Lista de obras - Marion McAllister - Dominio Público Uruguay

Assessment of patient empowerment--a systematic review of measures

artículo científico publicado en 2015

Conceptualising patient empowerment: a mixed methods study

artículo científico publicado en 2015

Developing an intervention to facilitate family communication about inherited genetic conditions, and training genetic counsellors in its delivery

artículo científico publicado en 2015

Empowerment: qualitative underpinning of a new clinical genetics-specific patient-reported outcome

artículo científico publicado en 2010

Evaluating empowerment in genetic counseling using patient-reported outcomes

scientific article published on 23 October 2019

Experiences of Women Who Underwent Predictive BRCA 1/2 Mutation Testing Before the Age of 30.

artículo científico publicado en 2015

Exploring the feasibility of delivering standardized genomic care using ophthalmology as an example

artículo científico publicado en 2017

Family Communication in Inherited Cardiovascular Conditions in Ireland

artículo científico publicado en 2016

Identifying variation in models of care for the genomic-based diagnosis of inherited retinal dystrophies in the United Kingdom

artículo científico publicado en 2016

Improving Service Evaluation in Clinical Genetics: Identifying Effects of Genetic Diseases on Individuals and Families

article

Outcome measurement in clinical genetics services: a systematic review of validated measures.

artículo científico publicado en 2008

Outcome measures for clinical genetics services: A comparison of genetics healthcare professionals and patients’ views

article

Patient empowerment in clinical genetics services.

artículo científico publicado en 2008

Patient empowerment: the need to consider it as a measurable patient-reported outcome for chronic conditions

artículo científico publicado en 2012

Patient reported outcomes and patient empowerment in clinical genetics services

artículo científico publicado en 2014

Personal theories of inheritance, coping strategies, risk perception and engagement in hereditary non-polyposis colon cancer families offered genetic testing

artículo científico publicado en 2003

Predictive Genetic Testing and Beyond: A Theory of Engagement

artículo científico publicado en 2002

Shock, adjust, decide: reproductive decision making in cystic fibrosis (CF) carrier couples--a qualitative study

artículo científico publicado en 2011

Standards for the Reporting of Genetic Counseling Interventions in Research and Other Studies (GCIRS): an NSGC Task Force Report

artículo científico publicado en 2017

The Genetic Counseling Outcome Scale: a new patient-reported outcome measure for clinical genetics services

artículo científico publicado en 2011

The emotional effects of genetic diseases: Implications for clinical genetics

article

The need to develop an evidence base for genetic counselling in Europe.

artículo científico publicado en 2015

The perceived personal control (PPC) questionnaire: Reliability and validity in a sample from the United Kingdom

artículo científico publicado en 2011

Training Genetic Counsellors to Deliver an Innovative Therapeutic Intervention: their Views and Experience of Facilitating Multi-Family Discussion Groups

artículo científico publicado en 2016

Translation and Adaptation of the Genetic Counselling Outcome Scale (GCOS-24) for Use in Denmark

artículo científico publicado en 2017

Understanding the expectations of patients with inherited retinal dystrophies.

artículo científico publicado en 2013

Understanding the impact of genetic testing for inherited retinal dystrophy.

artículo científico publicado en 2013

Using Patient-Reported Outcome Measures for Quality Improvement in Clinical Genetics: an Exploratory Study

artículo científico publicado en 2017

Valuing Preferences for the Process and Outcomes of Clinical Genetics Services: A Pilot Study

artículo científico publicado en 2015

Valuing the benefits of genetic testing for retinitis pigmentosa: a pilot application of the contingent valuation method

artículo científico publicado en 2013

Valuing the economic benefits of complex interventions: when maximising health is not sufficient ⬇️

artículo científico publicado el 6 de febrero de 2012

What process attributes of clinical genetics services could maximise patient benefits?

artículo científico publicado en 2008

Lista de obras de Marion McAllister

Assessment of patient empowerment--a systematic review of measures

Conceptualising patient empowerment: a mixed methods study

Developing an intervention to facilitate family communication about inherited genetic conditions, and training genetic counsellors in its delivery

Empowerment: qualitative underpinning of a new clinical genetics-specific patient-reported outcome

Evaluating empowerment in genetic counseling using patient-reported outcomes

Experiences of Women Who Underwent Predictive BRCA 1/2 Mutation Testing Before the Age of 30.

Exploring the feasibility of delivering standardized genomic care using ophthalmology as an example

Family Communication in Inherited Cardiovascular Conditions in Ireland

Identifying variation in models of care for the genomic-based diagnosis of inherited retinal dystrophies in the United Kingdom

Improving Service Evaluation in Clinical Genetics: Identifying Effects of Genetic Diseases on Individuals and Families

Outcome measurement in clinical genetics services: a systematic review of validated measures.

Outcome measures for clinical genetics services: A comparison of genetics healthcare professionals and patients’ views

Patient empowerment in clinical genetics services.

Patient empowerment: the need to consider it as a measurable patient-reported outcome for chronic conditions

Patient reported outcomes and patient empowerment in clinical genetics services

Personal theories of inheritance, coping strategies, risk perception and engagement in hereditary non-polyposis colon cancer families offered genetic testing

Predictive Genetic Testing and Beyond: A Theory of Engagement

Shock, adjust, decide: reproductive decision making in cystic fibrosis (CF) carrier couples--a qualitative study

Standards for the Reporting of Genetic Counseling Interventions in Research and Other Studies (GCIRS): an NSGC Task Force Report

The Genetic Counseling Outcome Scale: a new patient-reported outcome measure for clinical genetics services

The emotional effects of genetic diseases: Implications for clinical genetics

The need to develop an evidence base for genetic counselling in Europe.

The perceived personal control (PPC) questionnaire: Reliability and validity in a sample from the United Kingdom

Training Genetic Counsellors to Deliver an Innovative Therapeutic Intervention: their Views and Experience of Facilitating Multi-Family Discussion Groups

Translation and Adaptation of the Genetic Counselling Outcome Scale (GCOS-24) for Use in Denmark

Understanding the expectations of patients with inherited retinal dystrophies.

Understanding the impact of genetic testing for inherited retinal dystrophy.

Using Patient-Reported Outcome Measures for Quality Improvement in Clinical Genetics: an Exploratory Study

Valuing Preferences for the Process and Outcomes of Clinical Genetics Services: A Pilot Study

Valuing the benefits of genetic testing for retinitis pigmentosa: a pilot application of the contingent valuation method

Valuing the economic benefits of complex interventions: when maximising health is not sufficient ⬇️

What process attributes of clinical genetics services could maximise patient benefits?