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A Parental Report of Youth Transition Readiness: The Parent STARx Questionnaire (STARx-P) and Re-evaluation of the STARx Child Report.

artículo científico publicado en 2017

A clinical tool to measure the components of health-care transition from pediatric care to adult care: the UNC TR(x)ANSITION scale.

artículo científico publicado en 2012

A longitudinal analysis of the effect of anemia on health-related quality of life in children with mild-to-moderate chronic kidney disease

scientific article published on 24 April 2020

A longitudinal examination of parent-reported emotional-behavioral functioning of children with mild to moderate chronic kidney disease

scientific article published on 10 March 2020

A longitudinal examination of the psychoeducational, neurocognitive, and psychiatric functioning in children with 22q11.2 deletion syndrome

artículo científico publicado en 2013

A multicenter study of neurocognition in children with hypertension: methods, challenges, and solutions

artículo científico publicado en 2013

A tale worth telling: the impact of the diagnosis experience on disclosure of genetic disorders.

artículo científico publicado en 2014

A window into living with an undiagnosed disease: illness narratives from the Undiagnosed Diseases Network

artículo científico publicado en 2017

Academic achievement in children with chronic kidney disease: a report from the CKiD cohort

scientific article published on 17 November 2018

Altered Development of the Dorsolateral Prefrontal Cortex in Chromosome 22q11.2 Deletion Syndrome: An In Vivo Proton Spectroscopy Study ⬇️

artículo científico publicado el 25 de mayo de 2012

Ambulatory blood pressure monitoring and neurocognitive function in children with primary hypertension

artículo científico publicado en 2018

Applicability of the nonverbal learning disability paradigm for children with 22q11.2 deletion syndrome

artículo científico publicado en 2012

Assessment of Parental Disclosure of a 22q11.2 Deletion Syndrome Diagnosis and Implications for Clinicians ⬇️

artículo científico publicado el 31 de agosto de 2012

Association Between Chronic Kidney Disease-Mineral Bone Disease (CKD-MBD) and Cognition in Children: Chronic Kidney Disease in Children (CKiD) Study

artículo científico publicado en 2020

Association of Blood Pressure Level With Left Ventricular Mass in Adolescents

scientific article published on 22 July 2019

Association of blood pressure variability and neurocognition in children with chronic kidney disease

artículo científico publicado en 2016

Association of the family environment with behavioural and cognitive outcomes in children with chromosome 22q11.2 deletion syndrome ⬇️

artículo científico publicado el 7 de junio de 2013

Attention deficit hyperactivity disorder symptoms as antecedents of later psychotic outcomes in 22q11.2 deletion syndrome

scientific article published on 07 August 2018

Bicarbonate, blood pressure, and executive function in pediatric CKD-is there a link?

scientific article published on 15 April 2020

Blood pressure and school performance

artículo científico publicado en 2014

Brain Magnetic Resonance Imaging Findings in Children and Young Adults With CKD.

artículo científico publicado en 2018

Brain abnormalities in children and adolescents with chronic kidney disease

artículo científico publicado en 2018

Brief report: intellectual and academic functioning in pediatric chronic kidney disease

artículo científico publicado en 2007

Casual blood pressure and neurocognitive function in children with chronic kidney disease: a report of the children with chronic kidney disease cohort study

artículo científico publicado en 2011

Characteristics of undiagnosed diseases network applicants: implications for referring providers

Cognitive Function in Children with Lupus Nephritis: A Cross-Sectional Comparison with Children with Other Glomerular Chronic Kidney Diseases

artículo científico publicado en 2017

Cognitive decline preceding the onset of psychosis in patients with 22q11.2 deletion syndrome

artículo científico publicado en 2015

Cognitive improvement in children with CKD after transplant ⬇️

artículo científico publicado el 1 de noviembre de 2010

Cognitive remediation in pediatric chronic kidney disease and end-stage kidney disease: rationale, candidate interventions, and applicability

artículo científico publicado en 2017

Completing the puzzle: The search for pieces in the understanding of psychosis risk in 22q11.2 deletion syndrome

artículo científico publicado en 2017

Consensus expert recommendations for the diagnosis and management of autosomal recessive polycystic kidney disease: report of an international conference

artículo científico publicado en 2014

Depression and neurocognitive dysfunction in pediatric and young adult chronic kidney disease

scientific article published on 02 May 2019

Depressive Symptoms in Children with Chronic Kidney Disease

artículo científico publicado en 2015

Design and methods of the NiCK study: neurocognitive assessment and magnetic resonance imaging analysis of children and young adults with chronic kidney disease

artículo científico publicado en 2015

Discordance in Diagnoses and Treatment of Psychiatric Disorders in Children and Adolescents with 22q11.2 Deletion Syndrome.

artículo científico publicado en 2011

Discrepancies in parent and teacher ratings of social-behavioral functioning of children with chromosome 22q11.2 deletion syndrome: implications for assessment

artículo científico publicado en 2013

Disparities in Health Literacy and Healthcare Utilization among Adolescents and Young Adults with Chronic or End-stage Kidney Disease

artículo científico publicado en 2017

Dose-dependent expression of claudin-5 is a modifying factor in schizophrenia.

artículo científico publicado en 2017

Duration of chronic kidney disease reduces attention and executive function in pediatric patients

artículo científico publicado en 2014

Dysregulation of DGCR6 and DGCR6L: psychopathological outcomes in chromosome 22q11.2 deletion syndrome ⬇️

artículo científico publicado el 24 de abril de 2012

Dysregulation of DGCR6 and DGCR6 L: psychopathological outcomes in chromosome 22q11.2 deletion syndrome.

artículo científico publicado en 2012

Effect of elevated blood pressure on quality of life in children with chronic kidney disease

artículo científico publicado en 2016

Engagement in Household Chores in Youth With Chronic Conditions: Health care Transition Implications

artículo científico publicado en 2020

Enhanced maternal origin of the 22q11.2 deletion in velocardiofacial and DiGeorge syndromes

artículo científico publicado en 2013

Environmental lead exposure is associated with neurocognitive dysfunction in children with chronic kidney disease

scientific article published on 20 July 2019

Evaluation of Neurocognition in Youth with CKD Using a Novel Computerized Neurocognitive Battery

artículo científico publicado en 2015

Evaluation of the TRxANSITION Index-Parent Version for assessment of readiness to transition to adult care among youth with chronic conditions

artículo científico publicado en 2020

Executive Functioning in Children, Adolescents, and Young Adults with Chronic Kidney Disease

artículo científico publicado en 2015

Feasibility and preliminary efficacy data from a computerized cognitive intervention in children with chromosome 22q11.2 deletion syndrome ⬇️

artículo científico publicado el 7 de junio de 2013

Frontal Hypoactivation During a Working Memory Task in Children With 22q11 Deletion Syndrome

artículo científico publicado en 2016

Genetic contributors to risk of schizophrenia in the presence of a 22q11.2 deletion

artículo científico publicado en 2020

Genomic Disorders and Neurocognitive Impairment in Pediatric CKD.

artículo científico publicado en 2017

Health Care Transition for Adolescents With CKD—The Journey From Pediatric to Adult Care ⬇️

artículo científico publicado el 1 de septiembre de 2011

Health care transition preparation in youth with chronic conditions: working towards translational evidence with a patient perspective

artículo científico publicado en 2015

Health-related quality of life of children with mild to moderate chronic kidney disease

artículo científico publicado en 2010

Hypogyrification and its association with cognitive impairment in children with 22q11.2 deletion Syndrome: A preliminary report

artículo científico publicado en 2019

Increased corpus callosum volume in children with chromosome 22q11.2 deletion syndrome is associated with neurocognitive deficits and genetic polymorphisms

artículo científico publicado en 2012

Increased history of ischemic stroke and decreased neurocognitive performance in children with chronic kidney disease

artículo científico publicado en 2020

Longitudinal Self-Management and/or Transition Readiness per the TRxANSITION Index among Patients with Chronic Conditions in Pediatric or Adult Care Settings

scientific article published on 07 September 2018

Memory and executive functions in pediatric chronic kidney disease

artículo científico publicado en 2006

Neurocognition in children with autosomal recessive polycystic kidney disease in the CKiD cohort study

artículo científico publicado en 2014

Neurocognitive Dysfunction in Children, Adolescents, and Young Adults With CKD.

artículo científico publicado en 2015

Neurocognitive Function in Children with Primary Hypertension

artículo científico publicado en 2016

Neurocognitive Function in Children with Primary Hypertension after Initiation of Antihypertensive Therapy.

artículo científico publicado en 2018

Neurocognitive Functioning of Children and Adolescents with Mild-to-Moderate Chronic Kidney Disease ⬇️

artículo científico publicado el 7 de julio de 2011

Neurocognitive outcomes in children with chronic kidney disease: Current findings and contemporary endeavors.

artículo científico publicado en 2006

Neurocognitive, Social-Behavioral, and Adaptive Functioning in Preschool Children with Mild to Moderate Kidney Disease

artículo científico publicado en 2016

Neurodevelopmental consequences of early traumatic brain injury in 3-year-old children

artículo científico publicado en 2007

No evidence for the presence of genetic variants predisposing to psychotic disorders on the non-deleted 22q11.2 allele of VCFS patients.

artículo científico publicado en 2017

Not the End of the Odyssey: Parental Perceptions of Whole Exome Sequencing (WES) in Pediatric Undiagnosed Disorders

artículo científico publicado en 2016

Parent ratings of behavioral functioning after traumatic brain injury in very young children

artículo científico publicado en 2009

Parental Communication and Experiences and Knowledge of Adolescent Siblings of Children with 22q11.2 Deletion Syndrome

artículo científico publicado en 2014

Prevalence and outcomes of fragility: a frailty-inflammation phenotype in children with chronic kidney disease

scientific article published on 02 August 2019

Psychiatric disorders from childhood to adulthood in 22q11.2 deletion syndrome: results from the International Consortium on Brain and Behavior in 22q11.2 Deletion Syndrome

artículo científico publicado en 2014

Psychosocial Profiles of Parents of Children with Undiagnosed Diseases: Managing Well or Just Managing?

artículo científico publicado en 2018

Rare Genome-Wide Copy Number Variation and Expression of Schizophrenia in 22q11.2 Deletion Syndrome

artículo científico publicado en 2017

Regional Cerebral Blood Flow in Children and Young Adults with Chronic Kidney Disease

artículo científico publicado en 2018

SHIP-AHOY (Study of High Blood Pressure in Pediatrics: Adult Hypertension Onset in Youth)

artículo científico publicado en 2018

Self-Management and Transition Readiness Assessment: Concurrent, Predictive and Discriminant Validation of the STARx Questionnaire

artículo científico publicado en 2015

Sleep and fatigue symptoms in children and adolescents with CKD: a cross-sectional analysis from the chronic kidney disease in children (CKiD) study

artículo científico publicado en 2010

Sleep disordered breathing as measured by SRBD-PSQ and neurocognition in children with hypertension.

artículo científico publicado en 2014

Social cognitive training in adolescents with chromosome 22q11.2 deletion syndrome: feasibility and preliminary effects of the intervention

artículo científico publicado en 2015

Socioeconomic Status and Psychological Function in Children with Chromosome 22q11.2 Deletion Syndrome: Implications for Genetic Counseling ⬇️

artículo científico publicado el 3 de agosto de 2010

Subclinical Systolic and Diastolic Dysfunction Is Evident in Youth With Elevated Blood Pressure

scientific article published on 04 May 2020

Subthreshold Psychosis in 22q11.2 Deletion Syndrome: Multisite Naturalistic Study

artículo científico publicado en 2017

Systematic review of structural and functional neuroimaging findings in children and adults with CKD.

artículo científico publicado en 2013

Target Organ Abnormalities in Pediatric Hypertension

artículo científico publicado en 2018

The brain in pediatric chronic kidney disease-the intersection of cognition, neuroimaging, and clinical biomarkers

scientific article published on 02 January 2020

The central nervous system in childhood chronic kidney disease.

artículo científico publicado en 2006

The genome empowerment scale: An assessment of parental empowerment in families with undiagnosed disease

scientific article published on 08 October 2019

The impact of short stature on health-related quality of life in children with chronic kidney disease

artículo científico publicado en 2013

The nervous system and chronic kidney disease in children

artículo científico publicado en 2004

The relationship of health care transition readiness to disease-related characteristics, psychosocial factors, and health care outcomes: preliminary findings in adolescents with chronic kidney disease

artículo científico publicado en 2015

Using common genetic variation to examine phenotypic expression and risk prediction in 22q11.2 deletion syndrome

scientific article published on 09 November 2020

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