How to improve end of life care in acute hospitals

artículo científico publicado en 2009

Inclusion of palliative care in health care policy for older people: A directed documentary analysis in 13 of the most rapidly ageing countries worldwide

scientific article published on 09 December 2020

Instruments used to measure the effectiveness of palliative care education initiatives at the undergraduate level: a critical literature review

artículo científico

Interventions to reduce social isolation and loneliness among older people: an integrative review

artículo científico publicado en 2016

Intimacy, commitment, and adaptation: Sexual relationships within long-term marriages

Introducing a nursing doctorate

artículo científico publicado en 1998

Involvement of the practice nurse in supporting older people with heart failure: GP perspectives

article by Susan Waterworth & Merryn Gott published January 2012 in Progress in palliative care

Involving users, improving services: the example of cancer

It all started with a green car … Exploring the meaning of happiness

artículo científico publicado en 2020

Learning by degrees

artículo científico publicado en 1990

Likelihood of Death Within One Year Among a National Cohort of Hospital Inpatients in Scotland

artículo científico publicado en 2016

Likelihood of death among hospital inpatients in New Zealand: prevalent cohort study.

artículo científico publicado en 2017

Likelihood of residential aged care use in later life: a simple approach to estimation with international comparison

artículo científico publicado en 2015

Living with advanced chronic obstructive pulmonary disease: patients concerns regarding death and dying

artículo científico publicado en 2009

Lonely ageing in a foreign land: Social isolation and loneliness among older Asian migrants in New Zealand

scientific article published on 26 November 2018

Maintaining psychosocial wellbeing for post-treatment haematological cancer survivors: Strategies and potential barriers

scientific article published on 27 November 2018

Methodological considerations for researching the financial costs of family caregiving within a palliative care context

artículo científico publicado en 2016

Māori: living and dying with cardiovascular disease in Aotearoa New Zealand

artículo científico publicado en 2019

Necessary but not yet sufficient: a survey of aged residential care staff perceptions of palliative care communication, education and delivery

artículo científico publicado en 2016

Neighbourhood health forums: local democracy at work.

artículo científico publicado en 1991

OA1 There's plenty of talk about advance care planning but should women be listening?

artículo científico publicado en 2015

Older people with heart failure and general practitioners - temporal reference frameworks and implications for practice

artículo científico publicado el 16 de febrero de 2011

Older people's experiences of nurse-patient telephone communication in the primary healthcare setting

artículo científico publicado en 2017

Older people's views about home as a place of care at the end of life

artículo científico publicado en 2004

Older people's views of a good death in heart failure: implications for palliative care provision.

artículo científico publicado en 2008

Open learning and nursing practice.

artículo científico publicado en 1990

Optimising compassionate nursing care at the end of life in hospital settings

scientific article published on 8 September 2019

PA12 Is digital storytelling ka pai for new zealand māori? using digital storytelling as a method to explore whānau end of life caregiving experiences: a pilot study

artículo científico publicado en 2015

Palliative care delivery in residential aged care: bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) intervention

artículo científico publicado en 2020

Palliative care for frail older people: A cross-sectional survey of patients at two hospitals in England

article

Palliative care in the emergency department: avoidable or appropriate?

artículo científico publicado en 2016

Palliative care need and management in the acute hospital setting: a census of one New Zealand Hospital

artículo científico publicado en 2013

Palliative care nurse specialists' reflections on a palliative care educational intervention in long-term care: an inductive content analysis

scientific article published on 19 November 2019

Palliative care presentations to emergency departments in a secondary and a sub-acute hospital: A one year incidence study

scholarly article

Paramedic student confidence, concerns, learning and experience with resuscitation decision-making and patient death: A pilot survey

artículo científico publicado en 2019

Participants' views of telephone interviews within a grounded theory study

artículo científico publicado en 2015

Patient and family experiences of palliative care in hospital: what do we know? An integrative review

artículo científico publicado en 2013

Patient views of social service provision for older people with advanced heart failure

artículo científico publicado en 2007

Patient-centred care training needs of health care assistants who provide care for people with dementia

scientific article published on 6 February 2019

Patients' and carers' perspectives of palliative care in general practice: A systematic review with narrative synthesis

artículo científico publicado en 2018

Perceived risks around choice and decision making at end-of-life: a literature review

artículo científico

Perceptions of well-being in sexual ill health: what role does age play?

artículo científico publicado en 2004

Pigmented villonodular synovitis of the zygoapophyseal joint: a case report

artículo científico publicado en 2008

Planning for the end of life: the views of older people about advance care statements

artículo científico publicado en 2004

Politics and professionalism in nursing

artículo científico publicado en 1985

Predicting mortality among a general practice-based sample of older people with heart failure

Predictors of patient-related benefit, burden and feeling safe in relation to hospital admissions in palliative care: A cross-sectional survey

artículo científico publicado en 2017

Predictors of the quality of life of older people with heart failure recruited from primary care.

artículo científico publicado en 2006

Prevalence and predictors of transition to a palliative care approach among hospital inpatients in England

artículo científico publicado en 2013

Prevalence of symptoms in a community-based sample of heart failure patients

artículo científico publicado en 2006

Professional development: now more than ever

article

Progress towards predicting 1-year mortality in older people living in residential long-term care

artículo científico publicado en 2015

Provision of palliative and end-of-life care in New Zealand residential aged care facilities: general practitioners

scientific article published on 14 February 2020

Psychological support requirements of haematological cancer survivors: how can health professionals meet their needs?

artículo científico publicado en 2020

Qualitative research shows that preferences for place of end-of-life care and death are shaped by the uncertainty of living with a life-limiting illness for patients and family caregivers and are neither synonymous nor stable

scientific article published on 05 September 2019

Quest. Who dares wins

scientific article published on 01 February 1986

Reconciling informed consent and 'do no harm': ethical challenges in palliative-care research and practice in chronic obstructive pulmonary disease

artículo científico publicado en 2010

Recruiting older people into a large, community-based study of heart failure

scholarly article

Recruiting older people into a large, community-based study of heart failure

Residential aged care: the de facto hospice for New Zealand's older people

artículo científico publicado en 2013

STRENGTHENING OLDER INDIGENOUS NEW ZEALANDERS AT END OF LIFE: WHAT ROLE DO HEALTH SERVICES PLAY?

scholarly article

Seeking Medical Help for Sexual Concerns in Mid- and Later Life: A Review of the Literature

artículo científico publicado el 1 de marzo de 2011

Sex, Menopause and Social Context

Sexual activity and risk-taking in later life

scientific article published on 1 March 2001

Sexual health and the new ageing

article

Sexual risk-taking in later life

scholarly article

Sexually transmitted infections in the elderly

artículo científico publicado en 1999

Social connectedness: what matters to older people?

artículo científico publicado en 2019

Specialist palliative care nursing and the philosophy of palliative care: a critical discussion

artículo científico publicado en 2017

Supporting people who have dementia to die with dignity.

artículo científico publicado en 2009

Symptom burden, palliative care need and predictors of physical and psychological discomfort in two UK hospitals

artículo científico publicado en 2013

Te Pākeketanga: living and dying in advanced age - a study protocol

artículo científico publicado en 2015

Technology-Mediated Communication in Familial Relationships: Moderated-Mediation Models of Isolation and Loneliness

scientific article published on 5 May 2020

Telephone communication between practice nurses and older patients with long term conditions - a systematic review

artículo científico publicado en 2016

The 'problematisation' of palliative care in hospital: an exploratory review of international palliative care policy in five countries

artículo científico publicado en 2016

The Effect of Residential Aged Care Size, Ownership Model, and Multichain Affiliation on Resident Comfort and Symptom Management at the End of Life

artículo científico publicado en 2018

The Supportive Hospice and Aged Residential Exchange (SHARE) programme in New Zealand

artículo científico publicado en 2017

The Views of Informal Carers' Evaluation of Services (VOICES): Toward an adaptation for the New Zealand bicultural context

artículo científico publicado en 2016

The beginning of the end (of life care strategy)

artículo científico publicado en 2009

The challenge of creating ‘alternative’ images of ageing: Lessons from a project with older women

The contemporary relevance of Glaser and Strauss

The education debate. Future perfect?. Interview by Betty Kershaw.

artículo científico publicado en 1985

The effect of the Shipman murders on clinician attitudes to prescribing opiates for dyspnoea in end-stage chronic obstructive pulmonary disease in England

article

The experience of a gout flare: a meta-synthesis of qualitative studies

scientific article published on 9 June 2020

The extent and cost of potentially avoidable admissions in hospital inpatients with palliative care needs: a cross-sectional study

artículo científico publicado en 2014

The hospital environment for end of life care of older adults and their families: an integrative review

artículo científico publicado en 2011

The impact of the environment on patient experiences of hospital admissions in palliative care

artículo científico publicado en 2015

The nature and timing of distress among post-treatment haematological cancer survivors

artículo científico publicado en 2018

The nature of, and reasons for, 'inappropriate' hospitalisations among patients with palliative care needs: a qualitative exploration of the views of generalist palliative care providers

artículo científico publicado en 2013

The patient experience of musculoskeletal imaging tests for investigation of inflammatory arthritis: a mixed-methods study

artículo científico

The quality of community nursing services: report of an exploratory study in a UK health authority

article

The role of practice nurses in providing palliative and end-of-life care to older patients with long-term conditions

artículo científico publicado en 2014

Theories of learning and the teaching of nursing.

artículo científico publicado en 1982

Transitions to palliative care in acute hospitals in England: qualitative study

artículo científico publicado en 2011

Transnationals' experience of dying in their adopted country: a systematic review

artículo científico publicado en 2015

Uncovering strengths within community dwelling older adults: What does it mean for health care practice?

artículo científico publicado en 2019

Unlocking intuition and expertise: using interpretative phenomenological analysis to explore clinical decision making

artículo científico publicado en 2019

User involvement in palliative care: motivational factors for service users and professionals

Using a prediction of death in the next 12 months as a prompt for referral to palliative care acts to the detriment of patients with heart failure and chronic obstructive pulmonary disease

scientific article published on 01 October 2010

Using focus groups to explore older people's attitudes to end of life care

article published in 2002

What are the priorities for developing culturally appropriate palliative and end-of-life care for older people? The views of healthcare staff working in New Zealand

artículo científico publicado en 2012

What cost components are relevant for economic evaluations of palliative care, and what approaches are used to measure these costs? A systematic review

artículo científico publicado en 2016

What factors predict the confidence of palliative care delivery in long-term care staff? A mixed-methods study

artículo científico publicado en 2019

What indicators are measured by tools designed to address palliative care competence among ‘generalist’ palliative care providers? A critical literature review

article

What is known about the experiences of using CPAP for OSA from the users' perspective? A systematic integrative literature review

artículo científico

What is resilience? An Integrative Review of the empirical literature

artículo científico publicado en 2016

What is the cost of palliative care in the UK? A systematic review

artículo científico publicado en 2018

What is the extent of potentially avoidable admissions amongst hospital inpatients with palliative care needs?

artículo científico publicado en 2013

What is the incidence of patients with palliative care needs presenting to the Emergency Department? a critical review

artículo científico publicado en 2014

What is the prevalence of loneliness amongst older people living in residential and nursing care homes? A systematic review and meta-analysis

scientific article published on 12 May 2020

What is the role of community at the end of life for people dying in advanced age? A qualitative study with bereaved family carers

artículo científico publicado en 2017

What questionnaires exist to measure the perceived competence of generalists in palliative care provision? A critical literature review

artículo científico publicado en 2011

What's the diagnosis? Organisational culture and palliative care delivery in residential aged care in New Zealand

artículo científico publicado en 2015

When resuscitation doesn't work: A qualitative study examining ambulance personnel preparation and support for termination of resuscitation and patient death

artículo científico publicado en 2020

Where do people die? An international comparison of the percentage of deaths occurring in hospital and residential aged care settings in 45 populations, using published and available statistics

artículo científico publicado en 2012

Where now with Do Not Attempt Resuscitation decisions?

artículo científico publicado en 2004

Women's understandings of sexual problems: findings from an in-depth interview study

artículo científico publicado en 2013

Working bi-culturally within a palliative care research context: the development of the Te Ārai Palliative Care and End of Life Research Group

article

Working with older people with multiple long-term conditions: a qualitative exploration of nurses' experiences

scholarly article

‘It's my pleasure?’: the views of palliative care patients about being asked to participate in research

scholarly article