Lista de obras - Michael Parker - Dominio Público Uruguay

"Are we getting the biometric bioethics right?" - the use of biometrics within the healthcare system in Malawi

scientific article published on 05 June 2020

"The one who chases you away does not tell you go": silent refusals and complex power relations in research consent processes in Coastal Kenya

artículo científico publicado en 2015

"When they see us, it's like they have seen the benefits!": experiences of study benefits negotiations in community-based studies on the Kenyan Coast

artículo científico publicado en 2014

'It is an entrustment': Broad consent for genomic research and biobanks in Sub-Saharan Africa.

artículo científico publicado en 2017

A network of empirical ethics teams embedded in research programmes across multiple sites: opportunities and challenges in contributing to COVID-19 research and responses

artículo científico publicado en 2022

A qualitative study of health system barriers to accessibility and utilization of maternal and newborn healthcare services in Ghana after user-fee abolition

artículo científico publicado en 2014

Addressing health system barriers to access to and use of skilled delivery services: perspectives from Ghana

artículo científico

Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research

artículo científico publicado en 2015

Beliefs and practices during pregnancy, post-partum and in the first days of an infant's life in rural Cambodia

artículo científico publicado en 2017

Best Practices for Ethical Sharing of Individual-Level Health Research Data From Low- and Middle-Income Settings

artículo científico publicado en 2015

Community engagement on the Thai-Burmese border: rationale, experience and lessons learnt

artículo científico publicado en 2010

Community engagement strategies for genomic studies in Africa: a review of the literature

artículo científico publicado en 2015

Consent and assent in paediatric research in low-income settings

artículo científico publicado en 2014

Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya

artículo científico publicado en 2013

Data sharing and intellectual property in a genomic epidemiology network: policies for large-scale research collaboration

artículo científico publicado en 2006

Developing Ethical Practices for Public Health Research Data Sharing in South Africa: The Views and Experiences From a Diverse Sample of Research Stakeholders

artículo científico publicado en 2015

Development of drugs for severe malaria in children

artículo científico publicado en 2016

Disclosure of individual genetic data to research participants: the debate reconsidered

artículo científico publicado en 2010

Distinguishing research from clinical care in cancer genetics: theoretical justifications and practical strategies

article

Does science need bioethicists? Ethics and science collaboration in biomedical research

artículo científico publicado en 2014

Editorial - ethical practice and genomic research

artículo científico publicado en 2020

Empirical research on the ethics of genomic research.

artículo científico publicado en 2013

End of life decision-making in neonatal care

artículo científico publicado en 2007

Ethical challenges in designing and conducting medicine quality surveys

artículo científico publicado en 2016

Ethical challenges in pathogen sequencing: a systematic scoping review

scientific article published on 03 June 2020

Ethical challenges that arise at the community interface of health research: village reporters' experiences in Western Kenya

artículo científico publicado en 2013

Ethical considerations in global HIV phylogenetic research

article

Ethical data release in genome-wide association studies in developing countries

artículo científico publicado en 2009

Ethical issues in genetics and infectious diseases research: An interdisciplinary expert review

artículo científico publicado en 2021

Ethical issues in human genomics research in developing countries

artículo científico publicado en 2011

Ethical issues in the export, storage and reuse of human biological samples in biomedical research: perspectives of key stakeholders in Ghana and Kenya

artículo científico publicado en 2014

Ethics, economics, and the use of primaquine to reduce falciparum malaria transmission in asymptomatic populations

artículo científico publicado en 2014

Fair Allocation of Scarce Medical Resources in the Time of Covid-19

artículo científico publicado en 2020

Forms of benefit sharing in global health research undertaken in resource poor settings: a qualitative study of stakeholders' views in Kenya

artículo científico publicado en 2012

GLIDE Wellcome Open Research Gateway

artículo científico publicado en 2022

Genetic Testing of Children: The Need for a Family Perspective

journal article; published in The American Journal of Bioethics in 2014

Genetic diagnosis of developmental disorders in the DDD study: a scalable analysis of genome-wide research data

artículo científico publicado en 2014

Genetic information: a joint account?

artículo científico publicado en 2004

Genome-wide and fine-resolution association analysis of malaria in West Africa

artículo científico publicado en 2009

Good and Bad Research Collaborations: Researchers' Views on Science and Ethics in Global Health Research

artículo científico publicado en 2016

Health professionals' and researchers' perspectives on prenatal whole genome and exome sequencing: 'We can't shut the door now, the genie's out, we need to refine it'

scientific article published in PLoS ONE

If you come from a well-known organisation, I will trust you: Exploring and understanding the community's attitudes towards healthcare research in Cambodia.

artículo científico publicado en 2018

Impact of an informed choice invitation on uptake of screening for diabetes in primary care (DICISION): randomised trial ⬇️

artículo científico publicado en 2010

Impact of an informed choice invitation on uptake of screening for diabetes in primary care (DICISION): trial protocol ⬇️

artículo científico publicado en 2009

Impact of detecting potentially serious incidental findings during multi-modal imaging

artículo científico publicado en 2017

Implications of data protection legislation for family history

artículo científico publicado en 2006

In emergencies, health research must go beyond public engagement toward a true partnership with those affected

scientific article published on 01 March 2020

Inclusion of diverse populations in genomic research and health services: Genomix workshop report

artículo científico publicado en 2017

Inequities in accessibility to and utilisation of maternal health services in Ghana after user-fee exemption: a descriptive study

artículo científico publicado en 2014

International health research monitoring: exploring a scientific and a cooperative approach using participatory action research

artículo científico publicado en 2014

Investigating the potential for ethnic group harm in collaborative genomics research in Africa: is ethnic stigmatisation likely?

artículo científico publicado en 2012

Involving Research Stakeholders in Developing Policy on Sharing Public Health Research Data in Kenya: Views on Fair Process for Informed Consent, Access Oversight, and Community Engagement

artículo científico publicado en 2015

Knowing who to trust: exploring the role of 'ethical metadata' in mediating risk of harm in collaborative genomics research in Africa

artículo científico publicado en 2014

Lay and Professional Understandings of Research and Clinical Activities in Cancer Genetics and Their Implications for Informed Consent

article

Managing misaligned paternity findings in research including sickle cell disease screening in Kenya: 'consulting communities' to inform policy

artículo científico publicado en 2013

Motivations and perceptions of community advisory boards in the ethics of medical research: the case of the Thai-Myanmar border

artículo científico publicado en 2014

No expectation to share incidental findings in genomic research

artículo científico publicado en 2014

Opening Pandora's box?: ethical issues in prenatal whole genome and exome sequencing

artículo científico publicado en 2017

Optimising Exome Prenatal Sequencing Services (EXPRESS): a study protocol to evaluate rapid prenatal exome sequencing in the NHS Genomic Medicine Service

artículo científico publicado en 2022

Patient and public involvement: Two sides of the same coin or different coins altogether?

artículo científico publicado en 2019

Patterns of ST segment resolution after guidewire passage and thrombus aspiration in primary percutaneous coronary intervention (PPCI) for acute myocardial infarction

artículo científico publicado en 2016

Perceived Benefits, Harms, and Views About How to Share Data Responsibly: A Qualitative Study of Experiences With and Attitudes Toward Data Sharing Among Research Staff and Community Representatives in Thailand

artículo científico publicado en 2015

Position statement on ethics, equipoise and research on charged particle radiation therapy

artículo científico publicado en 2013

Potential research participants support the return of raw sequence data

artículo científico publicado en 2015

Practical guidelines addressing ethical issues pertaining to the curation of human locus-specific variation databases (LSDBs)

artículo científico publicado en 2010

Pre-symptomatic genetic testing for inherited cardiac conditions: a qualitative exploration of psychosocial and ethical implications

artículo científico publicado en 2013

Pro/con ethics debate: should mechanical ventilation be continued to allow for progression to brain death so that organs can be donated?

artículo científico publicado en 2002

Psychiatric Genomics and Mental Health Treatment: Setting the Ethical Agenda

artículo científico publicado en 2017

Public's attitudes on participation in a biobank for research: an Italian survey

artículo científico publicado en 2014

Public/community engagement in health research with men who have sex with men in sub-Saharan Africa: challenges and opportunities

artículo científico publicado en 2016

Publisher Correction: In emergencies, health research must go beyond public engagement toward a true partnership with those affected

scientific article published on 01 March 2020

Quantifying SARS-CoV-2 transmission suggests epidemic control with digital contact tracing

scientific article published on 31 March 2020

Research Stakeholders' Views on Benefits and Challenges for Public Health Research Data Sharing in Kenya: The Importance of Trust and Social Relations

artículo científico publicado en 2015

Research consent from young people in resource-poor settings

artículo científico publicado en 2014

Returning genome sequences to research participants: Policy and practice

artículo científico publicado en 2017

Role of next of kin in accessing health records of deceased relatives

artículo científico publicado en 2004

Scaling ethics up and down: moral craft in clinical genetics and in global health research

artículo científico publicado en 2015

Seeking consent to genetic and genomic research in a rural Ghanaian setting: A qualitative study of the MalariaGEN experience.

artículo científico publicado en 2012

Sharing Individual-Level Health Research Data: Experiences, Challenges and a Research Agenda

article

Sharing Public Health Research Data: Toward the Development of Ethical Data-Sharing Practice in Low- and Middle-Income Settings

artículo científico publicado en 2015

Stakeholder views on secondary findings in whole-genome and whole-exome sequencing: a systematic review of quantitative and qualitative studies

artículo científico publicado en 2016

Stakeholders understanding of the concept of benefit sharing in health research in Kenya: a qualitative study

artículo científico publicado en 2011

Strengthening ethical community engagement in contemporary Malawi

artículo científico publicado en 2018

Sweat, Skepticism, and Uncharted Territory: A Qualitative Study of Opinions on Data Sharing Among Public Health Researchers and Research Participants in Mumbai, India

artículo científico publicado en 2015

Tailored medicine: whom will it fit? The ethics of patient and disease stratification.

artículo científico publicado en 2004

The ethics of open access publishing

artículo científico publicado en 2013

The ethics of sustainable genomic research in Africa

artículo científico publicado en 2016

The practicality and sustainability of a community advisory board at a large medical research unit on the Thai-Myanmar border

article

Top five ethical lessons of COVID-19 that the world must learn

artículo científico publicado en 2021

Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam

artículo científico publicado en 2015

Understandings of genomic research in developing countries: a qualitative study of the views of MalariaGEN participants in Mali

artículo científico publicado en 2015

Vaccine-enhanced disease: case studies and ethical implications for research and public health

artículo científico

Valid consent for genomic epidemiology in developing countries

artículo científico publicado en 2007

Views of Ethical Best Practices in Sharing Individual-Level Data From Medical and Public Health Research: A Systematic Scoping Review

artículo científico publicado en 2015

Working towards ethical management of genetic testing

artículo científico publicado en 2002

Lista de obras de Michael Parker

"Are we getting the biometric bioethics right?" - the use of biometrics within the healthcare system in Malawi

"The one who chases you away does not tell you go": silent refusals and complex power relations in research consent processes in Coastal Kenya

"When they see us, it's like they have seen the benefits!": experiences of study benefits negotiations in community-based studies on the Kenyan Coast

'It is an entrustment': Broad consent for genomic research and biobanks in Sub-Saharan Africa.

A network of empirical ethics teams embedded in research programmes across multiple sites: opportunities and challenges in contributing to COVID-19 research and responses

A qualitative study of health system barriers to accessibility and utilization of maternal and newborn healthcare services in Ghana after user-fee abolition

Addressing health system barriers to access to and use of skilled delivery services: perspectives from Ghana

Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research

Beliefs and practices during pregnancy, post-partum and in the first days of an infant's life in rural Cambodia

Best Practices for Ethical Sharing of Individual-Level Health Research Data From Low- and Middle-Income Settings

Community engagement on the Thai-Burmese border: rationale, experience and lessons learnt

Community engagement strategies for genomic studies in Africa: a review of the literature

Consent and assent in paediatric research in low-income settings

Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya

Data sharing and intellectual property in a genomic epidemiology network: policies for large-scale research collaboration

Developing Ethical Practices for Public Health Research Data Sharing in South Africa: The Views and Experiences From a Diverse Sample of Research Stakeholders

Development of drugs for severe malaria in children

Disclosure of individual genetic data to research participants: the debate reconsidered

Distinguishing research from clinical care in cancer genetics: theoretical justifications and practical strategies

Does science need bioethicists? Ethics and science collaboration in biomedical research

Editorial - ethical practice and genomic research

Empirical research on the ethics of genomic research.

End of life decision-making in neonatal care

Ethical challenges in designing and conducting medicine quality surveys

Ethical challenges in pathogen sequencing: a systematic scoping review

Ethical challenges that arise at the community interface of health research: village reporters' experiences in Western Kenya

Ethical considerations in global HIV phylogenetic research

Ethical data release in genome-wide association studies in developing countries

Ethical issues in genetics and infectious diseases research: An interdisciplinary expert review

Ethical issues in human genomics research in developing countries

Ethical issues in the export, storage and reuse of human biological samples in biomedical research: perspectives of key stakeholders in Ghana and Kenya

Ethics, economics, and the use of primaquine to reduce falciparum malaria transmission in asymptomatic populations

Fair Allocation of Scarce Medical Resources in the Time of Covid-19

Forms of benefit sharing in global health research undertaken in resource poor settings: a qualitative study of stakeholders' views in Kenya

GLIDE Wellcome Open Research Gateway

Genetic Testing of Children: The Need for a Family Perspective

Genetic diagnosis of developmental disorders in the DDD study: a scalable analysis of genome-wide research data

Genetic information: a joint account?

Genome-wide and fine-resolution association analysis of malaria in West Africa

Good and Bad Research Collaborations: Researchers' Views on Science and Ethics in Global Health Research

Health professionals' and researchers' perspectives on prenatal whole genome and exome sequencing: 'We can't shut the door now, the genie's out, we need to refine it'

If you come from a well-known organisation, I will trust you: Exploring and understanding the community's attitudes towards healthcare research in Cambodia.

Impact of an informed choice invitation on uptake of screening for diabetes in primary care (DICISION): randomised trial ⬇️

Impact of an informed choice invitation on uptake of screening for diabetes in primary care (DICISION): trial protocol ⬇️

Impact of detecting potentially serious incidental findings during multi-modal imaging

Implications of data protection legislation for family history

In emergencies, health research must go beyond public engagement toward a true partnership with those affected

Inclusion of diverse populations in genomic research and health services: Genomix workshop report

Inequities in accessibility to and utilisation of maternal health services in Ghana after user-fee exemption: a descriptive study

International health research monitoring: exploring a scientific and a cooperative approach using participatory action research

Investigating the potential for ethnic group harm in collaborative genomics research in Africa: is ethnic stigmatisation likely?

Involving Research Stakeholders in Developing Policy on Sharing Public Health Research Data in Kenya: Views on Fair Process for Informed Consent, Access Oversight, and Community Engagement

Knowing who to trust: exploring the role of 'ethical metadata' in mediating risk of harm in collaborative genomics research in Africa

Lay and Professional Understandings of Research and Clinical Activities in Cancer Genetics and Their Implications for Informed Consent

Managing misaligned paternity findings in research including sickle cell disease screening in Kenya: 'consulting communities' to inform policy

Motivations and perceptions of community advisory boards in the ethics of medical research: the case of the Thai-Myanmar border

No expectation to share incidental findings in genomic research

Opening Pandora's box?: ethical issues in prenatal whole genome and exome sequencing

Optimising Exome Prenatal Sequencing Services (EXPRESS): a study protocol to evaluate rapid prenatal exome sequencing in the NHS Genomic Medicine Service

Patient and public involvement: Two sides of the same coin or different coins altogether?

Patterns of ST segment resolution after guidewire passage and thrombus aspiration in primary percutaneous coronary intervention (PPCI) for acute myocardial infarction

Perceived Benefits, Harms, and Views About How to Share Data Responsibly: A Qualitative Study of Experiences With and Attitudes Toward Data Sharing Among Research Staff and Community Representatives in Thailand

Position statement on ethics, equipoise and research on charged particle radiation therapy

Potential research participants support the return of raw sequence data

Practical guidelines addressing ethical issues pertaining to the curation of human locus-specific variation databases (LSDBs)

Pre-symptomatic genetic testing for inherited cardiac conditions: a qualitative exploration of psychosocial and ethical implications

Pro/con ethics debate: should mechanical ventilation be continued to allow for progression to brain death so that organs can be donated?

Psychiatric Genomics and Mental Health Treatment: Setting the Ethical Agenda

Public's attitudes on participation in a biobank for research: an Italian survey

Public/community engagement in health research with men who have sex with men in sub-Saharan Africa: challenges and opportunities

Publisher Correction: In emergencies, health research must go beyond public engagement toward a true partnership with those affected

Quantifying SARS-CoV-2 transmission suggests epidemic control with digital contact tracing

Research Stakeholders' Views on Benefits and Challenges for Public Health Research Data Sharing in Kenya: The Importance of Trust and Social Relations

Research consent from young people in resource-poor settings

Returning genome sequences to research participants: Policy and practice

Role of next of kin in accessing health records of deceased relatives

Scaling ethics up and down: moral craft in clinical genetics and in global health research

Seeking consent to genetic and genomic research in a rural Ghanaian setting: A qualitative study of the MalariaGEN experience.

Sharing Individual-Level Health Research Data: Experiences, Challenges and a Research Agenda